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Having
#MyalgicEncephalomyelitis & being told, by doctors, that exercise can solve it, is like having a car with faulty wiring & a leaking gas tank, & being told by car mechanics, that if you just push your car up a hill, you’ll be able to drive it home.#MEAwarenessHour -
1/ Thread Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
#MECFS Is it really that bad? Trigger warnings: The studies below paint a very bleak picture#MyalgicE#SickNotWeak#pwME#MyalgicEncephalomyelitis#ChronicIllness#MedEd#MedTwitter#SickNotWeakPrikaži ovu nit -
#MECFS has ruined my life! How pointless spending 8 years training and 15 years teaching. I had to leave my job. Sell our house. Get rid of my car. Use all of my savings to live. And no one is listening ! Where do we go from rock bottom?#MyalgicEncephalomyelitis#seeME -
When you wake up in the morning feeling more exhausted than when you went to bed. Feel as though I havent slept at all.
#Fibromyalgia#myalgicencephalomyelitis -
M.E. certainly is international.
#MyalgicEncephalomyelitis -
11/
#MECFS patients are sick..... ...very sick. They need care, respect, acknowledgement and support#MyalgicE#SickNotWeak#pwME#MyalgicEncephalomyelitis#ChronicIllness#MedEd#MedTwitter#SickNotWeakPrikaži ovu nit -
Thank god for the Nintendo switch. I cant use my pc anymore due to being confinded to the couch so at least i can still play games.
#myalgicencephalomyelitis#MECFS#mecfs#chronicillness -
I want to work. I want to take my dog for walks. I want to go outside. But i cant and its soul crushing.
#myalgicencephalomyelitis#MECFS#mecfs -
LEFT OUT - Full Documentary (Subtitled CC) https://youtu.be/JEQjjYVZzxk via
@YouTube Please watch
#MyalgicEncephalomyelitis#ME#MyalgicE -
Another day filled with sitting on the couch. Aka sitting slightly up for 5 mins and then laying back down because I'm too dizzy to sit up.
#mecfs#myalgicencephalomyelitis#MECFS -
So I spent Monday night not sleeping at all and last night i slept for a full 12 hours. The joys.
#myalgicencephalomyelitis#MECFS#mecfs -
From: Dismissing chronic illness: A qualitative analysis of negative health care experiences https://www.tandfonline.com/doi/abs/10.1080/07399332.2018.1521811 … Another useful & sympathetic paper from Leonard Jason team HCP=health care professional
#MEcfs#CFS#MyalgicE#MyalgicEncephalomyelitis#ChronicFatigueSyndromepic.twitter.com/3cyldAlPgh
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Morning Foggy Followers!! How are you all doing today?
#pwme#MyalgicEncephalomyelitis pic.twitter.com/JJzkdVbUrh -
PACING . . .
Gotta B kidding.
As
If
That
In
Any way
Gives us
Our
Lives
Back
#MyalgicEncephalomyelitis
#MyalgicE#pwME#PwME4ICC -
What a delight it would B simply 2wake up &do the basics that 1 normally takes 4 granted .showering .washing hair .nice breakfast .laundry, cleaning house .hop in the car 4 errands or pleasure .socializing ...it’s the weekend. http://Not.in.this.life .
#MyalgicEncephalomyelitis
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So, yea...
#POTS Nothing keeps people on their toes like randomly passing out from the#dysautonomia that accompanies#MyalgicEncephalomyelitis#pwme#CUREME#ROCKME#NOTENOUGH4ME#autoimmunepic.twitter.com/d77aI9fyJn
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Having
#MyalgicEncephalomyelitis means being benched, indefinitely, from your life, and watching while the able-bodied world plays the game you love.#meawarenesshour -
#MyalgicEncephalomyelitis is like a huge storm that knocks the power out. We can’t will the electricity back on. We can’t generate power by doing sit ups & survive on back-up generators. The damage must be repaired so we can live in the light, once more.#MeAwarenessHourPrikaži ovu nit -
. I’m so sorry, Kristina. You, and all people w/
#MyalgicEncephalomyelitis#MEcfs deserve to be treated w/ care, respect & dignity, & not be medically abused.@NIHDirector@NINDSdirector@CDCgov@NIH negligence condemns more than a million Americans w/ M.E. to this living death.pic.twitter.com/0YZIY0hnsQ
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Learnt this the hard way !