Rezultati pretraživanja
  1. Osobe Vidi sve

  2. 1. velj

    please respond with an update , progress, a glimmer of hope to help pALS...my friend deserves to be heard, helped- give her a lifeline!

  3. 29. sij
  4. 29. sij

    Please continue to help spread the word about . Lives depend on it. Please. Thank you.

  5. prije 3 sata
    Odgovor korisnicima

    Stand with ALS patients by funding . Yes I’m one of the ones you’ve blocked on Facebook for asking about this promising therapy! Why block us?!

  6. prije 6 sati

    We NEED treatments NOW for my dad and for all the many ALS patients out there!!!

  7. prije 14 sati

    Purpose of science is about helping humanity. Nobody in this community talks anything about stopping researches. We just want to access it. They proved it's safety, efficiacy. Why can't we get it? There is a process, i understand. But for what?

  8. prije 16 sati

    It can be today, or tomorrow. It can be 5 years or 50 years after today. It doesn't matter. One day a cure will come. And with all this 15 years of drug process protocols, people will die. This must change. This must change today, for all disases like ALS.

  9. 5. velj

    For all the work so many groups and amazing individuals have done to bring awareness about the urgency for FDA approval of , ALS is again neglected, FDA gets commended for speedy drug approval and a smoker gets a metal for lung cancer dx. SERIOUSLY❓‼️😰

  10. 5. velj

    Dear as a doctor I beg and implore you tmrw to please push HR 5480. We need from to be released now. The results are incredible. Many patients including my best friend are dying waiting for this treatment.

  11. 5. velj

    Life, Liberty and the pursuit of happiness. Please give us life give us back liberty from broken bodies Let us pursue happiness instead of begging for treatments

  12. 4. velj

    Conditional approval or an executive order but we need now. We can't wait. We are talking about lives and this treatment can save our lives. Right to prove!

  13. 4. velj
  14. 4. velj

    Executive order for now. We can't wait. People are dying when there is a treatment that can save our lives. It's the time!

  15. 4. velj
  16. 4. velj
    Odgovor korisnicima i sljedećem broju korisnika:

    People need now

  17. 3. velj

    what about ? So your agenda is to "find a cure". There's no cure for arthritis and HIV, but there's treatments. We, the ALS community need this treatment that's been in phrase 3 for 10 years. Guess you'll block me on twitter too 🤷

  18. 3. velj
    Odgovor korisniku/ci

    We need now. We can't wait. We are dying when there is a treatment. Help us please!

  19. 3. velj
    Odgovor korisniku/ci

    Dr Hahn, since becoming commissioner you have demonstrated much leadership and initiative. How about reaching out to and negotiating conditional approval of ? You could save 1000s of ALS patients.

  20. 3. velj

    Who is gpoing to be a hero, change history, make the big news stories, Who is going to help people with ALS?

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