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And Loeys-Dietz Syndrome! Has an even higher risk of aortic dissection. Please don't forget us too.
#loeysdietz -
PROGRAMA INFANTIL
“Pintamos un cuento” Fundación Menudos Corazones
Visita #Faunia
Actividades con monitor@s #Sima

FIESTA DE DISFRACES
Y muchas sorpresas más
http://www.marfan.es
#SíndromedeMarfan#Sima#XXEncuentroSima#Marfan#LoeysDietz#Bealspic.twitter.com/q1phSImUcy
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PROGRAMA JUVENIL
“Arte urbano de las emociones” Fundación Menudos Corazones @MenudosMenudos
“Mi experiencia” Actor #JavierBotet@jbotet
Visita a #Faunia
Cierre de inscripciones
10/02/2020
#SíndromedeMarfan#Sima#XXEncuentroSima#Marfan#LoeysDietz#Bealspic.twitter.com/V0fZVxJjRY
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.Y muchas sorpresas más!!
Te esperamos en nuestro #XXEncuentroSima#SíndromedeMarfan#Sima#Marfan#LoeysDietz#BealsPrikaži ovu nit -
"My name is Keegan from Lucasville Ohio and my victory is I have a strong support system from family and friends."
#MarfanVictoryChallenge Share your victory & spread awareness in Feb for#MarfanAwarenessMonth. http://bit.ly/2RQ8Wce#Marfansyndrome#LoeysDietz#VEDSpic.twitter.com/RH29LNWTeD
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¿Hotel
#XXEncuentroSima? TREN
Desde Atocha coge LINEA C4 (VÍA 7) trayecto 26 min aprx. En PARLA tranvía 1° Parada (La Ballena)
AVIÓN
coge C1 o C4 hasta Atocha, trayecto 30 min aprox.
secretaria@marfan.es
#SíndromedeMarfan#Sima#Marfan#Madrid#LoeysDietz#Bealspic.twitter.com/95BLcDIh2Z
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Before leaving the congress, don't forget to get a look at our #20479 poster!
#TGFB3#LoeysDietz#Aorticdisease#cardiovasculargenetics#assisesgenetiquepic.twitter.com/bmPItlbvHD
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#Sima se suma#FEBRERORARO2020 necesitamos una foto
con tu pulgar arriba
Nos ayudas a #Visibilizar las#EnfermedadesRaras
#SíndromedeMarfan 3 de cada 10.000 habitantes (unas 6.000 personas en#España)muchos sin diagnosticar,#difusión#VOZ#Sima#Marfan#LoeysDietz#Bealspic.twitter.com/LlgvAXnipv
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"When I walk away from my chair, bystanders sometimes act like they’ve either witnessed a miracle or caught me in a lie...Each of these troubling incidents is worth the moments with my son that my chair facilitates." https://nyti.ms/2EBPbPf
#EDS#VEDS#Marfansyndrome#LoeysDietzPrikaži ovu nit -
#Research News: Case-matched Comparison of#Cardiovascular#Outcome in#LoeysDietz syndrome vs#MarfanSyndrome, co-authored by members of#HTAD WG, including Chair@judbacke Read here: https://vascern.eu/research-news-new-publication-examines-cardiovascular-outcome-in-loeys-dietz-syndrome-versus-marfan-syndrome/ …#ERNeu#MFS#Marfan@marfanbe@marfan_den_i@assomarfans@F101Genomespic.twitter.com/QbkL3IPKCm
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Our Team VEDS at the
@MarfanFdn Walk for Victory in Orlando today!#MyWalkSavesLives#Marfansyndrome#Marfan#VEDS#vascularehlersdanlos#loeysdietz#LDS#rare#aorticdisease#aorticdissection#WalkforVICTORYpic.twitter.com/gcz3tW1kzY
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Gracias
#SíndromedeMarfan#Sima#CardiopatíasCongénitas#Marfan#LoeysDietz#Corazón#Bealshttp://www.cardiopatiascongenitaslapaz.com/desde-el-plpito/2019/11/1/el-servicio-de-ciruga-cardiaca-infantil-del-hospital-la-paz-se-convierte-en-el-primer-servicio-en-espaa-en-realizar-la-tcnica-de-ozaki-de-reparacin-valvular-artica … -
Feliz Halloween
Todo lo bueno empieza con algo de miedo
#Gracias
guapísimas
#SíndromedeMarfan especialistas
Cardiólogo.
Traumatólogo.
Oftalmólogo.
Sindromología.
Neumólogo...entre otros...
#Sima#Marfan#LoeysDietz#Beals#halloween2019pic.twitter.com/uvUqz1IrDU
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We had a fantastic
#WalkforVictory in Indiana on the 13th! What a beautiful fall day, filled with friends, supporters, and new connections. Thank you, Indiana!#MyWalkSavesLives#marfansyndrome#marfan#loeysdietz#vEDS#connectivetissue#aorta#rare#rareconditionpic.twitter.com/qb1EC64sBd -
Calling all
#storytellers, analysts, and thinkers! Members of the Volunteers for Victory#Writing Group cover topics for our blog, Connective Issues, and other communications platforms. Interested? http://bit.ly/2nYTQGz#marfansyndrome#marfan#loeysdietz#veds#volunteerpic.twitter.com/0fmBz907BS -
Today is
#WorldHeartDay. Don’t forget about#genetic causes of#heart disease.#MFS#knowFH#cardiomyopathy#arrhythmia#LoeysDietz#vEDS#FTAAD#genetics#genomics#cardiogenetics -
9月19日は世界大動脈デー(Aortic Disease Awareness Day)です。身近な方と、大動脈解離などの話しをしてみましょう。⇒https://www.marfan.jp/2019/09/12/2382/ …
#大動脈解離#マルファン#ロイスディーツ#エーラスダンロス#vEDS#Todayisagoodday#marfan#LoeysDietz#aorticdiseaseawarenessday -
These guys are great, in re all things hypermobile... give them a follow if haven't...
#HSD#EDS#hEDS#Marfan#LDS#LoeysDietz#Stickler#OI#OsteogenesisImperfecta (more)https://twitter.com/HMSACharity/status/1150330513447673856 …
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