Rezultati pretraživanja
  1. Odgovor korisniku/ci

    Come to this Friday's chat. We're talking about all this.

  2. prije 12 sati

    Just living my best life in DC this week with . I love it when / folks can get together. I miss all y'all. 💗

  3. 31. sij

    Interesting webinar topic from on 5G and Security: Does beg the question of the new security risks that 5G will bring. Will it make the security risks harder or easier to see?

  4. 31. sij
  5. 31. sij
  6. 31. sij

    Bonus: They better look for what they need for value based care. Patients need to give contemporaneous, thx politics for giving me this word, feedback on care plans. Caregivers need to be that google search replacement they claim to hate.

  7. 31. sij

    Top 3 tips for companies looking to engage with patients: 1) Ask up front what a vendor's patient readiness is, what effort is required of the patient to get connected--forms, apps or software to download and set up, etc. 2) Plan privacy/security diligently 3) Test, esp UX

  8. 31. sij
    Odgovor korisniku/ci

    We now need all privacy/data governance people to use that as their motto as well. I embraced "saying no is too easy, figuring out how to get to yes is the goal" a while back.

  9. 31. sij

    T4: Another aspect of this privacy question is "how does my digital identity get matched for authentication/authorization to data and for data resolution purposes (finding my chart)", another nut to crack...some good work on that in ONC's FAST, Carequality, HL7

  10. 31. sij

    T4: This is a huge question so to answer generally I think we will find ways to scale new PGD data sets and use cases for collaboration on them in parallel and alongside emerging data transfer modalities (both communication + exchange of PHI) other over the next few years

  11. 31. sij

    T3: I think we will see much more of this type of collaboration over time. Happen to be working with a co-lead from in an industry collab of vendors working on a new interoperable secure messaging standard--so that one secure app's messaging can talk to another.

  12. 31. sij
    Odgovor korisniku/ci

    So true! I get so frustrated trying to send my doctor a message through the portal. I give up every time and call.

  13. 31. sij

    What happens most often these days is an email or a text that has a link to a secure . Unfortunately the of most portals is less than optimal (Trying to be nice!) and the patient give up, and just calls on the phone

  14. 31. sij

    T3: Sometimes “Data” is simply gathering an understanding of the patient odyssey. Especially for rare diseases that have little research and natural history.

  15. 31. sij

    T3: I enjoy working with companies like and . They are transparent, they compensate patients for their time, and the objectives of the interactions centered around data are clearly defined.

  16. 31. sij

    We could learn a lot about messaging interaction from Whatsapp and Wechat in other countries.

  17. 31. sij

    T2: The best option, imo, are patient testimonials. PT's should talk about how they use pedometers. Diabetes patients talk about how blood sugar journals lead to better outcomes. People need real examples.

  18. 31. sij

    Couldn’t agree more. Providing options for advocates to connect to one another is important.

  19. 31. sij

    T2: When building relationships with patient communities, how can we start a conversation centered around the value of patient-generated data and what that data looks like?

  20. 31. sij
    Odgovor korisnicima

    I was interested hearing on It gave me a new perspective on patient communities

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