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We here for
@Target! In a recent swim campaign, They featured a model with#ichthyosis - an inherited skin disorder in which dead skin cells accumulate in thick dry scales on the skin's surface. . "I’m legit shaking typing this... New work featuring ME for@target swimwear.pic.twitter.com/GgnBJfAGbx
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Spanish wisdom being shared at eni meeting!
#ichthyosis@asociacionasicpic.twitter.com/RYbb0Rh2J1
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The Skin We Wear. A documenrary about 4 families living with Harlequin ichthyosis. https://www.channelnewsasia.com/news/video-on-demand/the-skin-we-wear/the-skin-we-wear-12115782 …
#harlequin#ichthyosis#genetic#dry#scaly#skin#dernatology -
Did you ever wonder what happens at FIRST's National Conference? Take a look and please join us for our signature event. You will not be disappointed! http://www.firstskinfoundation.org/providence-2020
#ichthyosis#NationalConference#FIRSTNC20pic.twitter.com/cDAnPGItfc
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7. Antara sahabat kami, Mawaddah Athilah juga merupakan
#Ichthyosis fighter. Boleh baca artikel penuh disini https://www.facebook.com/waulahhMY/photos/a.707148156329009/766481883728969?type=3&sfns=mo …pic.twitter.com/FkTh3i0VOe
Prikaži ovu nit -
How will you celebrate Rare Disease Day? http://www.firstskinfoundation.org/news/rarediseaseday …
#ichthyosis#RareDiseaseDaypic.twitter.com/Zic8hDiIgk
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Following on from my tweet about me not needing to be notified about every bit of ableism & bad reporting on
#Ichthyosis that you see, I wrote this post on FB and Insta. You can be a good ally without broadcasting it. Thanks! Read: https://www.facebook.com/110042575704765/posts/3439670579408598/ …pic.twitter.com/zHEyp5wRW6
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"What happens when children of migrants have disabilities?
@CarlyFindlay shares her thoughts on appearance activism, access and inclusion and becoming a successful author.@HarperCollinsAU@MelbWritersFest#MWF19#Ichthyosis#Disability#SayHello#DoYourThing"Prikaži ovu nit -
Normally we shed dead skin cells invisibly one at a time. But with the abnormal shedding of
#ichthyosis, clumps of dead skin cells stick together forming visible scales over most of the body. https://buff.ly/2Ju2l3F@FIRST_Skin#skindisease#skincare#skinconditionpic.twitter.com/gaJbWczIdo
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X-Linked Icthyosis on a black/white child. Icthyosis causes dry, thickened, scaly skin varying in severity from minor to debilitating or life threatening. Since they are genetic, they are not currently curable, but symptoms can be treated.
#medtwitter#dermatology#ichthyosis pic.twitter.com/OmKxeXNvZn
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Studying different types of
#ichthyosis and their genetic causes is teaching us so much about how the skin works. See some of the most important findings: https://buff.ly/2Ju2l3F@FIRST_Skin@SocietyPedsDerm#skindisease#ichthyosisvulgaris#skindiseasepic.twitter.com/3EQvm5MGkx
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YES!!!! As woman with epidermolytic ichthyosis this is an amazing sight to see!
#ichthyosis https://twitter.com/FIRST_Skin/status/1174760385938898949 …
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Carly says she wrote ‘Say Hello’ because there wasn’t a book about
#ichthyosis written by a person with ichthyosis - it’s the book that she needed to read when she was growing up#ownvoices#diversity#ritasrlag@carlyfindlay -
Still can't believe she's actually 30! How!? Think she had a great day, I know she can't wait til her party

#birthday#birthdaygirl#sister#harlequinichthyosis#harlequin#ichthyosis#funtimes#crazy#baby#thirty#thisgirlcan#amazingpic.twitter.com/ybOKyWAPSP
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Prof. Edel O' Toole will be giving a keynote talk as part of the Charles Seminar Series titled 'The Palmoplantar Keratodermas', this Friday
@12PM in the Charles Seminar Room. To livestream email charles@ucd.ie#PPK#palmoplantarkeratodermas#ichthyosis#geneticskindiseasepic.twitter.com/9evbNiku4u
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We submitted an IND for a new
#GeneTherapy candidate, KB105, for patients with the#RareDisease TGM-1 deficient autosomal recessive congenital ichthyosis (“ARCI”). Read the full release here: http://bit.ly/2WKEPYS#Ichthyosis$KRYSpic.twitter.com/NuF3ImekRf
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My memoir Say Hello is available as a paperback and ebook in AU & NZ right now, but it can be shipped internationally, & it’s available as an
#audiobook worldwide! Details http://CarlyFindlay.com.au/sayhello
#CripLit#AustralianWriters#Memoir#Ichthyosis#OwnVoices#WeNeedDiverseBooks -
I’m so excited that my memoir Say Hello is finally available as an audiobook - worldwide! I am reading it. Details https://www.facebook.com/110042575704765/posts/2765168603525469?sfns=mo … Thanks
@HarperCollinsAU@Bolindaaudio@Jacinta_DiMase#CripLit#OwnVoices#WeNeedDiverseBooks#Disability#Ichthyosis#AmWriting#AmReadingpic.twitter.com/XSMvuBd1n1
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PLEASE give support RT's likes, to the amazing
@Melmoeddy78 raising awareness 4#ichthyosisawareness#ichthyosis#IAM19 . Mel lives bravely with this awful illness but ploughs on as much as she can we a big smile@MettaFilms@stuartlittler3@MENnewsdesk@LivEchonewspic.twitter.com/P0If1AXBMC
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Los DOMINGOS mejor con MÚSICA
SOLIDARIA
@_RufusTFirefly_
y @AnaMartinezLosa comparten el escenario@MobyDickClub#Madrid en apoyo#investigacion#ichthyosis@asociacionasic#ICTIOSOUND2019
http://www.ictiosis.org/
#Fila0
http://asociacionasic.blogspot.com/2019/04/tu-fila-cero-para-el-i-concierto.html?m=1 …pic.twitter.com/d5H1zUmMIm
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