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Our CEO David Giljohann got a chance to talk with
@dslevine from@GlobalGenes about Exicure’s SNA technology on the latest episode of#RARECast.#DigitalDrugDesignhttps://twitter.com/dslevine/status/1223294859219333120 … -
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@giljohann@exicure discusses the company’s spherical nucleic acid therapies, how they work, and why they have the potential to treat a wide range of conditions including rare neurological diseases@GlobalGenes#RARECast https://soundcloud.com/rarecast/delivering-oligonucleotide-therapies-to-any-cell-type … -
Dror Bashan, CEO of Protalix Biotherapeutics, comes on our
#RARECast to speak about the company's efforts in pursuing therapies for unmet medical needs for diseases that include Fabry disease, cystic fibrosis, and other inflammatory diseases. http://ow.ly/pGRW50y7c1j -
Catch up on what's new in
#raredisease with this week's#RARECast episode, featuring Stanley Crooke. Here Crooke discusses his n-Lorem Foundation, a new nonprofit that is delivering free RNA-targeted therapies to rare disease patients. https://globalgenes.org/rare-cast/ -
Antisense pioneer
@DrStanleyCrooke discusses the genesis of his new organization n-Lorem Foundation and the challenges for regularizing the process of designing n-of-1 therapies for ultra-rare disease patients.@GlobalGenes#RARECast https://soundcloud.com/rarecast/driving-n-of-1-therapies-for-ultra-rare-disease-patients … -
Podcaster, author and an inspiration to many. Hear how
@KyleABryant's cross-country bike ride changed his relationship with Friedreich’s ataxia in a recent#RARECast.@rideATAXIA#CureFA#raredisease#CareAboutRarehttps://globalgenes.org/2019/11/15/a-journey-to-advocacy/ … -
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@Srotberg15 and@tunaturns have both felt the isolation#raredisease and chronic health condtions can bring. Hear how their organizationation,@_OurOdyssey_, is providing support for other young adults impacted by#raredisease.#RARECast https://globalgenes.org/2019/11/01/connecting-young-adults-with-rare-and-chronic-conditions/ … -
Hear how
@angelaidcares founder Cristol O’Loughlin is tackling the challenges caregivers face.#RARECast#rarediseasehttps://globalgenes.org/2019/10/25/addressing-the-barriers-to-access-of-experimental-therapies/ … -
Hear
@bobigelow discuss the power of film and how he's using it to raise awareness for#raredisease at DISORDER: The Rare Disease Film Festival.#CareAboutRare#RARECast https://globalgenes.org/2019/10/18/a-festival-of-moving-pictures/ … -
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@bobigelow of#Disorder: The Rare Disease Film Festival, on the power of film to raise awareness about rare disease, the films at this year’s showing in SF, and how the event fosters connections between patients and researchers@GlobalGenes#RARECast https://soundcloud.com/rarecast/a-festival-of-moving-pictures … -
With the amazing podcast host
@dslevine at@GlobalGenes#2019GGSummit#RareCast. Listen to Connecting Rare Disease Patients in India and the United States by RARECast@ORDIndia @ordiusa https://soundcloud.com/rarecast/harsha-rajasimha-co-founder-and-acting-executive-chair-of-the-organization-for-rare-diseases-india-and-the-organization-for-rare-diseases-india-usa-discusses-effort-bridge-the-gulf-between-rare-disease-patients-in-india-and-the-united-states …pic.twitter.com/6jbZldc9Aw – mjesto: Sheraton San Diego Grande Ballroom
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In a recent
@GlobalGenes#RARECast, Meagan Cross of@cureangelman in Australia discusses how the Global Angelman Syndrome Registry is an opportunity for families to participate in research from home to inform the development of new treatmentshttp://ow.ly/j3jN50u1RyV -
From
@GlobalGenes#rarecast Listen to learn how TREND Community data is driving science and improving patient lives. How Two Mothers Discovered That a Drug for One Rare Disorder Might Benefit Another: https://soundcloud.com/rarecast/how-two-mothers-discovered-a-drug-for-one-rare-disorder-might-benefit-another?fbclid=IwAR1KHNM1oWIBmCnRJckqw6I4WpP9FTYswjSZA2YiETOZ_K2cyKZg-Px5Qcg … -
In the latest episode of
#RARECast our CEO@DrStanleyCrooke speaks with@dslevine about the success of#antisense technology & how Ionis is poised to continue delivering transformational medicines to people who need them@GlobalGeneshttps://soundcloud.com/rarecast/ionis-ceo-stanley-crooke?utm_source=soundcloud&utm_campaign=share&utm_medium=twitter … -
Have 20 minutes? Listen to this
@GlobalGenes interview to learn how communities like ours are powering discovery and accelerating the path toward treatment for rare diseases. One catch: we aren't afraid of the word "cure."#CareAboutRare#RAREcast https://soundcloud.com/rarecast/how-patient-led-collaborations-are-transforming-rare-disease-drug-discovery-and-development?fbclid=IwAR26fFl_hgqCBbeOQTeW_kpQinfavGJLFz3xr6sxvrAR585kwAMgIwtlNNM … -
In a new
#RARECast, Sean Gordon explains how a#raredisease diagnosis inspired him to form the Rare Funding Team to match volunteers to rare disease organizations that need help with websites, social media & other resources http://ow.ly/eLFT30mL0SW#CareAboutRare -
Traveling this week? Check out our
#RARECast podcasts for insights from#raredisease advocacy leaders, researchers & biopharma executives http://ow.ly/OUp330miWUg#CareAboutRarepic.twitter.com/whz28QwoO9
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Recently was a guest at
#rarecast with@GlobalGenes#nf2#nf1#schwannomatosis, talking about what we’re doing at RDMD to accelerate research and treatments -https://soundcloud.com/rarecast/curating-patient-data-to-accelerate-rare-disease-drug-development … -
I love this podcast by
@GlobalGenes with#raredisease patient & advocate@RobLong47 - highlights the great work of@UpliftingAth and importance of Athlete Advocates in the rare disease community https://buff.ly/2uPOFc5@dslevine#studentathletes#RARECast -
Thank you
@GlobalGenes for raising awareness for#UndiagnosedDay and for our#UndiagnosedRare community! Thank you@DsLevine@MattMight#RARECast https://twitter.com/GlobalGenes/status/989247914156462084 …
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