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Every PAH patient deserves early diagnosis and access to the best care. We are proud to be involved in creating the first global
#PAHPatientCharter to empower patients to know what they are entitled to#WorldPHDaypic.twitter.com/KaiBMrncDP
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My first ever podcast, talking about the
#PAHPatientCharter https://twitter.com/phaware/status/1194979094376730625 … -
PH specialist nurse,
@wginsing, from Hammersmith Hospital in the UK, shares her opinion on the need for the#PAHPatientCharter in supporting standardized care globally#WorldPHDay#WithYouUntilPHIsnt#PulmonaryArterialHypertension#PAHpic.twitter.com/2ApSwJhdzz -
Looking forward to the launch of the global
#PAHPatientCharter next week!@PHA_UK@Imperialpeople@pha_ireland@PHAAustralia@PHACanada@phaware@PHAIntl@EuropePHAhttps://twitter.com/actelion_com/status/1192955175314612227 …
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Here are many of the ideas from the
#PAHPatientCharter meeting to improve outcomes and quality of life for patients with#pulmonaryhypertension#WorldPHDay#StrongerTogetherpic.twitter.com/yiFUgnmBJl
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Have you downloaded the first global
#PAHPatientCharter? The Charter aims to empower people living with#PAH and the healthcare professionals supporting them to communicate, make informed decisions and ensure the best care http://bit.ly/2Pd8tR8#WithYouUntilPHIsntpic.twitter.com/TX1nsaRT4Y
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The first global
#PAHPatientCharter recently launched. Together with the steering committee we are delighted to have developed an important tool for the#PAH community http://bit.ly/2rs4uaj#WithYouUntilPHIsntpic.twitter.com/JNiaJLcja7 -
Developed by an international, multidisciplinary steering committee of expert patient advocates and healthcare professionals, the
#PAHPatientCharter sets out the standards people living with#PAH can reasonably expect from their care http://bit.ly/2XOZ4SP#WithYouUntilPHIsntpic.twitter.com/TkSJGgoFNX -
Must-listen
@phaware podcast + text of interview w/#pulmonaryhypertension patient &@EuropePHA staff member Hall Skåra about#PAHPatientCharter#PHAwareness#PHAwarenessMonthhttps://twitter.com/phaware/status/1197878507524808704 … -
Norway patient, Hall Skåra, discusses the first ever PAH Patient Charter.
@phaware interview 301#phaware#PAHPatientCharter#PhawarenessMonth@actelion_com@EuropePHA@PHAssociation@wginsing@PhDeutschland@LatinosConHP@Hellenic_PH@phsingaporehttp://phawarepodcast.libsyn.com/hall-skra-phaware-interview-301?tdest_id=420473 … -
The
#PAHPatientCharter outlines four standards for best practice care in#PAH. Standard #1, you should expect to receive a timely and accurate diagnosis#WithYouUntilPHIsnt#Actelionpic.twitter.com/dNClLlNJyX -
Hoping the
#PAHPatientCharter makes this a reality for all https://twitter.com/phaware/status/1194659823020847105 … -
#PHwarenessMonthChat Join me and three other guest panelists for a dedicated#PHAwarenessMonthChat where we will be discussing what PAH is, the recently published#PAHPatientCharter and the importance of early diagnosis and raising awareness. -
The Global
#PAHPatientCharter launches today! Proud to work for a company and on behalf of a wider community that is tirelessly committed to empowering people living with#PulmonaryArterialHypertension http://bit.ly/36K0Hoz pic.twitter.com/ptO8sEI6tO
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Today our colleagues at
@actelion_com are launching the first Global#PAHPatientCharter. Developed by an international steering committee, the Charter sets out what people living with#PAH should expect from diagnosis to ongoing care > http://bit.ly/36K0Hoz#WithYouUntilPHIsnpic.twitter.com/8NSxA2fFpg
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Hoy
@phaware está encantado de ser parte del lanzamiento de 1st Global#PAHPatientCharter . Desarrollado por un comité directivo internacional, la Carta establece con qué personas viven#PAH debe esperar desde el diagnóstico hasta la atención continua.https://twitter.com/phaware/status/1194265288834838528 …
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The
#PAHPatientCharter launches today! Proud to have been involved in the creation of this special resource to empower people living with#PAH https://bit.ly/36K0Hoz@PHA_UK@Imperialpeople@EuropePHA@pha_ireland@phsingapore@PHAAustralia@PHACanada@APHP_PHPortugal@phlatviapic.twitter.com/xSOnEdPDyt
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#WorldPHDay draws to a close! A big thank you to all the patients, advocates, physicians and nurses who have taken the first step in developing the#PAHPatientCharter. We look forward to revealing the final published Charter in the coming months#WithYouUntilPHIsntpic.twitter.com/hJHdpIuX7L
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PAH is a rare disease that can have a devastating impact on patients’ lives. We are proud
@actelion_com is supporting the community to develop the first#PAHPatientCharter for patients by patients.#WithYouUntilPHIsntpic.twitter.com/tX0gkdDElz
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Dr Nick Kim, PH specialist pulmonologist, from San Diego, US, shares the need for patients to be engaged in their care and the importance of a
#PAHPatientCharter#WithYouUntilPHIsnt#PulmonaryArterialHypertension#PAHpic.twitter.com/TDgksGtYrQ
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