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Why are those telling the truth about ME - the #pacegate travesty, the harm done by the promotion of psychological therapy & physical activity - painted as deniers, violent activists, ignorant cave dwellers or whatever the latest insult is? Well it was ever thus. Truth has power.
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Tonight’s video references the amazing @TweetTipsforME. An amazing blogger with vital advocacy, poignant moments and warm humour for #pwme ♥️ #MillionsMissing #MECFS youtu.be/7NKsbjU89Zk
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We also have experience of sympathetic GPs afraid to go against what the paediatrician insisted was correct management. #pacegate #KidswithME #pwme
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Replying to @DrEReinhold and @sfmnemonic
My daughters GP was seriously threatened by a specialist because she backed us, in thinking GET was unsafe. Our GP was so scared that she stopped seeing my daughter because he insisted the PACE trial results must be good because they were published in The Lancelet.
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One of the hallmarks of bad science is when researchers attack people instead of responding to reasonable critiques. Casting aspersions on activists and while claiming to be a martyr is not good science. #PACEgate
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This is what researchers who are studying aspects of CFS/ME that activists don't want studied are up against. occupyme.net/2018/04/07/ret
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How I became a human plague – and stumbled into one of the most astonishing scientific stories I’ve ever encountered. My column. Plus thread. theguardian.com/commentisfree/
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