Rezultati pretraživanja
  1. 29. sij
  2. 29. sij

    Looking forward to a great discussion this evening about patient and public involvement in industry-led research. Join the conversation at 8pm GMT using . Hope to have some attendees joining us!

  3. 28. sij

    All stakeholders should feel responsible for , this is the key to making it the norm and sustainable. Great questions from the audience on for POs and ! Thank you

  4. 28. sij

    Thanks to Cathy Bouvier, INCA President-Elect for making sure the NET patient voice is well heard.

  5. 28. sij

    Not just industry- academic researchers and people in healthcare also need to involve patients and caregivers from the start of a project, or better yet, the when ideas are being generated about a project

  6. 28. sij

    , C Coquerel from showcase the Monitoring and Evaluation Framework to measure the impact of activities in R&D. 👉 our publication

  7. 28. sij

    It’s not only about starting early with , it’s also about being systematic - on/off approaches to involvement limit the opportunities for impact

  8. 28. sij
    Prikaži ovu nit
  9. 28. sij

    “Don’t come to us with projects half-baked and say that’s what collaboration looks like.” Industry need to be involving people in research from the beginning

  10. 28. sij

    Great discussions at so far, including how to involve patients throughout the entire medicine development life cycle, which we believe is key to successful

  11. 28. sij

    “my wife is my rock , without her I wouldn’t be here 1000% “ “I’d heard stories about partners leaving partners diagnosed with prostate cancer so I asked her why do stay with me ? Grace looked at me in THAT way - “I’m here to stay”

  12. 28. sij

    Al Samuels and his caregiver wife Grace “Even men can cry , I’m a man and my partner took over . I could see she was hurting and that made me feel terrible “

  13. 28. sij

    in should not be focusing on impacting the cost effectiveness debate but where it adds real value: help understanding the disease burden & unmet need. Great panel at

  14. 27. sij
    Odgovor korisniku/ci

    Thank you - Feedback is important for those that give up their time for research - our Guidance was developed for researchers in terms of Patient and Public Involvement but equally important for participants

  15. 27. sij

    Lucie Keeber from Ipsen, and Cathy, spoke about solutions to the issues around true 'patient centricity' in clinical trials, the need for real world evidence, adaptability, and transparency.

  16. 27. sij

    Attendees at might be interested in this excellent guidance for patient organisations, on how to work with industry to support patient involvement. Document here:

  17. 27. sij

    Looking forward to hosting this Tweetchat with UK colleagues, inc. , , . Special guests , & INFO HERE:

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