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"Her itch began in the evening and lasted all night. She would scratch herself until she bled." Listen to Claire's powerful account of her daughter Eleanor's journey w/
#PFIC in our new#Youtube video:#PFICvoices#careaboutrare#stoptheitch#pficawarenesshttps://www.youtube.com/watch?v=6Dta12ivo5s … -
"I think that is why we're doing this. This is why we're here - to try and find better ways of looking after these children." - Professor Richard Thompson, pediatric hepatologist at
@KingsCollegeNHS in London and consultant to Albireo#PFICvoices https://bit.ly/2OxCRGa -
Professor Richard Thompson, pediatric hepatologist at
@KingsCollegeNHS & consultant to Albireo has dedicated much of his life to studying rare cholestatic liver conditions & caring for those with#PFIC. He offers us a unique perspective: https://www.youtube.com/watch?v=wyu6gAQcMKk …#PFICvoices -
At just 14 months, Kennedie’s doctors decided she would need to undergo a liver transplantation to receive relief from
#PFIC symptoms. Thank you to@ParkerNewsCCM for sharing this important story – read about this family’s journey here: https://bit.ly/2n4F3ZO#PFICvoices -
Check out this video
@MyDelmarvaNow created to educate their readers about progressive familial intrahepatic cholestasis, or#PFIC! Every voice counts –#share with your network to let them know about this#raredisease.#PFICVoices#StopTheItchhttps://bit.ly/2k808l6 -
Albireo is committed to advancing science and drug development with the goal of making a difference in the lives of families affected by PFIC. Hear more from families, watch videos and take a look at our educational resources on http://PFICvoices.com
#PFICvoices pic.twitter.com/LTXuVZ5M8K
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