-
Osobe Vidi sve
@LDSFoundation Bringing greater awareness to Loeys-Dietz syndrome (LDS) by encouraging education, fostering research and providing support for those impacted by LDS.
Canada & United States • loeysdietz.org
-
Good luck! Best wishes! I tried to update professors re daughter’s
#LoeysDietzSyndrome: 2 heart surgeries & 9 spinal surgeries since spring 2014 Not every prof was sympathetic. Phd is now Master’s #2. I should have advocated more for myself. Don’t give up! https://twitter.com/AcademicChatter/status/1124724380121075719 … -
Hal Dietz, one of my hero’s! Most definitely a champion of hope!
#loeysdietzsyndrome#marfansyndromehttps://twitter.com/GlobalGenes/status/1023328526525755393 …
-
@BradPaisley My#today moment: my daughter seeing my husband again post a 2nd open heart, a craniectomy, & 30 days apart#loeysdietzsyndrome pic.twitter.com/fIMBFPnfxF
-
@LDSFoundation <- My adult son has this disease and need support and prayers.. anyone know about any new treatment?#loeysdietzsyndrome pic.twitter.com/HAdxV6OqmH
-
HAD2019 has begun! Dr. Dianna Milewicz kicks of the conference with 20 years of evolution about Heritable aortic disorders.
@aorticdisorders#HAD2019#marfan#loeysdietzsyndrome#ACTA2#vEDSpic.twitter.com/G4uOuXzJdX
-
Thank you, @erin_raye_, for following me! We both have the same rare#connectivetissuedisorder,#LoeysDietzSyndrome. She had surgery by the same vascular surgeon, Dr. Joseph Bavaria, who'll be doing my#aorticvalvesparingsurgery, if my aortic root valve dilates at all.
pic.twitter.com/OWGpsSEIh9
-
SPS 2nd graders, Connor and Tino, walked this morning in honor of
#loeysdietzsyndrome awareness month. The event was hosted by Connor and his family! 100% of the proceeds went to support The Loeys-Dietz Syndrome… https://www.instagram.com/p/Byf50Aih5VQ/?igshid=36aabvudfo2y … -
Heads up, Vancouver! New dates: Nov 17 (today) and Nov 19
@CanadaPlace will be lit red recognizing awareness of Genetic Aortic Disorders! If you see the sails, please share#SailsofLight#aorticdisorders#geneticaortadisorders#Marfan#awareness#Loeysdietzsyndrome#ACTA2pic.twitter.com/nCTHZdIdA3
-
4 children, 1 with
#LoeysDietzSyndrome@LDSFoundation Daughter w 2 heart surgeries 9 spinal surgeries since 2014.#singleparent Stopped & started#phd & completed Masters #2 in 2019. Starting#AdminCert &#EdD 2019-20.#Resolute.#parenting is my#bestjobever#noexcuseshttps://twitter.com/AcademicChatter/status/1147854248018948097 …Prikaži ovu nit -
Look
@OuzounianMD@mitrablue our little warrior is#loeysdietzsyndrome poster childPrikaži ovu nit -
I have
#loeysdietzsyndrome a rare connective tissue disorder. Proper monitoring and care is vital.#CareAboutRare#WRDD2017https://twitter.com/globalgenes/status/839923176771477504 …
-
Yeah man, my brother is diagnosed with
#LoeysDietzSyndrome His aorta had to be replaced as it was dialated, an artificial valve was inserted to help regulate blood flow. He has to take blood thinners for the rest of his life, he's now 26 and thriving. I'm glad you're here bro. -
My chronic illnesses look like this at times yet are seemingly invisible for the most part. I’m wanting to post more to raise awareness. My dad died 2 years ago and that’s the ONLY reason I know what’s wrong with me.
#loeysdietzsyndrome#chronicillness#invisibleillnesspic.twitter.com/7gla1hJmdG
-
September is Aortic Aneurism and Dissection Awareness month. Get educated and save a life. John Ritter died of an aortic dissection.
#aorticdissectionawareness#loeysdietzsyndrome@TheRochaSays@markellislive@HamillHimself@KristianHarloff -
Ocular findings in
#LoeysDietzSyndrome@BMJ_Ophth |#ECMhttp://bit.ly/2vIC4XR -
When you get dental surgery you get a popsicle afterwards.
#mypoorbaby#loeysdietzsyndrome#connectivetissuedisorders#badteeth#prayerspleasepic.twitter.com/ZSKrqY0tgk
-
Debbie had 3 major heart ops on the
#NHS. Don't they make a lovely couple. Marrying my gorgeous boy Sean.#LoeysDietzSyndrome https://twitter.com/DebraClaridge/status/909070355255513094 …
-
If you haven’t followed them yet, check out the amazing brand
@defytheland ! Their latest video features our
CELIA
talking about living with #LoeysDietzSyndrome & embracing your differences w confidence!#TeamZebedee#FashionRep4All#MediaRep4Allpic.twitter.com/SAohWMLnhV
Čini se da učitavanje traje već neko vrijeme.
Twitter je možda preopterećen ili ima kratkotrajnih poteškoća u radu. Pokušajte ponovno ili potražite dodatne informacije u odjeljku Status Twittera.
