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Looking forward to the final face to face session today with participants in the
@IPPOSI Patient Education Programme. Well done to all involved for getting through the course, and for their active participation. Good luck to everyone on their advocacy journey#patientsinvolvedPrikaži ovu nit -
The
@HSELive headlines recently make for unpleasant reading. The@IPPOSI are a group that puts patients at the heart of health policy & innovation in conjunction with The HSE. Until this morning I'd never heard of them!#patientsinvolved Have a look
https://www.ipposi.ie/about-us/ pic.twitter.com/NiXn2Rzg7A
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I missed this in last weekend's paper! Thanks
@Its_Me_Kirsten for the link. Our@hsru_aberdeen patient involvement partnership highlighted at recent@NHSGrampian research conference and making the local press#PatientsInvolved https://www.pressandjournal.co.uk/fp/news/aberdeen/1626547/chance-for-public-to-engage-in-nhs-grampian-research/ … -
Wendy Costello
@wendycostello2 speaking on how completing the@ipposi Patient Education Programme has helped her advocacy work



#patientsinvolved pic.twitter.com/Fa1guDG457
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Many clinical trials are not recording QoL preventing patients having important information to make choices about treatment
@ZPWLC#EHA24#patientsinvolved pic.twitter.com/JuieXIPG8Y
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#EUPATI#PatientsInvolved@eupatients@EUPATI_UK@WMTYScot@PersonCntrdSco@S4Maher@Clairog@dgmfg@IanMWelsh@IreneOldfather@LauraMcC86@SouzMakri@novonordisk when patients r empowered they will know its important 4 clinicians 2 ask "what matters to them" in clinical trialspic.twitter.com/bGoOCFanMV
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It's been a fantastic experience learning about clinical trials, health product regulation & health technology assessment on the
@IPPOSI patient ed course. Thanks to all those involved in developing & delivering the various modules.#patientsinvolved@UCDMedicine@TheHPRA@ncpepic.twitter.com/0CF0YyELwW
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The new National Screening Committee will have TWO positions for the public/patient voice. If you're interested in the role, get your application to the State Boards via link below by Aug 30th.
#PatientsInvolved#NothingAboutUsWithoutUs#ItsNotTheWakingItsTheRising https://twitter.com/roinnslainte/status/1154358609624670208 …pic.twitter.com/P0d5s7zeeN
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Have you or someone you know had a full knee replacement due to Osteoarthritis? Would you help us make our research design is as relevant as possible? Email: patientvoicearthritis@ucd.ie
@Arthritisie@kilkennyai#PatientsInvolved@IPPOSI@AgeAction@IrishSheds@ERDorris -
Lobular Breast Cancer is unique and may not always form a lump like other types of
#BreastCancer#LobularIreland#patientsinvolved#ILC#NotAlwaysALump@MarieKeating@MaterRadiology@BCCare@RCSI_Irl@PVCR_Ireland@BreastAdvocate@BCResearchIre pic.twitter.com/9ksZUMSi8m
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Would you like to chat about health and wellbeing? Come join us at this public event in Maynooth next Friday! All are welcome but places are limited so be sure to register.
#patientsinvolved https://twitter.com/mark_w_robinson/status/1218124099765121024 …Prikaži ovu nit -
In 2011
@eupatientsforum led the successful consortium that created#EUPATI. Now already in its 4th cycle
and accepting applications! Interested?
#patientsinvolved#patientengagement#patienteducationhttps://twitter.com/eupatients/status/1178959065499738119 …
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Maybe we should call it the
#EUCancerOmission - no single European cancer patient advocate appointed to the EU Mission on Cancer in#HorizonEU. See http://europa.eu/!KN36jy@MazzucatoM@JEPaquetEU@Moedas@EUScienceInnov#patientsincluded#AdvocatesINnotOUT#patientsinvolved -
Very proud of this one! Our co-created PLS Toolkit is now also listed on the
@EmbassySci platorm. Well done to all our contributors and everyone flying the flag for quality scientific information, delivered in ways we can all understand.@EnvisionPharma#patientsinvolved https://twitter.com/KWProScribe/status/1158886274272337921 …
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Great to see our work on the Patient Voice in Arthritis Research featured on the new
@campus_engage website.@ERDorris@UCD_Conway@UCDMedicine#patientsinvolved#TogetherIsBetterhttp://www.campusengage.ie/case-studies/the-patient-voice-in-arthritis-research/ … -
Great to be a part of
@IPPOSI course. Learned so much from@Joan_JJ_Mc Looking forward to this module.@TheHPRA@CllIreland#patientsinvolved https://twitter.com/BreastDense/status/1121768288013492225 …
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Effective 21 February 2020 I'm leaving EUPATI
@eupatients to work in Rare Disease Early Development at Roche. Do you know someone who could be my successor? Is it you? Apply now and lead EUPATI in it's next chapter! https://eupati.box.com/s/479rfpcr4vhijhoojg339nfj6e4d0o2u …#patientsinvolved#EUPATI -
Lots of
#HTA discussion at#IPPOSI Patient Education Programme Module 3 NCPE today. Thank you to patient advocate@shiel_olivia and to Dr Claire Gorry@gorrycm and Dr Lesley Tinson@INFO_NCPE and Dr Conor Teljeur@HIQA for their insightful presentations.#PatientsInvolved pic.twitter.com/sehdJMYExN
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The course was a fantastic experience - educational, empowering and enjoyable. Thanks to all those who made it happen, not least
@DerickOMisteal,@marievonboran and the@IPPOSI team.#patientsinvolved https://twitter.com/IPPOSI/status/1194228686804914177 …
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Thank you to
@IPPOSI for having me back to talk to their new graduates today. I wish them all the best and hope the next year will bring them as many unexpected opportunities as I have had since my graduation.#patientsinvolved#ipposi#patienteducationpic.twitter.com/U33YUGefy9
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