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ICD News: Professor Dedee Murrell is currently running a session on #Epidermolysis bullosa with Francis Palisson pic.twitter.com/URXAqARbOM
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For those who have seen and treated EB, this is incredible. For EB patients, it’s magical
#epidermolysis bullosa http://www.bbc.co.uk/news/health-41914101 … -
2 day old Afghanistan Bart syndrome/cong. localized absence of skin
#epidermolysis#bullosa#dermatology#pediatricspic.twitter.com/oU65EcXK8j
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It has been a while since I’ve seen young people in clinic with EB but really interesting to see this paper on footcare for
#epidermolysis https://www.ncbi.nlm.nih.gov/m/pubmed/31397882/ … -
@IanZiering Thank you 4 playing 4 the EB foundation! It means alot to me and everyone else that has EB!#Epidermolysis#CelebrityApprentice -
I had never heard of
#Epidermolysis Bullosa before, thank you for spreading awareness#CelebAprentice http://ebkids.org/about/index.php@IanZiering -
October 21-27 is
@debraireland National#Epidermolysis#Bullosa (EB) Awareness Week and this year there is cause for celebration as researchers in UCD's Charles Institute for#Dermatology@CharlesUCD make an important breakthrough!https://www.itv.com/news/2019-10-21/irish-scientists-announce-breakthrough-on-genetic-skin-disease/ … -
#Cannabis derived therapies can help manage pain related to#Epidermolysis bullosa https://epidermolysisbullosanews.com/2019/02/08/cannabinoids-could-help-manage-eb-related-pain-study-suggests/ … -
Dr. Dedee Murrell and Dr. Francis Palisson will deligth us with their
#MainTopic:#EPIDERMOLYSIS#BULLOSA @dgoaimpic.twitter.com/tSSlppUhtO
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DEBRA raised 117K after 14 yr old Jonathan shared his story of the challenges of living with
#Epidermolysis#bullosa. http://www.ottawacitizen.com/news/local-news/russells-jonathan-pitre-raised-117000-for-charity … -
BUTTERFLY CHILD
#Book to raise awareness of#Epidermolysis Bullosa (EB)#Children... http://wp.me/p3mGq7-9Dx via@Storyreadingape -
If you wNt or need to put your own life in perspective, please Google this story.
#Epidermolysis… https://instagram.com/p/1qZDSlwb66/ -
Daniel de Boer, Founder and CEO of
@ProQR discussuses#Epidermolysis bullosa#EB, a group of genetic skin diseases that cause the skin to blister and erode very easilyhttps://checkrare.com/27315-2/ -
spreading awareness w. butterfly jewelry for
#epidermolysis#EB a rare skin disease that leaves the skin as delicate as a butterfly's wings -
#Gene therapy creates "replacement skin - saving the life of a 7 year old boy with#Epidermolysis bullosa#EBhttps://nyti.ms/2jbAQ4W -
Margarita Calvo giving a wonderful translational talk on mechanisms of neuropathic
#pain in#epidermolysis bullosa@NeuPsigpic.twitter.com/eyln8oPvRY
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It is a real privilege to look after
#EB patients#Epidermolysis Bullosa vs. The Stem Cell Program http://m.huffpost.com/us/entry/7985244 … -
Rare Diseases = Orphan Diseases. Not lucrative for drug/research companies. Rely on private funding/grants.
#epidermolysis#Bullosa -
Answered a call from an old friend working a benefit for a very special friend with
#epidermolysis#thefamilytreepic.twitter.com/s4fFIiJ535
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@Retrophin thx 4 being#rarerockstars. Your#music hits the road to turn up the volume 4#Epidermolysis#Bullosapic.twitter.com/E6lmuC4iDP
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