Rezultati pretraživanja
  1. 2. velj
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    NFXF Advocacy Day is three weeks away! There is still time to register and join us to make a difference for every family living with Fragile X. Learn more and register at .

  3. Rare chance to learn more about supporting adults who have with Dr Marcia Braden, expert in behaviours and learning in Fragile X. Book now

  4. Odgovor korisnicima

    Maybe you could use your news slots to help us raise awareness of syndrome the most common known cause of inherited learning disability yet so often goes undiagnosed - rather than trivia about what someone chooses to wear to her work.

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    Odgovor korisnicima

    We wish we were clever enough to be on it but means we could never do that..... unless did a similar thing for individuals with then we’d definitely apply 👍👍

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    Really looking forward to v Killie tomorrow. We’ve not learnt the new song but will be very excited to hear it being sung. In the meantime we will just scream and shout loudly like we normally do fans loving Tynie.

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    Odgovor korisniku/ci

    Us too, we get excited at all the matches but that’s a thing 👍 hope we win

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    Odgovor korisnicima

    As a mama of a boy I too was moved by his words.

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    request 'no longer'-fragilexband imaginos-''dark embrace' cat bleu-''don't bury me'' navigator-'hyperdrive''

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    Great news from achieving patient enrollment target for its We are proud to be partners with Zynerba and grateful for their support 🙌

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    We are grateful for all the families in the Fragile X community who are participating in this important We are proud to be partners with and excited about this promising treatment.

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    Delighted to announce Dr Anthony Hall has joined us as Chief Medical Officer (CMO) 👏🏼 The co-founder will be responsible for progressing our treatments through the clinic - starting with clinical trials. Read more:

  13. 3. velj

    An important story of a long and hard journey to accurate diagnosis of and the path to the right supports

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    Finally, after 40 years of misdiagnosis, Robyn Iredale (75), has found the answers that have allowed her brother and son to live meaningful lives.

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    “To date it’s been families and patient groups who have had to become experts in the diseases affecting their loved ones and have often been the ones driving forward the efforts in finding new treatments.”

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    We are grateful for the Fragile X community and want to thank the patients participating in our Phase 2 trial. Enrollment is now complete!

  17. 3. velj

    Six scientists from the attended a two-day educational conference in Belgrade, Serbia, to offer families information on syndrome. Until fairly recently, fragile X syndrome was hardly recognized, much less treated. Read more:

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    We thought we would start to follow as think he and the team are dead entertaining on a Saturday afternoon on although we are usually either at Tynecastle or watching the scores change on IPad 👍👍

  20. 2. velj

    Animals don't judge you or wait for you to become a better you. They love you unconditionally to the core. . . . . . . &Animals

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