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Day 7: It's
#MarfanAwarenessMonth. Marfan Syndrome is a#raredisease that affects 1:5000 and 1/2 unaware & at risk. Help us raise awareness. 600 people in Ireland at risk. Please like & Share to save a life.#MarfanVictoryChallenge#KnowFightWin#MarfanSyndrome pic.twitter.com/JqWJpVLA13
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@F101Genomes will create a secure bio-informatic database open to scientists. It’s the tool researchers need to better understand rare diseases, develop precision diagnostic tools and find better treatments to fight#marfansyndrome#marfanVictoryChallenge#RareDiseaseDay -
About 1 in 5,000 people currently live with Marfan Syndrome https://www.local10.com/video/video/2020/02/06/about-1-in-5000-people-currently-live-with-marfan-syndrome/ …
#marfansyndrome#haleylangford -
Day 6: Aortic Anuerysms and other undiagnosed heart problems can be fatal. About half of 1200 people suspected with Marfan Syndrome don't know they have the condition. 600 people in Ireland at risk. Please RT & Like to help save a life.
#MarfanSyndrome#MarfanVictoryChallengepic.twitter.com/ryf9k5z4fF
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Launching our "Meet the
#WomenInASMB Special!" First up, our past President Prof Joanne Murphy-Ullric@tspcrt AND current President Prof Lynn Sakai - experts in TSP1-#TGFb#fibrosis, and#fibrillin#MarfanSyndrome respectively!#Rolemodels#WomenInScience#WomenInECM#WomenInSTEMpic.twitter.com/t2MeAq7MZJ
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#MarfanSyndrome still often undiagnosed
. But once diagnosed
, can usually be managed quite successfully.
https://twitter.com/marfanireland/status/1224670072167444482 …
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Free download for those seeking or suspecting a diagnosis & help make sense of
#Marfansyndrome signs. Already have a Dx? Share this! You just might hand it to someone who needs this potentially life-saving information right now.#MarfanAwarenessMonth http://bit.ly/37YHXlC pic.twitter.com/EasWXN39So
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Posted this on my Instagram but thought it would be helpful on here as well for awareness month.
#marfansyndrome#awarenesssavespic.twitter.com/OoTS9Mznli
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February is #MarfanSyndrome#awareness month!
So what better time to share again this great #PoK#video by@judbacke (#HTAD WG Chair)
#Marfan Syndrome -#Diagnosis https://youtu.be/w-rJbF4nnbQ via@YouTube#MarfanVictoryChallenge#ERNeu#RareDiseases@JondeauG@robert_leema -
If you Ever wonder how
@SeeFisch got to be the country's leading USMLE/COMLEX lecturer.. well here you go:)#medtwitter#medstudenttwitter#MarfanSyndrome pic.twitter.com/0OM1YKWZAu -
It is February. And February is always a month to help create awareness for
#MarfanSyndrome#MarfanVictoryChallenge#AorticDisease@vEDSCollabo@vascern@Vascupedia_com@VASCevidence@UWVascsurg@ShereneShalhub@keaglemd@JohnRitterPrgm@ThinkAortaUS@AortaSurg@AorticDisorderspic.twitter.com/I8JHIaahEe
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So Marfan Syndrome Awareness Month is here again. I usually have a Blog ready to share but I'm sooo behind this year! Marfan syndrome is still relatively unknown & we need to change this! That's why I blog about it.
#MarfanSyndrome#AwarenessMonth2020
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So important to spread the word. Marfan Syndrome has had a huge impact on my family.
#MarfanSyndrome#genetics@rarediseaseuk@GeneticDisUK@JeansforGenes@MarfanTrust@MarfanFdnpic.twitter.com/xxLGf316Rk
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It’s officially
#MarfanSyndrome awareness month! Posting all about it over on my Instagram! Just want to give a quick thank you to everyone over at@MarfanFdn for everything you guys have done, it’s amazing. I’m so glad to be a part of a community like this one.
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#MarfanSyndrome#Awareness. Living with 3 family members who have Marfans. Spread the word awareness is key!https://twitter.com/MarfanIreland/status/1223563745093390344 …
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It's February and it’s Marfan Awareness Month again. Like last year, we will post a fact a day, aka a Marfact, everyday in February. Please like and share to help make people aware and to save
#MarfanSyndrome#MarfanVictoryChallengepic.twitter.com/VJmhP5Lh5W
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