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今回と次のスライドは参考になると思います。
#マルファン#Marfan 痛みの管理 ~マルファン患者が選択する治療法①~ - 海外マルファン情報 https://marfan-info.hatenablog.com/entry/2020/02/07/200021 … -
#マルファン#Marfan マルファンのおともだち(仮) ~フランキー~ - 海外マルファン情報 https://marfan-info.hatenablog.com/entry/2020/02/07/091904 … -
Cynthia De Boer’s nephew, Jimmy, was born with neonatal Marfan. Now, she is unveiling her tribute to him, a children’s book, Jimmy’s Magic Turtle, and working to raise awareness of
#Marfan and funds for education and awareness.#MarfanVictoryChallengehttp://bit.ly/2S4Z7IU -
何だかずっとモヤッとした話が続いているような気がします。
#マルファン#Marfan 痛みの管理 ~痛みを感じやすくなる原因~ - 海外マルファン情報 https://marfan-info.hatenablog.com/entry/2020/02/06/202539 … -
PROGRAMA INFANTIL
“Pintamos un cuento” Fundación Menudos Corazones
Visita #Faunia
Actividades con monitor@s #Sima

FIESTA DE DISFRACES
Y muchas sorpresas más
http://www.marfan.es
#SíndromedeMarfan#Sima#XXEncuentroSima#Marfan#LoeysDietz#Bealspic.twitter.com/q1phSImUcy
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#マルファン#Marfan 痛みの管理 ~マルファン症候群を対象とした研究結果~ - 海外マルファン情報 https://marfan-info.hatenablog.com/entry/2020/02/04/212048 … -
Often times those with
#Marfan syndrome are unaware they have it. Learn more about the importance of diagnosis and treatment. https://mayocl.in/2GG6FLJ pic.twitter.com/xVww2XHwin
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Approximately 200,000 people in the U.S. have
#Marfan or a related disorder; half don’t know it. Know the signs. http://bit.ly/2RKcOfU pic.twitter.com/JCfgntUQXw
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Dont have
#marfan myself, but as a nurse I once opted to the doctor that our 31-yo patient with vague heart complaints might have Marfan, which he did, so I guess my#MarfanVictoryChallenge was making sure he got the right treatment and information about his diagnose ♡ -
February is #MarfanSyndrome#awareness month!
So what better time to share again this great #PoK#video by@judbacke (#HTAD WG Chair)
#Marfan Syndrome -#Diagnosis https://youtu.be/w-rJbF4nnbQ via@YouTube#MarfanVictoryChallenge#ERNeu#RareDiseases@JondeauG@robert_leema -
February is Marfan Syndrome Awareness month! You can learn all about this rare condition on my blog: http://www.shonalouise.com/p/marfan-syndrome.html …
#Marfan#MarfanSyndrome@MarfanFdn -
There is beauty in
#Marfan syndrome. Hear Tony Award-winner Ann Reinking talk about it.#MarfanVictoryChallengehttp://bit.ly/MarfanReinking1 -
絵本第二弾 良いタイトルが思い浮かばないので(仮)にしました。
#マルファン#Marfan マルファンのおともだち(仮)(1) - 海外マルファン情報 https://marfan-info.hatenablog.com/entry/2020/02/02/192403 … -
絵本の翻訳も始めました。
#マルファン#Marfan マルファンは火星人じゃない!(2) - 海外マルファン情報 https://marfan-info.hatenablog.com/entry/2020/02/01/115929 … -
2/3 February is
#MarfanAwarenessMonth and we can't wait to get it going! Here's what you can do: Next, share your#MarfanVictoryChallenge photos. This is going to be a fun way to help our friends and families understand "the real world" of#Marfan. http://bit.ly/2RJADEI pic.twitter.com/HNoQxlfgoP
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February is Marfan Awareness Month. An estimated 1 in 5,000 people in the UK have Marfan or a related condition. About half don’t know it. Do you know the signs?
#marfansyndrome#marfan#marfansyndromeawareness… https://www.instagram.com/p/B7_aswhhuNA/?igshid=aroh6f08o2k5 …
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