Rezultati pretraživanja
  1. 28. sij

    J R R Tolkien's great grandson, Mike, was 39 when he lost his life to motor neuron disease five years ago today. is NOT rare! The reason so few are living with it is because so many are dying! PLEASE retweet to help raise awareness of this callous killer! !

  2. 29. sij

    first day with his new wheels 🧡💕

  3. FYI, 💙 's Award and his reasons for writing a direct letter to Rafael Nadal. "Life is a little more worth it thanks to the existence of our Rafael Nadal..." ; SO MANY names, THE SAME cruel global killer without a cure!

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  4. prije 8 sati

    Join Andre Greipel on on 8th Feb to raise money for

  5. prije 9 sati

    More clubs than Tiger Woods during his 430 game professional career. Retirement in 2004 saw him become a teacher. In March 2017 he was diagnosed with We are absolutely delighted to have Lenny Johnrose as a VIP member of our Great Manchester Run team.

  6. prije 12 sati
  7. prije 18 sati
    Odgovor korisniku/ci

    I talk about my early life quite a lot. I don't want to be defined by either.

  8. Info: Greater Manchester North (Middleton) support group, Friday 07/02, 2-4pm, venue: All in one Garden Centre Rochdale Road Middleton Manchester M24 2RB Help, advice and guidance is available from our team for anyone affected by MND so please come to see us

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  9. 3. velj

    We complain about Mondays and having to go back to work; for many that would be a blessing. Today I reflect on the life of another friend lost to . I’m frustrated by my lack of progress in finding answers that will make a difference.

  10. 2. velj
    Odgovor korisniku/ci

    investigating attitudes of patients with to remote monitoring and telemedicine

  11. 2. velj

    Running partner chickened out so went for a quick sprint on two wheels. Wanted 18mph, but headwind, ears like Dumbo & queue behind learner driver for last mile stole it!!

  12. 1. velj

    In July, my son was diagnosed with MND. It’s been a very hard time for our family. My daughter is organising a charity walk to help raise money and awareness for . All are welcome to join us on the day click the link!

  13. 1. velj

    mark is now using a ventilator due to his diaphragm and chest walls failing. It is helping him sleep and improving his appetite!

  14. 31. sij

    Thank you for your help & support. Good luck in your new adventures from all of us 🧡💙🧡

  15. 31. sij

    When this photo was taken I had no idea I'd spend almost 5 years working alongside the most amazing & staff at . As I move on to new adventures I just want to say a huge to you all for your time & support, you are incredible!

  16. 31. sij
    Odgovor korisnicima i sljedećem broju korisnika:

    Great news that MND is being discussed. What we now need from Parliament is action on law. People with & other fatal diseases need to be able to access them without jumping thru DWP hoops.ACT NOW PEOPLE R DYING with no benefits.

  17. 31. sij

    Super proud of my PhD student Fatemeh Zanganeh on submission of her PhD thesis today using gene expression profiling to deconstruct motor neuron vulnerability in in 43 degree heat! Congrats Fatemeh!

  18. 30. sij

    First ever MND Psychology Network meeting today. Great to share experience and ideas with other professionals interested in improving psychological care for people with /. Thanks so much to everyone who took part - looking forward to future discussions and collaborations!

  19. 30. sij

    Meanwhile....National Kidney Foundation gets a well earned EO for ESRD, and ALS gets....pies in the face on Hoda.

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