Rezultati pretraživanja
  1. 3. srp 2019.

    Ontario is the 1st province to add the permanent hearing loss risk test to its program. This will lead to earlier diagnosis and intervention for babies at risk for hearing loss, ensuring they have access to the right care and treatment.

    Baby sleeping on shoulder. Image Text: " Protecting newborns’ hearing"
  2. 3. ruj 2019.

    September is Awareness Month! Thanks to Dr. Guthrie & Dr. Koch & the thousands of medical professionals, advocates, & families who have campaigned for universal newborn screening. We still have a long way to go worldwide, and in the US:

  3. Has your child screened positive for ALD on newborn screening in the states of California or New York? If so, please consider participating in a one-time online survey assessing caregiver quality of life. Your insight matters!

  4. 4. pro 2019.

    IPOPI's Medical Advisory Panel Chair highlights that is often part of the cure: "The sooner the diagnosis, the better the outcome, including long term. The babies now being screened, diagnosed and treated can grow up to no longer be patients."

  5. "It’s the most painful lesson I’ve ever learned: A timely newborn screening can be a matter of life or death for an infant. Right now, lifesaving programs are at risk — we need Congress to act before it’s too late." - Sarah W. SPEAK UP:

  6. 16. ruj 2019.

    All U.S. newborns now have the opportunity to be screened for critical congenital heart defects, which allows for timely treatment & may prevent death early in life. Learn what else we know about newborn screenings in the U.S.: .

  7. 8. lis 2019.

    Newborn screening is a test done shortly after birth to look for treatable diseases that usually show no symptoms in the newborn period. Early detection through prevents serious health problems & can save lives.

  8. 27. lis 2019.

    Pompe & MPS I added to panel In WA “Very uncommon, but if you can screen for a child and save a child, then it’s worth the effort.”

  9. News Alert: LifeCell launches 'Genome-Scope', a Newborn Genetic Testing that diagnoses over 4000 Genetic Conditions Read more:

  10. prije 9 sati
  11. helps inform parents if their child is affected by certain serious medical conditions and enables the family to begin treatment and/or a monitoring program as soon as possible. With newborn screening, there's hope: doctors can help families plan for the future.

  12. prije 12 sati

    Minnesota is 1 of 4 states to receive a grade of A for . 🙌Thank you to all the parents, families, providers, lab and clinic staff, and advisory committee members who make Minnesota newborn screening so successful!

  13. 4. velj

    GSTT welcomes Marwan as he begins his secondment.

  14. 4. velj

    We're excited to see that Kansas has officially expanded their Program to include . Thanks to all our amazing advocates in the state who made this a reality!

  15. 4. velj

    The ARISE project has now entered it’s second year! Stay tuned with all the work we are achieving via our website and feel free to get in contact with us.

  16. 4. velj
  17. 4. velj
  18. 4. velj

    Great news! The Kansas program will now screen all babies for !

  19. 4. velj
  20. 4. velj

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