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  1. Osobe Vidi sve

  2. 28. sij

    What’s the difference between ‘healthy hypermobile’/ hEDS/ HSD? We have no evidence for any differences in the human genome. Might the differences be in the microbiome? I remain convinced we are looking in the wrong place!

  3. 2. velj

    Another weekend draws to an end. Battling is a full time job on it's own, throw in my , & other medical issues & it's like being a multiple business owner. No matter how tired I get, I'm

  4. 30. sij

    should be a reason to skip xray and go straight to MRI. I KNOW my bones are fine it's the connective tissue that's the issue. Does connective tissue show up on xray? No? Then WTF are we doing them?!

  5. Everyone's posting about the primaries and the Super Bowl and I'm posting about reading how about I may not make it to my 50's without a caretaker.

  6. Real talk. Days like today are really rough. All my joints hurt and I feel bruised all over. I feel like my ankles are sprained and using the computer hurts a lot. I have a bad headache. I'm also super bored because I can't do much. 1/2

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  7. We all carry so much every day. 💗 We don’t need to carry yesterday too.

  8. EDS is just me telling my joints to return to their assigned seats in an increasingly angry tone of voice forever and ever until I either give up or die, huh.

  9. My knee is slightly out, it's causing cramp and pulling on my hip. Happy days.

  10. prije 16 sati

    Just had a yoghurt for breakfast and already the stomach cramps begin. 😫😖😣

  11. Exhausted from 5 hours of illustrating straight with very little sleep this last week and two dislocations. This is life with Glad I got a new piece done even if it's not perfect. It was fun and I love him! Check the post on my IG

  12. Odgovor korisniku/ci

    As a human with , that part got to me. ❤ Didn't know until very recently that cats could have it too!

  13. 2. velj

    Recently diagnosed with . Hyper flexible joints that were a quirk are one symptom of . When the stuff literally holding you together (collagen) is faulty, all bodily systems can get messed up, so every dr needs to understand this to not cause more harm.

  14. 2. velj
    Odgovor korisniku/ci

    He has just like I do 💙

  15. Attempt number 5 of my crochet project. I've dislocated my little finger PIP joint. Thank you

  16. 2. velj

    awareness was January 1st. Go look it up people.

  17. 1. velj

    My hips were so messed up over night the reset sounded like I dropped a bowling ball on the floor🙃

  18. 1. velj

    In response to my weird arms in my pfp, I've had quite a few people reach out to me who have Ehlers Danlos Syndrome. I have the PLOD1 gene mutation and my youngest has the COL5A1. Please share with me your story!

  19. A job has come up at my place of work. It's ideal for me, not because of money but because I have a background in psychology and counselling. My plus other issues mean I can't even entertain the thought of doing it. I'm gutted.

  20. 31. sij

    Today I'm wearing my homemade zebra t-shirt and showing off my unicorn zebra tattoo in honour of , as the zebra is often used as the symbol for hypermobility syndromes such as

  21. 31. sij

    Each type of is defined as a distinct problem in connective tissue: what the body uses to provide strength & elasticity. Connective tissue is found throughout the body, and Ehlers-Danlos syndromes are structural problems.

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