Rezultati pretraživanja
  1. Thank you incredibly impressive presentation on support for patients at all levels, having a huge impact on the quality of life and awareness

  2. 28. velj 2019.

    February 28, 2019 marks the 10 year anniversary of Rare Disease Day in the U.S. There is limited data regarding the prevalence of Selective IgM Deficiency. It may occur in anywhere from 3 to 380 per ten thousand

  3. 11. stu 2017.

    Immune Deficiency Foundation Family Day!

  4. Pie Fight for PI! 's event raised money and awareness for

  5. 4. pro 2019.

    The journey begins to ! Did you know there are more than 300 types of ? Rare, but important for clinicians to think about, especially in those with Severe Persistent Unusual or Recurrent infections (SPUR) more info at links below...

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  6. 28. velj 2018.

    It's day. Sending our gratitude to all the plasma and blood donors @GiveLifeNS, the researchers and amazing doctors who take care of us.

  7. Do you or a loved one live with a (PI)? On May 15, from 7:00-8:00 PM, a webinar educational program for primary immune deficiency (PI) patients and their family members and/or caregivers! For more information, take a look at the flyer attached!

  8. Odgovor korisniku/ci

    We shouldn't automatically vaccinate without first automatically testing for or other health issues!

  9. Great to hear success stories of the multidisciplinary approach and genomics transforming the diagnosis of

  10. 24. svi 2018.

    Anything which increases people's chances of finding a donor is worthwhile. Having a transplant could be the only chance of surviving and

  11. 14. ožu 2018.

    I wish I could prevent every cough, infection, viruses, and any form of illness from my son. Praying for a miracle of complete healing! In the mean time he has Mommy Nurse to the rescue. Just a cough no just the beginning 🙏🏾

  12. 15. sij

    👋🏼 IVIG patients, are you thinking of making the switch to SCIg? There are several advantages to infusing subcutaneously

  13. 29. sij

    Dawn is loving her Freedom with SCIg. Thanks for sharing your experience, we wish you all the best with your therapy 🙂

  14. Therese Cole navigating the complexities of treating “we need to learn from the experience of what others are doing and collaborate...we need bigger cohorts...to be following the patients after transplant.”

  15. 1. lis 2019.

    Tuesday’s are for subcutaneous IgG antibody infusions to treat my !!

  16. 31. srp 2017.
    Odgovor korisnicima

    Acknowledging Ms Younger extensive contributions towards improving the Dx & care of patients with

  17. 25. ruj 2014.

    Soleo Health is a proud sponsor of the IDF. Read the press release for more info.

  18. We need to celebrate heroes like ! Thank you for standing up & fighting for the health of so many! The false information about vaccines being promoted on social platforms serve no one. As a person with I applaud your efforts! 👏

  19. 23. sij 2018.

    For people following my saga with insurance, Dr Awesome has come through and it has been approved for this entire calendar year!!

  20. Orange: The future of PID Primary Immune Deficiency diagnosis - a multi pronged approach – mjesto: Fairmont Kea Lani Maui

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