Rezultati pretraživanja
  1. An example of our reality. And that's ok.

  2. prije 16 sati

    How much do you know about ? If you're a new follower (or old!) check out the infographic below to learn a few EB facts. If you can, help us raise awareness and tell a friend about today. For more, visit

  3. 3. velj

    I go through this a lot with other people. Because my disability is limited to my feet, and it is not seen. They assume I'm "normal", until I take my shoes off and they see enormous blisters. Please provide adequate seating at events!

  4. 2. velj

    Auch in diesem Jahr können wir Euch wieder ein IEB-Frauenwochenende anbieten und laden dazu herzlich ein. Das Programm und die Möglichkeit zur Anmeldung - bitte bis zum 28.02.2020 - findet Ihr auf unserer Webseite unter .

  5. The amazing prints from Eddie Vedder’s are being packed as we speak and will be shipped next week! Thank you all so much for your support, donations, and patience. ❤️🦋🙏 to

  6. 29. sij

    Evi und Angelina lösen ihr Geburtstagsgeschenk von ein und trafen jetzt die Ehrlich Brothers Backstage bei einem Auftritt in Berlin

  7. 23. sij

    A great discussion and debate with our panel on the complexity of !

  8. 23. sij

    We are amazed by all the great & supportive people we have met at . Only together we can fight . 🦋🦋🦋

  9. 21. sij

    Many insightful and inspiring conversations here at . Join us at Stand 16 to learn more about how we are harnessing the promise of genetic medicine to advance our work in .

  10. Esteban Chacón Solano, investigador del @CIEMAT_Moncloa , ha ganado un premio en el congreso por su trabajo en .

  11. 20. sij

    Great to be catching up with international colleagues at the first world congress for

  12. 20. sij

    InMed's EB2020 World Congress posters can be found on our website.

  13. 20. sij

    Our team is in London for ! This is an exciting time for our organization & the community. As one organization we've strengthened our commitment to individuals living with various types of EB. We’re excited to share more this weekend!

  14. 20. sij

    Great to see the EBDASI activity and damage scores & inflammatory biomarkers significantly reducing with intravenous allogeneic Mesenchymal Stem Cells for RDEB by the Spanish research group of Marcela del Rio at

  15. 16. sij

    We are excited to be among the leaders descending upon London next week for ! The Abeona team will be represented @ Stand 16 – stop by, say hi, & learn more about our pivotal VIITALᵀᴹ study evaluating our for .

  16. 15. sij

    DEBRA Ambassador has been featured in ! Click the link below to find out about and how she stepped into the world of journalism. “I won’t let it stop me fulfilling my dreams.” Read now:

  17. 6. sij

    My cousin Tom Ridley has written some words about living with the condition If you could take a read and maybe share to raise awareness of this condition we’d be most grateful!

  18. “I had to learn...to be grateful and positive in order to move on and progress with my life” 🌸 was born with a rare skin condition called , causing the skin to become very fragile She talks positivity and confidence with 💛

  19. جاتني اسئلة كثير عن المرض فحبيت احكي بشكل مختصر عنه ، وعن احتياجاتنا وبعض الصعوبات اللي بنواجهها .. و اتمنى زيادة الوعي بهذا المرض من الجميع ♥️

  20. 26. pro 2019.

    They gave him a jersey, and a chance 🏀 Watch weeknights at 6 p.m. on News 12+ for more inspiring stories!

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