Rezultati pretraživanja
  1. 今回と次のスライドは参考になると思います。 痛みの管理 ~マルファン患者が選択する治療法①~ - 海外マルファン情報

  2. マルファンのおともだち(仮) ~フランキー~ - 海外マルファン情報

  3. Cynthia De Boer’s nephew, Jimmy, was born with neonatal Marfan. Now, she is unveiling her tribute to him, a children’s book, Jimmy’s Magic Turtle, and working to raise awareness of and funds for education and awareness.

  4. 6. velj

    何だかずっとモヤッとした話が続いているような気がします。 痛みの管理 ~痛みを感じやすくなる原因~ - 海外マルファン情報

  5. 5. velj

    🎉PROGRAMA INFANTIL🎨 💠“Pintamos un cuento” Fundación Menudos Corazones💞 💠Visita 🐾 💠 Actividades con monitor@s 💗 💠🧚FIESTA DE DISFRACES🦸🏻‍♂️ Y muchas sorpresas más🎁

  6. 4. velj

    痛みの管理 ~マルファン症候群を対象とした研究結果~ - 海外マルファン情報

  7. 3. velj

    Often times those with syndrome are unaware they have it. Learn more about the importance of diagnosis and treatment.

  8. 3. velj

    Approximately 200,000 people in the U.S. have or a related disorder; half don’t know it. Know the signs.

  9. 3. velj

    Dont have myself, but as a nurse I once opted to the doctor that our 31-yo patient with vague heart complaints might have Marfan, which he did, so I guess my was making sure he got the right treatment and information about his diagnose ♡

  10. 3. velj
  11. 3. velj

    February is Marfan Syndrome Awareness month! You can learn all about this rare condition on my blog:

  12. 2. velj

    There is beauty in syndrome. Hear Tony Award-winner Ann Reinking talk about it.

  13. 2. velj

    絵本第二弾 良いタイトルが思い浮かばないので(仮)にしました。 マルファンのおともだち(仮)(1) - 海外マルファン情報

  14. 1. velj

    絵本の翻訳も始めました。 マルファンは火星人じゃない!(2) - 海外マルファン情報

  15. 31. sij

    2/3 February is and we can't wait to get it going! Here's what you can do: Next, share your photos. This is going to be a fun way to help our friends and families understand "the real world" of .

  16. February is Marfan Awareness Month. An estimated 1 in 5,000 people in the UK have Marfan or a related condition. About half don’t know it. Do you know the signs?

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