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Thank you
@CJeffery161 incredibly impressive presentation on@IDFAustralia support for#PID#PrimaryImmuneDeficiency patients at all levels, having a huge impact on the quality of life and awareness pic.twitter.com/T8j5m120rS
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February 28, 2019 marks the 10 year anniversary of Rare Disease Day in the U.S. There is limited data regarding the prevalence of Selective IgM Deficiency. It may occur in anywhere from 3 to 380 per ten thousand
#primaryimmunedeficiency#SIgMdeficiency#ourlittlewarriorpic.twitter.com/PtRT76qw03
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Immune Deficiency Foundation Family Day!
@IDFCommunity#primaryimmunedeficiency pic.twitter.com/2MljyBPT2Z
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Pie Fight for PI!
@mxddieshxw's@IDFCommunity event raised money and awareness for#PrimaryImmunedeficiency pic.twitter.com/7GAydBsZDR
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The journey begins to
#ukpin2019! Did you know there are more than 300 types of#primaryimmunedeficiency? Rare, but important for clinicians to think about, especially in those with Severe Persistent Unusual or Recurrent infections (SPUR) more info at links below...Prikaži ovu nit -
It's
#raredisease day. Sending our gratitude to all the plasma and blood donors @GiveLifeNS, the researchers@IWKHealthCentre and amazing doctors who take care of us.#cvid#congenitalasplenia#doublezebra#primaryimmunedeficiency -
Do you or a loved one live with a
#primaryimmunedeficiency (PI)? On May 15, from 7:00-8:00 PM, a webinar educational program for primary immune deficiency (PI) patients and their family members and/or caregivers! For more information, take a look at the flyer attached! pic.twitter.com/ghxwJtvfDj
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We shouldn't automatically vaccinate without first automatically testing for
#PrimaryImmuneDeficiency#PID or other health issues! -
@vanessabryantoz Great to hear success stories of the multidisciplinary approach and genomics transforming the diagnosis of#PID#PrimaryImmuneDeficiency@MelbGenomicspic.twitter.com/Cx7BPaL8sG
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Anything which increases people's chances of finding a
#stemcell donor is worthwhile. Having a transplant could be the only chance of surviving#bloodcancer and#primaryimmunedeficiency https://twitter.com/AnthonyNolan/status/999606594416541697 …
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I wish I could prevent every cough, infection, viruses, and any form of illness from my son. Praying for a miracle of complete healing! In the mean time he has Mommy Nurse to the rescue. Just a cough no just the beginning
#PrimaryImmunedeficiency -
IVIG patients, are you thinking of making the switch to SCIg? There are several advantages to infusing subcutaneously #scig#freedomscig#ivig#primaryimmunedeficiency#cidp#hizentra#cuvitru#gammagard#freedom60#immunoglobulin#pidd#subq#subcutaneouspic.twitter.com/9dmCzINKgh
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Dawn is loving her Freedom with SCIg. Thanks for sharing your experience, we wish you all the best with your therapy
#rarediseasewarrior#lems#cidp#scig#subq#freedomscig#cvid#autoimmunedisease#primaryimmunedeficiency#freedominfusionsystems#freedom60#hizentrapic.twitter.com/it9JDVtNYP
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Therese Cole navigating the complexities of treating
#PID#PrimaryImmuneDeficiency “we need to learn from the experience of what others are doing and collaborate...we need bigger cohorts...to be following the patients after transplant.”#CIRCAsymposiumpic.twitter.com/UXC0Ypm47r
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Tuesday’s are for subcutaneous IgG antibody infusions to treat my
#primaryimmunedeficiency!! pic.twitter.com/fvgUkhJOHp
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Acknowledging Ms Younger extensive contributions towards improving the Dx & care of patients with
#primaryimmunedeficiency@IDFCommunity -
Soleo Health is a proud sponsor of the IDF. Read the press release for more info.
#primaryimmunedeficiency#IDFpic.twitter.com/dtikaYReMk
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We need to celebrate heroes like
@PeterHotez! Thank you for standing up & fighting for the health of so many! The false information about vaccines being promoted on social platforms serve no one. As a person with#PrimaryImmuneDeficiency I applaud your efforts!#VaccinesWork
https://twitter.com/PeterHotez/status/1188099922777821184 … -
For people following my
#SCIG saga with insurance, Dr Awesome has come through and it has been approved for this entire calendar year!!#HealthInsurance#PID#PrimaryImmuneDeficiency -
Orange: The future of PID Primary Immune Deficiency diagnosis - a multi pronged approach
#primaryimmunedeficiency#WSAAIpic.twitter.com/v1OC7YF0rx – mjesto: Fairmont Kea Lani Maui
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decreasing 'contemplation window' could help increase the number of people on the stem cell register, and improve the chances of finding the best match for patients who need a transplant: