Rezultati pretraživanja
  1. 5. svi 2019.

    Every PAH patient deserves early diagnosis and access to the best care. We are proud to be involved in creating the first global to empower patients to know what they are entitled to

  2. 14. stu 2019.
  3. 5. svi 2019.

    PH specialist nurse, , from Hammersmith Hospital in the UK, shares her opinion on the need for the in supporting standardized care globally

  4. 9. stu 2019.
  5. 5. svi 2019.

    Here are many of the ideas from the meeting to improve outcomes and quality of life for patients with

  6. 12. pro 2019.

    Have you downloaded the first global ? The Charter aims to empower people living with and the healthcare professionals supporting them to communicate, make informed decisions and ensure the best care

  7. 8. pro 2019.

    The first global recently launched. Together with the steering committee we are delighted to have developed an important tool for the community

  8. 26. stu 2019.

    Developed by an international, multidisciplinary steering committee of expert patient advocates and healthcare professionals, the sets out the standards people living with can reasonably expect from their care

  9. 23. stu 2019.
  10. 22. stu 2019.
  11. 19. stu 2019.

    The outlines four standards for best practice care in . Standard #1, you should expect to receive a timely and accurate diagnosis

  12. 13. stu 2019.
  13. 12. stu 2019.

    Join me and three other guest panelists for a dedicated where we will be discussing what PAH is, the recently published and the importance of early diagnosis and raising awareness.

  14. 12. stu 2019.

    The Global launches today! Proud to work for a company and on behalf of a wider community that is tirelessly committed to empowering people living with

  15. 12. stu 2019.

    Today our colleagues at are launching the first Global . Developed by an international steering committee, the Charter sets out what people living with should expect from diagnosis to ongoing care >

  16. Hoy está encantado de ser parte del lanzamiento de 1st Global . Desarrollado por un comité directivo internacional, la Carta establece con qué personas viven debe esperar desde el diagnóstico hasta la atención continua.

  17. 12. stu 2019.

    The launches today! Proud to have been involved in the creation of this special resource to empower people living with

  18. 5. svi 2019.

    draws to a close! A big thank you to all the patients, advocates, physicians and nurses who have taken the first step in developing the . We look forward to revealing the final published Charter in the coming months

  19. 5. svi 2019.

    PAH is a rare disease that can have a devastating impact on patients’ lives. We are proud is supporting the community to develop the first for patients by patients.

    Patient Charter visualization - The Charter.jpg
  20. 5. svi 2019.

    Dr Nick Kim, PH specialist pulmonologist, from San Diego, US, shares the need for patients to be engaged in their care and the importance of a

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