Rezultati pretraživanja
  1. Day 7: It's . Marfan Syndrome is a that affects 1:5000 and 1/2 unaware & at risk. Help us raise awareness. 600 people in Ireland at risk. Please like & Share to save a life.

  2. prije 6 sati

    . will create a secure bio-informatic database open to scientists. It’s the tool researchers need to better understand rare diseases, develop precision diagnostic tools and find better treatments to fight

  3. Day 6: Aortic Anuerysms and other undiagnosed heart problems can be fatal. About half of 1200 people suspected with Marfan Syndrome don't know they have the condition. 600 people in Ireland at risk. Please RT & Like to help save a life.

  4. 5. velj

    Launching our "Meet the Special!" First up, our past President Prof Joanne Murphy-Ullric AND current President Prof Lynn Sakai - experts in TSP1- , and respectively!

  5. still often undiagnosed 💔. But once diagnosed ⚕️, can usually be managed quite successfully. 🧬

  6. 3. velj

    Free download for those seeking or suspecting a diagnosis & help make sense of signs. Already have a Dx? Share this! You just might hand it to someone who needs this potentially life-saving information right now.

  7. 3. velj

    Posted this on my Instagram but thought it would be helpful on here as well for awareness month. 💜

  8. 3. velj
  9. 3. velj

    If you Ever wonder how got to be the country's leading USMLE/COMLEX lecturer.. well here you go:)

  10. 2. velj
  11. 1. velj
    Prikaži ovu nit
  12. 1. velj

    So Marfan Syndrome Awareness Month is here again. I usually have a Blog ready to share but I'm sooo behind this year! Marfan syndrome is still relatively unknown & we need to change this! That's why I blog about it. 💓

  13. 1. velj
  14. 1. velj

    So important to spread the word. Marfan Syndrome has had a huge impact on my family.

  15. 1. velj
  16. 1. velj

    It’s officially awareness month! Posting all about it over on my Instagram! Just want to give a quick thank you to everyone over at for everything you guys have done, it’s amazing. I’m so glad to be a part of a community like this one. 💜

  17. 1. velj

    . Living with 3 family members who have Marfans. Spread the word awareness is key!

  18. It's February and it’s Marfan Awareness Month again. Like last year, we will post a fact a day, aka a Marfact, everyday in February. Please like and share to help make people aware and to save

    Prikaži ovu nit

Čini se da učitavanje traje već neko vrijeme.

Twitter je možda preopterećen ili ima kratkotrajnih poteškoća u radu. Pokušajte ponovno ili potražite dodatne informacije u odjeljku Status Twittera.