-
Day 5: Aortic Anuerysms and other undiagnosed heart problems can be fatal. About half of 1200 people suspected with Marfan Syndrome don't know they have the condition. 600 people in Ireland at risk. Please Share and Like to help save a life.
#MarfanVictoryChallenge#RareDiseasepic.twitter.com/wXzPyYYZcb
-
It's February and it’s Marfan Awareness Month again. Like last year, we will post a fact a day, aka a Marfact, everyday in February. Please like and share to help make people aware and to save
#MarfanSyndrome#MarfanVictoryChallenge pic.twitter.com/VJmhP5Lh5W
Prikaži ovu nit -
Day 7: It's
#MarfanAwarenessMonth. Marfan Syndrome is a#raredisease that affects 1:5000 and 1/2 unaware & at risk. Help us raise awareness. 600 people in Ireland at risk. Please like & Share to save a life.#MarfanVictoryChallenge#KnowFightWin#MarfanSyndromepic.twitter.com/JqWJpVLA13
-
.
@F101Genomes will create a secure bio-informatic database open to scientists. It’s the tool researchers need to better understand rare diseases, develop precision diagnostic tools and find better treatments to fight#marfansyndrome#marfanVictoryChallenge#RareDiseaseDay -
.
@F101Genomes is a unique patient driven initiative to support research on rare diseases. By combining AI, genomics and BigData it wants to help scientists move faster. We have collected €560K in less than 2 years#MarfanVictoryChallenge#RareDiseaseDay -
"This is my Marfan Syndrome Warrior Princess Kelly (11 yrs old) and me (Mom) Tammy. We are wearing our Marfan Awareness sweatshirts and made 30 red ribbons & 30 pens to give our to family, Kelly’s teachers, and Kelly’s doctors for
#MarfanAwarenessMonth.#MarfanVictoryChallenge pic.twitter.com/ZKQLlyS0dY
-
I'm Alexis and on 2/4/19, I was 12 weeks pregnant when I had a descending aortic dissection. I had it repaired a month later in Houston, Tx with Dr Coselli. If sharing my story can help at least one person then that is the greatest VICTORY of all!"
#MarfanVictoryChallenge pic.twitter.com/nlzPjaDukR
-
Although I diagnosed with Marfan syndrome and joint hypermobility syndrome, I felt relief because finally I know the cause of my pains. With all the pain I go through, I decided to support others with the same conditions
@MarfanFdn#MarfanAwarenessMonth#MarfanVictoryChallenge pic.twitter.com/TcMwfpaUj0
-
Google can remember Marfan Syndrome and you should too.
#marfanvictorychallenge#google#superbowl https://www.instagram.com/p/B8IBhXolQ7S/?igshid=nnjielx7swzk … -
I somehow managed to live long enough to see my student loan be cancelled.
#MarfanVictoryChallenge pic.twitter.com/Dqs2LV6MD6
-
Dont have
#marfan myself, but as a nurse I once opted to the doctor that our 31-yo patient with vague heart complaints might have Marfan, which he did, so I guess my#MarfanVictoryChallenge was making sure he got the right treatment and information about his diagnose ♡ -
Marfan Awareness is very important to me. Please visit http://Marfan.org to learn more.
#MarfanVictoryChallenge -
February is #MarfanSyndrome#awareness month!
So what better time to share again this great #PoK#video by@judbacke (#HTAD WG Chair)
#Marfan Syndrome -#Diagnosis https://youtu.be/w-rJbF4nnbQ via@YouTube#MarfanVictoryChallenge#ERNeu#RareDiseases@JondeauG@robert_leema -
Every case of Marfan syndrome is different, and not everyone with Marfan syndrome has all the classic characteristics. This can make it hard to diagnose. Height and arm span continue to be the leading indicators of Marfan, though.
#MarfanAwarenessMonth#MarfanVictoryChallenge pic.twitter.com/K8XGIYodJq
-
There is beauty in
#Marfan syndrome. Hear Tony Award-winner Ann Reinking talk about it.#MarfanVictoryChallenge http://bit.ly/MarfanReinking1 -
Approx. 200,000 in the U.S. have
#Marfan, but half don’t know it. Know the signs.#MarfanVictoryChallenge http://bit.ly/MarfanSigns -
It is February. And February is always a month to help create awareness for
#MarfanSyndrome#MarfanVictoryChallenge#AorticDisease@EileenMasciale@MarfanIreland@MarfanFdn@MarfansyndromeS@MarfanTrust@MarfanSyndrome1@Marfan_Forum@marfanbe@AAAOutreach@ozvascdoc@eurordispic.twitter.com/PsTfw3A39C
-
Is one of the major causes of death for Marfan Syndrome patients. Why list all this? By the Grace of God I’m 50 years old (something many Marfans patients never experience). So please help raise awareness, you might just save a life!
#MarfanVictoryChallenge
Čini se da učitavanje traje već neko vrijeme.
Twitter je možda preopterećen ili ima kratkotrajnih poteškoća u radu. Pokušajte ponovno ili potražite dodatne informacije u odjeljku Status Twittera.