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A BIG Diolch/Thank you to all
@ConferenceForum#patientsEU2020 For being#Ataxia aware (@alanROYGBIV#Wales#pinksockspic.twitter.com/cMy1MFZwOQ
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Looking forward to a great discussion this evening about patient and public involvement in industry-led research. Join the conversation at 8pm GMT using
#industryPPI. Hope to have some#PatientsEU2020 attendees joining us!#patientinvolvement#whywedoresearch#pharmapic.twitter.com/GXnBSjaODj
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All stakeholders should feel responsible for
#patientengagement, this is the key to making it the norm and sustainable. Great questions from the audience on#funding for POs and#patientdata! Thank you#patientsEU2020 https://twitter.com/ConferenceForum/status/1222154861770199040 …
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Thanks to Cathy Bouvier, INCA President-Elect for making sure the NET patient voice is well heard.
#patientsEU2020#letstalkaboutNETshttps://twitter.com/netpatientfound/status/1221845126361833472 …
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Not just industry- academic researchers and people in healthcare also need to involve patients and caregivers from the start of a project, or better yet, the when ideas are being generated about a project
#patientengagement#PatientsEU2020 https://twitter.com/_nratcliffe/status/1222108233680199680 … -
#patientsEU2020, C Coquerel@Cha3C from@novonordisk showcase the Monitoring and Evaluation Framework to measure the impact of#patientengagement activities in R&D.
our publication https://onlinelibrary.wiley.com/doi/full/10.1111/hex.12951 …
@IMI_JU@EFPIA@eupatientsforum@eupatients@PFMDwithPatientpic.twitter.com/PehShgHNT5
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It’s not only about starting early with
#patientinvolvement, it’s also about being systematic - on/off approaches to involvement limit the opportunities for impact#PatientsEU2020 -
Watch the Icucharts presentation https://goo.gl/6uBeQB https://goo.gl/xEXuCH
#coronavirus#ICU#CriticalCare#FOAMed#FOAMcc#ARDS#some4mv#SoMe4Surgery#nurses#patientsafety#patientsEU2020#digitaltransfirmation#digitalhealth#medtwitter#Medical#sepsis#COPD #pic.twitter.com/whN7VQBbA3Prikaži ovu nit -
“Don’t come to us with projects half-baked and say that’s what collaboration looks like.” Industry need to be involving people in research from the beginning
#PatientsEU2020 -
Great discussions at
#PatientsEU2020 so far, including how to involve patients throughout the entire medicine development life cycle, which we believe is key to successful#patientengagement@ConferenceForumpic.twitter.com/xOgx5Es8fu
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#patientsEU2020 “my wife is my rock , without her I wouldn’t be here 1000% “ “I’d heard stories about partners leaving partners diagnosed with prostate cancer so I asked her why do stay with me ? Grace looked at me in THAT way - “I’m here to stay”#thepowerofthecaregiverpic.twitter.com/d1imZ8yTTs
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#patientsEU2020 Al Samuels and his caregiver wife Grace “Even men can cry , I’m a man and my partner took over . I could see she was hurting and that made me feel terrible “ pic.twitter.com/IDKqS9x5GP
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#Patientinvolvement in#HTA should not be focusing on impacting the cost effectiveness debate but where it adds real value: help understanding the disease burden & unmet need. Great panel at#PatientsEU2020@lietuvai@EUneurology@EFPIApic.twitter.com/vJItXDc4sO
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@AvrilKennan#patientseu2020 Thank you - Feedback is important for those that give up their time for research - our Guidance was developed for researchers in terms of Patient and Public Involvement but equally important for participants https://www.clahrc-eoe.nihr.ac.uk/wp-content/uploads/2016/05/Guidance-for-Researchers-PPI-Feedback_2018.pdf … -
Lucie Keeber from Ipsen, and Cathy, spoke about solutions to the issues around true 'patient centricity' in clinical trials, the need for real world evidence, adaptability, and transparency.
@IpsenGroup@netcancerday#patientsEU2020#neuroendocrinecancer#letstalkaboutNETspic.twitter.com/new4lTx42x
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Attendees at
#PatientsEU2020 might be interested in this excellent@SLGInvolvement guidance for patient organisations, on how to work with industry to support patient involvement. Document here: http://bit.ly/PPIinIndustry#PPI#HealthResearchMatters#pharmaindustrypic.twitter.com/sM8KQFT1D7
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Looking forward to hosting this Tweetchat with UK colleagues, inc.
@BecHanley1,@_nratcliffe,@_cenolan. Special guests@DerekCStewart,@SheuliPorkess &@jmdtaylor1 INFO HERE: http://bit.ly/IndustryPPIchat#IndustryPPI#patientseu2020 pic.twitter.com/x7eVl4OMCI
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