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An example of our reality. And that's ok.
#eb#epidermolysisbullosa pic.twitter.com/pVU1dCO1Ue
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How much do you know about
#EpidermolysisBullosa? If you're a new follower (or old!) check out the infographic below to learn a few EB facts. If you can, help us raise awareness and tell a friend about#EB today. For more, visit http://cure-eb.org pic.twitter.com/yptGZDtBfK
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I go through this a lot with other people. Because my disability is limited to my feet, and it is not seen. They assume I'm "normal", until I take my shoes off and they see enormous blisters. Please provide adequate seating at events!
#Epidermolysisbullosa https://twitter.com/IBJIYONGI/status/1224352263134572545 … -
Auch in diesem Jahr können wir Euch wieder ein IEB-Frauenwochenende anbieten und laden dazu herzlich ein. Das Programm und die Möglichkeit zur Anmeldung - bitte bis zum 28.02.2020 - findet Ihr auf unserer Webseite unter http://www.ieb-debra.de .
#epidermolysisbullosa#eb#iebeV pic.twitter.com/hyVAbmUBKd
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The amazing
@jhamptonia prints from Eddie Vedder’s#SurfInCelebration are being packed as we speak and will be shipped next week! Thank you all so much for your support, donations, and patience.

#CauseTheWave to#HealEB#PearlJam#EBRP#EpidermolysisBullosa pic.twitter.com/7lJiWwkMby
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Evi und Angelina lösen ihr Geburtstagsgeschenk von
#RTL ein und trafen jetzt die Ehrlich Brothers Backstage bei einem Auftritt in Berlin https://www.ieb-debra.de/aktuelles-informatives-zu-epidermolysis-bullosa/#ehrlich-brothers …#RTLSpendenmarathon#epidermolysisbullosa#iebeV#ehrlichbrotherspic.twitter.com/JxYoNbgklH
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A great discussion and debate with our panel on the complexity of
#EpidermolysisBullosa!#EBWC2020pic.twitter.com/ODjLyTMe3u
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We are amazed by all the great & supportive people we have met at
@EBWorldCongress. Only together we can fight#epidermolysisbullosa.

#FightEB#CollaborationIsKey#EB2020pic.twitter.com/AOcIWZdd1j
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Many insightful and inspiring conversations here at
#EB2020. Join us at Stand 16 to learn more about how we are harnessing the promise of genetic medicine to advance our work in#EpidermolysisBullosa.#RDEB#GeneTherapypic.twitter.com/CJS9ApBfHf
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Esteban Chacón Solano, investigador del @CIEMAT_Moncloa
@CIBERER@uc3m@Hospital_FJD, ha ganado un premio en el congreso#EB2020 por su trabajo en#epidermolysisbullosa.@BioInn_CIEMAT#EB#EBWorldCongresspic.twitter.com/cy9OO4YUUI
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Great to be catching up with international colleagues at the first world congress for
#EpidermolysisBullosa#EB2020#EBWC2020@ebworldcongress#fightEBpic.twitter.com/mwlDXwUBb8
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InMed's EB2020 World Congress posters can be found on our website.
#EBWorldCongress#epidermolysisbullosa#EBhttp://ow.ly/hc9h50y000B -
Our team is in London for
#EB2020#EBWorldCongress! This is an exciting time for our organization & the#epidermolysisbullosa community. As one organization we've strengthened our commitment to individuals living with various types of EB. We’re excited to share more this weekend! -
Great to see the EBDASI activity and damage scores & inflammatory biomarkers significantly reducing with intravenous allogeneic Mesenchymal Stem Cells for RDEB by the Spanish research group of Marcela del Rio at
#EB2020#debRA#epidermolysisbullosa#EBDASI#research -
We are excited to be among the
#EpidermolysisBullosa leaders descending upon London next week for#EB2020! The Abeona team will be represented @ Stand 16 – stop by, say hi, & learn more about our pivotal VIITALᵀᴹ study evaluating our#GeneTherapy for#RDEB.#EBWorldCongresspic.twitter.com/kCcPcg4no1
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DEBRA Ambassador
@myraaliedit has been featured in@marieclaireuk! Click the link below to find out about#EpidermolysisBullosa and how she stepped into the world of journalism. “I won’t let it stop me fulfilling my dreams.” Read now: https://www.marieclaire.co.uk/life/butterfly-skin-678172/amp?__twitter_impression=true …https://twitter.com/myraaliedit/status/1217435512463642631 … -
My cousin Tom Ridley has written some words about living with the condition
#EpidermolysisBullosa If you could take a read and maybe share to raise awareness of this condition we’d be most grateful!@CharityDEBRAhttps://twitter.com/TomRidley_/status/1212411710251900929 … -
“I had to learn...to be grateful and positive in order to move on and progress with my life”
@myraaliedit was born with a rare skin condition called#epidermolysisbullosa, causing the skin to become very fragile She talks positivity and confidence with@Mobeen_Azhar
pic.twitter.com/6i8bMlYo6R -
جاتني اسئلة كثير عن المرض فحبيت احكي بشكل مختصر عنه ، وعن احتياجاتنا وبعض الصعوبات اللي بنواجهها .. و اتمنى زيادة الوعي بهذا المرض من الجميع
#انحلال_الجلد_الفقاعي#EpidermolysisBullosa pic.twitter.com/yjHBqopaXC -
They gave him a jersey, and a chance
@WTCAthletics Watch#OnAPositiveNote weeknights at 6 p.m. on News 12+ for more inspiring stories!#news12#oapn#news12plus#epidermolysisbullosa#surprise#christmas#happy#thursdaythoughts#sports#ballislife#clarkeramspic.twitter.com/jx0nhEPnomThey gave him a jersey, and a chance 🏀 @WTCAthleticsThe basketball team at W. Tresper Clarke High School on Long Island surprised their usual game announcer with a jersey and a chance! His skin condition keeps him from pursuing his dream of playing.
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