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My son is 150 days seizure free today!!!
#lennoxgastaut#epilepsy -
Wade and I would like to remind you its
#PurpleDay. Take a moment to learn more about the many forms it takes!#LennoxGastaut pic.twitter.com/p03xS5ZizS
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Has your child taken cannabis for treatment of epilepsy? If so, we want to hear from you!
#Dravet#Lennoxgastaut#epilepsy#cannabis#cannabidiolpic.twitter.com/As6crgENLW
Prikaži ovu nit -
#FDA approves prescription#cannabidiol to treat#seizures in#LennoxGastaut syndrome and#Dravet syndrome.https://www.nbcnews.com/health/health-news/fda-approves-cannabis-based-drug-epilepsy-n886386 … -
Boy breaks silence saying the words ‘Hello Mum’ http://www.redbankhouse.com/james-walker-breaks-the-silence-saying-the-words-hello-mum/ … via
@redbankhouse#LennoxGastaut#epilepsypic.twitter.com/Ov0mmfV49l
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#LennoxGastaut syndrome is a type of epilepsy with multiple kinds of seizures, including tonic (stiffening) and atonic (loss of muscle tone), as well as others. Drop seizures occur in at least 50% of patients. Learn how we're working to innovate treatment.#AES2018 Booth 401pic.twitter.com/NEjf861dLo
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Love this blogpost for
@LGS_Foundation by the mother of someone with#LennoxGastaut Syndrome: "Our children have taught us how to be vulnerable and how to champion for them." https://www.lgsfoundation.org/single-post/2019/05/23/I-JUST-DO … -
The Unfulfilled Promise of
#DNA
Testing https://buff.ly/2JOIJZa
#Genetics
testing results sent a mother searching for answers to help her young daughter
#PCDH19#SCN8A#LennoxGastaut#LGS#Epilepsypic.twitter.com/4qTxT4HRWl
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I don't know if lucky is the right word, but Judson was 'lucky' enough to have one of the two diagnoses that Texas allowed prescription CBD. He's now two months plus on no other meds beside CBD and the gains are incredible.
#Epilepsy#LennoxGastaut#SeizureFree#AlwaysForwardpic.twitter.com/V19H16jmI9 – mjesto: Yanaguana Garden
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This kid was able to communicate with his mum after 16 years thanks to an eye-tracking device :-) http://www.bbc.com/news/disability-35705489 …
#LennoxGastaut -
What an honor to be the moderator for the
@neurology_live on perspectives in#lennoxgastaut and#dravet syndromes.@LGS_Foundation and@curedravet represented well. -
Study results suggest that
#cannabidiol is safe over the long-term in patients using the treatment as an add-on therapy in the management of#LennoxGastaut syndrome https://www.neurologylive.com/conferences/cns-2019/cbd-shows-long-term-safety-add-on-therapy-lennox-gastaut-syndrome … -
#MedicalMarijuana in the treatment of#epilepsy#lennoxgastaut@JPaolicchiMD... http://fb.me/33CF4TRkt -
A young girl with a
#RareDisease died unexpectedly. She left an incredible gift to medical science which could bring a cure... https://www.sciencedirect.com/science/article/pii/S1873506119301151?via%3Dihub …#SNRTG#BigData#technology#SciComm#MedEd#epilepsy#genomics#StemCells#iPSC#LennoxGastaut pic.twitter.com/7dKHzeI90m
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Cross country aids Cedar Rapids runner's
#epilepsy battle: 'He brings out the best in all of us' http://ow.ly/6zfK30fG5Mt#LennoxGastaut#LGS -
#epilepsyawareness#LennoxGastaut the harsh reality of a son that suffers multiple seizures daily! tonic clonic every 4 minutes for past hour#rescuemeds the hard stuff given hoping won't need 2nd dose#horriblebedsidestuff
pic.twitter.com/4RstXGlJXj
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Yesterday the
#EpiCARE#Guidelines development group had a face-to-face meeting in Vienna. During a productive workshop the group discussed the protocol on#Dravet syndrome,#infantilespasms,#LennoxGastaut syndrome and#statusepilepticus.#ShareCareCurepic.twitter.com/QmfIBON5te
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Put on that swimsuit and have fun!
#epilepsysurgery is#notalastresort#infantile spasms#lennoxgastaut#intellectualdisability#findjoypic.twitter.com/00c6BVv2DT
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You can have a full life and happy family after
#infantilespasms#lennoxgastaut#epilepsy#brainsurgery#intellectualdisability#findjoypic.twitter.com/vjgb0LRy59
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Did you know one in three children with epilepsy in the U.S. suffer from recurrent seizures, despite treatment - we’re proud to be at
#AES2018 to highlight our data in#Dravet and#LennoxGastaut Syndromes. pic.twitter.com/k2kiXjv8ll
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