Rezultati pretraživanja
  1. 7. sij 2019.

    ⁩ ⁦⁩ ⁦ with umbrellas to keep rain at bay. RARE for a JPM!!!

  2. 10. sij 2017.

    Packed house for panel with cl

  3. 10. sij 2017.

    Great panelists at Unmet Needs, Uncommon Commitment: The Shift Toward Investment in Rare Diseases

  4. 10. sij 2017.

    Henri Termeer: industry must be a "lifeline" to patients, physicians + all engaged in rare disease community

  5. 8. sij 2019.

    Christine Brown and Lex Cowsert () representing the PKU patient voice at the JP Morgan Health Conference

  6. 8. sij 2019.
  7. 10. sij 2017.

    Great crowd hearing from leaders in rare disease drug development and patient advocacy.

  8. 9. sij 2017.
  9. Hottest area in was the with rare disease lovers mingling and helping patients. Proud to have many of them as our partners. Great job !

  10. 8. sij 2019.

    The 3rd Annual seminar is happening now! Don't miss this unique networking opportunity for innovators during .

  11. 7. sij 2019.
  12. 8. sij 2018.

    We are delighted to once again be serving as a Program Organizer for event Union Square during ! If you'd like to connect with our team this week send us a tweet or just stop by!

  13. 10. sij 2017.

    Debra Miller speaking about the role of the patient and advocate and successful models to involve patients.

  14. 10. sij 2019.

    One of my favorite events of the year . Year 3 knocked it out of the park. Love sharing our mission and raising rare…

  15. "Patients at the end, in the middle, and at the beginning" Closing comments at Fireside Chat

  16. 10. sij 2017.

    Flemming Ornskov () gives kudos to Henri Termeer, patient advocates for paving way for innovation in rare diseases

  17. 10. sij 2017.

    Dr. Flemming Ørnskov closing it down. "There's no manual in rare diseases. It takes pioneers."

  18. 9. sij 2017.

    Rain or shine, we'll be at tomorrow to connect w/other rare disease orgs & companies. Thanks for organizing!

  19. 10. sij 2017.

    Great turnout for Fireside Chat on The Shift Toward Investment in Rare Diseases.

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