Rezultati pretraživanja
  1. 16. ruj 2018.

    We've reached a big milestone--100 known cases of GAND.

    4 proslijeđena tweeta 7 korisnika označava da im se sviđa
  2. 18. velj 2015.
    Odgovor korisniku/ci

    yeaaaa!!!! rare gene mutations and deletions!!!

  3. 4. stu 2018.

    My little model!

    4 korisnika označavaju da im se sviđa
  4. 4. lis 2018.

    Well done, ! You did it again! Another amazing filled with , , , , , , and - allowing us to live in the moment! Thank you!!

    1 reply 1 proslijeđeni tweet 7 korisnika označava da im se sviđa
  5. 22. sij

    Now online in : GATAD2B-associated Neurodevelopmental Disorder (GAND): Clinical and Molecular Insights Into a NuRD-related Disorder

    2 proslijeđena tweeta 4 korisnika označavaju da im se sviđa
  6. 6. stu 2019.

    So is gonna be able to cure my boys ? Anyone? in kids

    1 korisnik označava da mu se sviđa
  7. 16. ruj 2019.

    Happy GAND Awareness Day!

    3 proslijeđena tweeta 3 korisnika označavaju da im se sviđa
  8. 21. kol 2019.

    HHFG is now a proud member organization of the National Organization for Rare Disorders ()! We are excited for this opportunity to better represent GAND in the broader rare disease community and to learn from fellow patient advocacy organizations.

    1 proslijeđeni tweet 4 korisnika označavaju da im se sviđa
  9. 16. ožu 2019.

    Please read and help if you can 🙌🏻Fundraiser Link:

  10. 28. velj 2019.

    ♥️ . . . . …

    2 korisnika označavaju da im se sviđa
  11. 27. stu 2018.

    Happy ! We are seeking to raise $100 in honor of each of the 100+ people diagnosed with GAND. On this global day of giving, make an impact in the community.

    1 korisnik označava da mu se sviđa
  12. 4. lis 2018.

    Thank you for your passion and for sharing your story! I am grateful for you and your help to raise awareness about !

    I had the tremendous opportunity to share the main stage at RARE Patient Advocacy Summit with of to talk about stories with impact in the rare disease community and patient-centric leadership in healthcare! Thanks
    2 korisnika označavaju da im se sviđa
  13. 3. lis 2018.
    Odgovor korisnicima

    She's a doll. I have a rare disease, too! And I've been getting treatment for almost 30 years. Thanks for giving me an opportunity to read about .

    1 reply 1 korisnik označava da mu se sviđa
  14. 21. kol 2018.

    Learn about one GAND family and how they are raising awareness of this ultra-rare disorder!

    1 proslijeđeni tweet 3 korisnika označavaju da im se sviđa
  15. 6. tra 2017.

    :Having an Ultra-Rare disease= odessey of doctor's appointments,(mis)diagnosis,isolation

  16. 1. tra 2017.

    Mooie, leerzame dag in over achter de rug!

    1 korisnik označava da mu se sviđa
  17. 27. velj 2017.

    Vandaag de internationale dag van de zeldzame ziekten: Wereldwijd gaat het om 7.000 aandoeningen, waaronder

    2 proslijeđena tweeta 1 korisnik označava da mu se sviđa
  18. 9. pro 2016.

    Does anyone know more about the ?

    1 korisnik označava da mu se sviđa
  19. 23. ruj 2016.

    GATAD2B needs

    5 proslijeđenih tweetova 11 korisnika označava da im se sviđa
  20. 29. velj 2016.

    Official rare disease day 2016 video via

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