Rezultati pretraživanja
  1. 29. sij

    People suffering from are so ill that they are no longer able to fight on the streets for medical care, research into and recognition of their disease. But we desperately want our lives back! For this aim we do whatever we still can: Welcome to another .

    46 proslijeđenih tweetova 86 korisnika označava da im se sviđa
  2. 1. velj

    has ruined my life! How pointless spending 8 years training and 15 years teaching. I had to leave my job. Sell our house. Get rid of my car. Use all of my savings to live. And no one is listening ! Where do we go from rock bottom?

    9 replies 51 proslijeđeni tweet 179 korisnika označava da im se sviđa
  3. 3. velj

    "Left Out" - an ME/CFS Movie of Commitment, Hope and Despair Pal Schaathun evocatively portrays the hopes and dreams of an ME/CFS community in dramatic fashion as two oncologist mount the largest drug trial ever in .

    27 proslijeđenih tweetova 89 korisnika označava da im se sviđa
  4. prije 17 minuta

    . Please help patients help Dr. Prusty figure out what is in our serum.

    Any wealthy entrepreneurs out there want to fill their bank of positive karma and humility? There have already been some amazing donations already. So many of us are watching on with hope. Thank you all. GOfundMECFS Support Scientific Research on ME/CFS
    1 proslijeđeni tweet 2 korisnika označavaju da im se sviđa
  5. prije 34 minute
    Odgovor korisniku/ci

    PACE trial

  6. prije 2 sata

    Was ist ? 🔽🔽🔽🔽🔽🔽🔽

    1 korisnik označava da mu se sviđa
  7. prije 6 sati
    Odgovor korisniku/ci

    Yesterday my GP asked how long I'd had . I said almost 10 yrs. She said she'd talked with someone who recovered after 8 yrs (intimating that it was time I got better). I cited the 5% recovery fig from the 2005 paper & gave her a LaTrobe mito paper. Seemed to do the trick!

    1 proslijeđeni tweet 4 korisnika označavaju da im se sviđa
  8. prije 6 sati

    1/ Thread Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Is it really that bad? Trigger warnings: The studies below paint a very bleak picture

    12 replies 81 proslijeđeni tweet 141 korisnik označava da mu se sviđa
    Prikaži ovu nit
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  9. prije 15 sati
    Odgovor korisniku/ci

    patients still waiting for the "evidence based" doctors to read the 15,000 papers showing this is a biological illness. Exercise intolerance & immune abnormalities found in 1989 & ignored. Exercise recommended that harmed patients. Bonne chance.

  10. prije 21 sat
    Odgovor korisniku/ci

    I have . Viral outbreaks 1984. No biomarker. No treatment. Mode of transmission unknown. Bloodban but no PSA's. It's 36 years later and the silence and inaction is ongoing. 48 cents per patient from . and are clueless.

    1 korisnik označava da mu se sviđa
  11. prije 21 sat

    Tomorrow will meet for their worldwide online protest for awareness of the debilitating disease here on twitter. Join the movement!

    2 proslijeđena tweeta 11 korisnika označava da im se sviđa
  12. prije 22 sata

    Dear Doctors...

    4 korisnika označavaju da im se sviđa
  13. 4. velj

    Hi fellow and anyone who wants to support us: you can now support the research at Prusty Lab, University of Würzburg!

    9 proslijeđenih tweetova 26 korisnika označava da im se sviđa
  14. 4. velj

    Hello , would you like to help us raising funds for research by Prusty Lab at through spreading the news about our campaign?

    #GOfundMECFS. Logo and quote by Dr. Prusty: "There is clearly something in the ME/CFS patient's serum."
    »We could have our first transferable factor in blood« Big news from Prusty Lab at University of Würzburg! But they need financial resources to continue their great work. Now we all can help them out together! Retweets appreciated!
    Prikaži ovu nit
    8 proslijeđenih tweetova 24 korisnika označavaju da im se sviđa
  15. 4. velj

    To everybody interested in : Stay tuned, we have a big announcement to make in exactly 90 minutes from now. 📢

    5 proslijeđenih tweetova 19 korisnika označava da im se sviđa
  16. 3. velj

    I am an educated biochemist from one of the best universities but I can't help in the fight against ME/CFS. Just laying in the dark. I want to help, give my skills to research teams to end this devastating illness. :(

    18 proslijeđenih tweetova 91 korisnik označava da mu se sviđa
  17. 3. velj

    is trending... All in your head You don't look sick Come on, try harder I get tired too Have you tried yoga? Sleeping all day? Lovely!

    16 replies 133 proslijeđena tweeta 333 korisnika označavaju da im se sviđa
  18. 3. velj

    Cell-Based Blood Biomarkers for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. The authors say that a combination of three tests yields a biomarker with close to 100% sensitivity and specificity.

    67 proslijeđenih tweetova 172 korisnika označavaju da im se sviđa
    Prikaži ovu nit
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  19. 1. velj

    Dear , we are looking for someone with a blog about M.E. / Chronic Illness that would be prepared to blog about . We would love to hear from you if you feel you can help.

    15 replies 50 proslijeđenih tweetova 78 korisnika označava da im se sviđa
  20. 31. sij
    Odgovor korisniku/ci

    . what can you tell us about the brains in people w/ ? YOU are preventing research progress by persistently underfunding biomed research on . $12 million in FY 2019 with no set-aside funds? Millions suffer in this living death because of YOUR apathy.

    1 reply 9 proslijeđenih tweetova 21 korisnik označava da mu se sviđa

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