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Osobe Vidi sve
@me_and_my_EDS 35,F Artist (Art&Photography&Graphic Design) fighting
#EhlersDanlosSyndrome,#POTS&more. Hoping 2 help w/awareness,support&info 4 the#chroniclyawesome as I go!Halifax, Canada
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What’s the difference between ‘healthy hypermobile’/ hEDS/ HSD? We have no evidence for any differences in the human genome. Might the differences be in the microbiome? I remain convinced we are looking in the wrong place!
#nutrition#microbiome#guthealth#EhlersDanlosSyndrome https://twitter.com/FABResearch/status/1222169982508904448 …
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Another weekend draws to an end. Battling
#cancer is a full time job on it's own, throw in my#EhlersDanlosSyndrome,#fibromyalgia & other medical issues & it's like being a multiple business owner. No matter how tired I get, I'm#stillfighting#dyingtobeatcancer#fuckcancer pic.twitter.com/fKkMdUf4Qk
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#EhlersDanlosSyndrome should be a reason to skip xray and go straight to MRI. I KNOW my bones are fine it's the connective tissue that's the issue. Does connective tissue show up on xray? No? Then WTF are we doing them?! pic.twitter.com/NpPYNP0kwh
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Everyone's posting about the primaries and the Super Bowl and I'm posting about reading how about I may not make it to my 50's without a caretaker.
#EhlersDanlosSyndrome -
Real talk. Days like today are really rough. All my joints hurt and I feel bruised all over. I feel like my ankles are sprained and using the computer hurts a lot. I have a bad headache. I'm also super bored because I can't do much. 1/2
#ChronicIllness#EhlersDanlosSyndromePrikaži ovu nit -
We all carry so much every day.
We don’t need to carry yesterday too. #Dysautonomia#POTS#POTSparents#chronicillness#EhlersDanlosSyndrome pic.twitter.com/LqdiEPqFUR
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EDS is just me telling my joints to return to their assigned seats in an increasingly angry tone of voice forever and ever until I either give up or die, huh.
#EhlersDanlosSyndrome#ChronicPainpic.twitter.com/jaYAc1Fj0N -
My knee is slightly out, it's causing cramp and pulling on my hip. Happy days.
#EhlersDanlosSyndrome -
Just had a yoghurt for breakfast and already the stomach cramps begin.


#EhlersDanlosSyndrome -
Exhausted from 5 hours of illustrating straight with very little sleep this last week and two dislocations. This is life with
#EhlersDanlosSyndrome Glad I got a new piece done even if it's not perfect. It was fun and I love him! Check the post on my IG -
As a human with
#EhlersDanlosSyndrome, that part got to me.
Didn't know until very recently that cats could have it too! -
Recently diagnosed with
#EhlersDanlosSyndrome. Hyper flexible joints that were a quirk are one symptom of#hEDS. When the stuff literally holding you together (collagen) is faulty, all bodily systems can get messed up, so every dr needs to understand this to not cause more harm.pic.twitter.com/K77wtJGp20
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He has
#EhlersDanlosSyndrome just like I do
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Attempt number 5 of my crochet project. I've dislocated my little finger PIP joint. Thank you
#EhlersDanlosSyndrome -
#NotEveryoneKnowsThisBut#EhlersDanlosSyndrome awareness was January 1st. Go look it up people.#EDS -
My hips were so messed up over night the reset sounded like I dropped a bowling ball on the floor
#spoonie#EhlersDanlosSyndrome -
In response to my weird arms in my pfp, I've had quite a few people reach out to me who have Ehlers Danlos Syndrome. I have the PLOD1 gene mutation and my youngest has the COL5A1. Please share with me your story!
#EDS#EhlersDanlosSyndrome#collagendusordersunite -
A job has come up at my place of work. It's ideal for me, not because of money but because I have a background in psychology and counselling. My
#EhlersDanlosSyndrome plus other issues mean I can't even entertain the thought of doing it. I'm gutted. -
Today I'm wearing my homemade zebra t-shirt and showing off my unicorn zebra tattoo in honour of
#dayofthezebra, as the zebra is often used as the symbol for hypermobility syndromes such as#EhlersDanlosSyndrome@TheEDSociety@HMSACharity https://www.ehlers-danlos.org/about-us/charity-aims-and-focus/why-the-zebra/ …pic.twitter.com/Kdml30NuH7
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Each type of
#EhlersDanlossyndrome is defined as a distinct problem in connective tissue: what the body uses to provide strength & elasticity. Connective tissue is found throughout the body, and Ehlers-Danlos syndromes are structural problems. https://buff.ly/2O4Xw5G
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