#LongCovid

Hi my name is Charlie and #LongCovid has destroyed my life. Today is two years.  Before my 'mild infection' I was a healthy fit 30 year old biking 10 miles a day. Now I can't work or leave the house. I still can't breathe right. It‘s a nightmare. Here are my 4 questions:

I keep hearing from patients with #LongCOVID that they were told their symptoms are just stress. Guess what’s not stress: Heart rate 30. Heart rate 150 when standing. Loud buzzing in your ears. Forgetting words you knew. Burning skin on half of your body. & 200 more symptoms.

Too many people with #LongCovid feel alone, unsupported & confused about their condition & YET our leaders are fully aware of its effects. Some are even hiding their OWN issues, because shining light on this would acknowledge a mass disabling event & demand it would dollars.

Whenever I talk about having #LongCovid, I get a lot of ppl asking me whether I've been vaccinated. This is very frustrating. Many longhaulers - myself included - fell ill before the vaccine was widely available. In addition, 10-14% of breakthrough infections result in Long Covid

The whole “vaccines reduce #LongCovid so we’re good” rhetoric is blowing my mind. It’s reducing it from 20-30% to 10%. So we’re saying “instead of having 3 plane crashes a day we’re now down to one plane crash a day - so everybody should just shut up & get on plane”

The fact that a PHYSICIAN is asking this? This tweet gives the impression that there is no way she’s been researching, treating or interacting with #LongCOVID patients who have been vaccinated before infection. If she knew and cared about their stories she wouldn’t question this. https://twitter.com/drleanawen/status/1506438947366449156 …

How does being vaccinated impact the risk of #LongCovid? A thread on 8 studies (I'll add to it as I find more): 1/

#LongCovid is not only revolutionizing the way we understand viral infections and their long term effects. It also brings justice and validation to the millions who were gaslit, ridiculed, shunned and ignored for decades. It's time to rewrite history!

My 2-year #LongCovid anniversary present? A reinfection.

BREAKING March 23: 20-30000 cases a day in Ontario and rising. Think of this and #LongCovid brain damage et al when you think of your safety #CovidIsNotOver

You think you have a dozen super important things going on in your life, but then illness comes along and reminds you that most of them dont matter at all if you’re not healthy #MEcfs #LongCovid

2. Why still no robust health warning?  Whether #LongCovid prevalence is 5% or 50% (meta-analysis has 20-30%, 10% if vax), most conservative estimate is 1/20 people! A "medically rare event" is 1/1000. If you work in govt, media, or medicine, your silence is immoral & cowardly.

Taxi driver yesterday as we lugged wheelchair into the boot we explained what it’s for; ‘What’s #LongCovid?’ If the public doesn’t even know what it is, how can they be aware of the risk and make decisions to protect themselves?

If things don’t change. I’d say your chances of getting #LongCovid are pretty good. Enjoy “Freedom” Sincerely, - A guy who’s lost all his freedom.

Genuinely flabbergasted at how so many people are failing to grasp that we are living through the largest mass disabling event in modern history & it seems like very few policy makers are taking note or preparing for the inevitable collapse of an entire workforce. #LongCovid