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Wie man sich selbst die mühselige jahrelange Arbeit, das Krankheitsbild aus der Psychoecke zu holen, selbst wieder zunichte macht…: warum macht ausgerechnet die bei so einer überflüssigen Gegenüberstellung überhaupt noch mit? - DAS ist keine Diskussion wert!#MECFS
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New study: "At 3-6 mo. after mild/asymptomatic SARS-CoV-2 infection, virus-specific antibodies in saliva were substantially induced signifying a strong reactivation of latent viruses (EBV, HHV6 and HERV-K) ... #MECFS antibody responses were significantly stronger" #LongCovid 1/
FIGURE A: Comparison within each cohort (healthy donors vs ME/CFS) based on IgG, IgM, and IgA antibody response. Shows COVID-19 triggered reactivation of EBV, HHV6 and HERV-K both in ME/CFS and healthy donors, with more pronounced response in ME/CFS.
Only antibody responses with statistically significant differences are displayed on charts.
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Y'all I'm pissed right now. 😡 Post covid pediatric clinic has no opening until February, I took my 7 year old son to a pediatric cardiologist. Tell me WHY Dr said she doesn't think he has #POTS, but thinks whatever the issue is, would be fixed by GRADED EXERCISE THERAPY! #MECFS
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Woman who had #MECFS for 14 years is in longterm remission (5+ years) thanks to the chemotherapy she needed for breast cancer.
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🦙5 Ob ich von #mecfs in meinem Studium schonmal gehört habe oder diese Erkrankung kannte? Nein. Und bis heute bin ich fassungslos, wie das sein kann. Was für eine Versorgungslücke vorhanden ist. Für mich ein großer Skandal. Aber wer nicht laut sein kann, wird nicht gehört.
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I'm having a very hard time right now, but this is hope worth letting myself give in to. I burst into tears in fact. Thank you Whitney #mecfs
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ME/CFS featured on the front page of @sfchronicle! Many thanks to the brave #pwme @DafoeWhitney, who gives reporters a glimpse of what life with severe #MECFS looks like behind closed doors. In doing so, Whitney raises awareness of the realities of this disease.
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I never imagined that at the age of 35 I would be fully disabled by the exhaustion and pain of #MEcfs. I was equally stunned by the discovery that others could, and often would, simply refuse to acknowledge the reality of my suffering. #MEAwarenessHour
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There is an urban myth that patients with #MECFS benefit from secondary gains. Did you ever consider the negative side: isolation, lost social contacts, ruined career, ruined economy, severe symptoms around the clock—and deprecatory remarks about secondary gains! #MEAwarenessHour
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"my daughter died - the system does not work... we have a problem with the medical establishment, how at 27 you die from ME has to be answered" says Sarah Boothby whose daughter Maeve died of #MEcfs last year #MillionsMissing
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I wish I could show up to just one moment of my life as my whole and healthy self. And not as this shell of a man that always appears in my stead. #MECFS
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Wow, 18,000 registered participants. 13,500 completed the questionnaire = a huge dataset on ME. Not everyone will be invited to provide a DNA sample so we need your help to #DecodeME. Help us now to recruit to the world’s largest study for people with #MECFS
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