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@Debra_PollardRN (Nurse, London) asks press and medias influence in decision making to GT.#hemophilia -
The deadline for the William N. Drohan scholarship is February 20, 2020! This scholarship was formed in memory of Dr. William N. Drohan, a well-known microbiologist and educator. Visit our website to apply today! https://hemob.squarespace.com/programs-1/drohan-scholarship-fund …
#hemophilia#bleedingdisorderspic.twitter.com/6hF4ui8kMM
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Having a rare disease shouldn’t change who you are
#haemophilia#hemophilia#rareheroes https://raremark.com/articles/having-a-rare-disease-shouldn-t-change-who-you-are--1083 …pic.twitter.com/9ZcqzEPPJ0
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Our symposium “The Comprehensive
#Haemophilia Care Team and#GeneTherapy: Continuing the Patient Focus” begins today at 5:15 CET. If you’re in attendance at#EAHAD2020, join us for a discussion of best communication practices between HCPs and#hemophilia patients. pic.twitter.com/Ukc4LuUEYD
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The take home messages from one of the symposia on gene therapy in
#haemophilia at#EAHAD2020. Excellent session.#hemophilia pic.twitter.com/hZkWK7Nh6t
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Great review about the history of gene therapy by Fran Leebeck from Eramus University (Rotterdam)
#EAHAD2020#hemophilia#genetherapypic.twitter.com/NXBJyRq2d9
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Chambost is discussing8
#haemophilia A gene therapy trials and 9#hemophilia B trials. Interesting numbers of trials.#eahad2020 -
What CT ongoing in
#hemophilia GT ? pic.twitter.com/LkccPO9gYK
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Biomarin sympo in the main amphitheater at
#EAHAD2020. Past present and future of GT.#hemophilia -
Favourite session from multidisciplinary pre-congress day at
#EAHAD2020 was by Prof@Ellen_Laan on sex &#haemophilia. Fascinating insights into sexual development. Suggested to start positive dialogue around enjoyment/risks of sex with young people by aged 12.#hemophilia pic.twitter.com/D4mWeEcRUB
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Internship day 115: Most hemophiliacs are young boys..who want to take part in sports like any other kid their age..as an OTist I want to come up with leisure activities for these kids. Um..how about swimming? It's therapeutic plus it's fun!
#hemophilia#OccupationalTherapy 2/2 -
A term I heard for the first time at
#EAHAD2020 today when referred to#hemophilia is "treatment remorse". This applies to patients who opt for a treatment and then regret their decision. New treatments such as gene therapy can last for years.#haemophilia -
I learned today at
#EAHAD2020 that#haemophilia physiotherapists in the UK can do a prescribing course and at the end of it they are allowed to prescribe analgesics of all types including opiates.#hemophilia -
Others can't see it but we still feel it! Join MyHemophiliaTeam for support and understanding from others who have
#hemophilia: https://www.MyHemophiliaTeam.com/resources/hemophilia-pain-is-invisible-dot-dot-dot?utm_source=facebook&utm_medium=organicsocial&utm_content=MyHemophiliaTeam&utm_campaign=InvisiblePain …pic.twitter.com/TXpVuIGhoD
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Youngest bout to start
#hemlibra . Let me say I will no longer have to chase the tiniest rolling veins .no more double sticking cause he moved. It just sub q . Once a week no longer twice a week.

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No bell at
#EAHAD2020. The badges flash to alert delegates it is time to attend the next session.#haemophilia#hemophilia pic.twitter.com/wx5XNp7LDa
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Many people living with
#hemophilia require lifelong treatment with expensive drugs and clotting factors. Check out this article from@ASHClinicalNews with insight from@CroteauMD@DFBC_PedCare:https://bit.ly/2Ookv9O -
Today was the set up day for
#EAHAD2020. Tomorrow is the pre-congress day for nurses, physiotherapists and psychologists. The main meeting starts on Wednesday morning.#haemophilia#hemophilia pic.twitter.com/x0WJMafxsT
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First Comprehensive Hemophilia-Sickle Cell Clinic at the Moi County Referral Hospital Voi ,courtesy of Kenya Hemophilia Association in collaboration with Novo Nordisk Hemophilia Foundation and in partnership with Sickle Cell Federation of Kenya.
#sicklecelldisease#hemophilia pic.twitter.com/rUTAqR2UBv
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2019-nCoV is a large virus (120nM) and has a lipid envelope. This means that the current viral inactivation and filtration procedures will be highly effective in removing the virus during the manufacture of plasma derived clotting factor concentrates.
#hemophilia#haemophilia
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