🦙5 Ob ich von #mecfs in meinem Studium schonmal gehört habe oder diese Erkrankung kannte? Nein. Und bis heute bin ich fassungslos, wie das sein kann. Was für eine Versorgungslücke vorhanden ist. Für mich ein großer Skandal. Aber wer nicht laut sein kann, wird nicht gehört.
New study: "At 3-6 mo. after mild/asymptomatic SARS-CoV-2 infection, virus-specific antibodies in saliva were substantially induced signifying a strong reactivation of latent viruses (EBV, HHV6 and HERV-K) ... #MECFS antibody responses were significantly stronger" #LongCovid 1/
Wie man sich selbst die mühselige jahrelange Arbeit, das Krankheitsbild aus der Psychoecke zu holen, selbst wieder zunichte macht…: warum macht ausgerechnet die
Je mehr man darüber lernt, wie Viren den Wirtsmetabolismus verändern können, desto weniger kann man eigentlich häufig postvirale Syndrome wie #MECFS von vornherein für unplausibel halten.
Gerade auch, wenn Viruspersistenz als Theorie Traktion gewinnt.
"my daughter died - the system does not work... we have a problem with the medical establishment, how at 27 you die from ME has to be answered" says Sarah Boothby whose daughter Maeve died of #MEcfs last year #MillionsMissing
PLEASE do everything you can to avoid covid and #LongCovid because it's unlikely you can even begin to comprehend the amount of gaslighting you will experience from medics.
Just ask *anyone* with #LongCovid and #MECFS and they will tell you!
😷🧪💨💉🪟
Surprisingly, a century of blatant and ethically bankrupt denial and discrimination do not yield good outcomes. Who knew?!
But #MEcfs is not getting needed attention yet. It could, but too many physicians are dedicated to make sure it never happens. It's hard to end traditions.
Myalgic encephalomyelitis was first recorded in 1934 in Los Angeles after an outbreak of atypical polio. It has taken nearly a century and #LongCovid to "get needed attention"
https://sfchronicle.com/health/article/chronic-fatigue-COVID-disease-17512173.php…@NanetteAsimov#mecfs
#MECFS and #LongCovid are not just a bit of post-illness (or in some cases #postvac) fatigue, they are your blood becoming sticky, literally suffocating every cell in your body. This causes inflammation which triggers more clotting.
#TeamClots
.
This is one of the reasons to never get COVID:
It can turn into Long-COVID and one of the most devastating illnesses that exists: #MECFS (myalgic encephalomyelitis).
Keep masking. The November 2022 variants are mostly vaccine resistant, so you'll need the bivalent booster.
Myalgic encephalomyelitis was first recorded in 1934 in Los Angeles after an outbreak of atypical polio. It has taken nearly a century and #LongCovid to "get needed attention"
https://sfchronicle.com/health/article/chronic-fatigue-COVID-disease-17512173.php…@NanetteAsimov#mecfs
I’m now also listed as a former member of my work team on their public website.
Expected, but I would be lying if I said it doesn’t hurt a bit. #MECFS#MillionsMissing
I never imagined that at the age of 35 I would be fully disabled by the exhaustion and pain of #MEcfs. I was equally stunned by the discovery that others could, and often would, simply refuse to acknowledge the reality of my suffering. #MEAwarenessHour
Must be Fall, y’all. Most of my patients with #MECFS and #LongCovid are crashed. Solidarity with everyone who’s finding it harder than normal to function.
, who gives reporters a glimpse of what life with severe #MECFS looks like behind closed doors. In doing so, Whitney raises awareness of the realities of this disease.