Rezultati pretraživanja
  1. 7. lip 2016.

    📣 ICD News: Professor Dedee Murrell is currently running a session on bullosa with Francis Palisson

  2. 8. stu 2017.

    For those who have seen and treated EB, this is incredible. For EB patients, it’s magical bullosa

  3. 2 day old Afghanistan Bart syndrome/cong. localized absence of skin

  4. 5. stu 2019.

    It has been a while since I’ve seen young people in clinic with EB but really interesting to see this paper on footcare for

  5. 29. sij 2015.

    Thank you 4 playing 4 the EB foundation! It means alot to me and everyone else that has EB!

  6. 26. sij 2015.

    I had never heard of Bullosa before, thank you for spreading awareness

  7. 25. lis 2019.

    October 21-27 is National (EB) Awareness Week and this year there is cause for celebration as researchers in UCD's Charles Institute for make an important breakthrough!

  8. 26. srp 2016.

    Dr. Dedee Murrell and Dr. Francis Palisson will deligth us with their : @dgoaim

  9. DEBRA raised 117K after 14 yr old Jonathan shared his story of the challenges of living with .

  10. 9. ruj 2015.

    BUTTERFLY CHILD to raise awareness of Bullosa (EB) ... via

  11. 19. tra 2015.

    If you wNt or need to put your own life in perspective, please Google this story.❤️

  12. 22. svi 2018.

    Daniel de Boer, Founder and CEO of discussuses bullosa , a group of genetic skin diseases that cause the skin to blister and erode very easily

  13. 2. svi 2014.

    spreading awareness w. butterfly jewelry for a rare skin disease that leaves the skin as delicate as a butterfly's wings

  14. therapy creates "replacement skin - saving the life of a 7 year old boy with bullosa

  15. Margarita Calvo giving a wonderful translational talk on mechanisms of neuropathic in bullosa

  16. It is a real privilege to look after patients Bullosa vs. The Stem Cell Program

  17. 28. velj 2013.

    Rare Diseases = Orphan Diseases. Not lucrative for drug/research companies. Rely on private funding/grants.

  18. 8. ruj 2013.

    Answered a call from an old friend working a benefit for a very special friend with

  19. 29. ruj 2015.

    thx 4 being . Your hits the road to turn up the volume 4

Čini se da učitavanje traje već neko vrijeme.

Twitter je možda preopterećen ili ima kratkotrajnih poteškoća u radu. Pokušajte ponovno ili potražite dodatne informacije u odjeljku Status Twittera.