Rezultati pretraživanja
  1. 🎉 🎉 to win a box of goodies worth £65: retweet, follow, like & tag someone (not a company) who’d like a box too. Ends 30/1/20. Worldwide.

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  2. Osobe Vidi sve

  3. prije 2 sata

    HOW do you get tested for ? I got diagnosed with hypermobility in 2018 and was advised to get genetic testing. I searched everywhere and only found , so I left a message asking how testing works and got this in the mail. What a fucking joke!

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  4. I constantly feel like my head and ears are filled with air people any ideas? I keep blowing my ears 😩

  5. prije 3 sata

    I’ve only gone and torn the meniscus in my knees by turning over in my sleep 😫😫😫

  6. prije 7 sati

    So, apparently, I have been completely ignoring the weather for too long. is expecting a massive snowstorm. I was unaware of this and, honestly, productive weather is less painful than the threat of precip without a result.

  7. Ah bugger. I've got fun new pain that's breaking through the morphine. We've spent the evening playing "bladder, bowel, or ovary?". Whichever it is, I'm disinclined to spend hours being poked by medics. put me right off doctors.

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  8. prije 15 sati

    Rare diseases are often difficult to diagnose, which can have major consequences for sufferers. Read about 's experience of Ehlers-Danlos Syndrome on our latest blog here:

  9. prije 17 sati

    Today on “my body hates itself,” I somehow slept too aggressively and caused my pinky to completely separate from the rest of my hand for a while before snapping back in. It now snaps in and out if I’m not careful. Solution: tape the everloving daylights out of it.

  10. 3. velj

    Gotta love it when you naturally wake up every night after 3-4hours sleep. 😴 My brain just won't shut off. So exhausted. Lay down 5am to try and sleep, dislocated my jaw...ideal. 😑

  11. 2. velj

    Are there any gel ice packs out there that have been imbued with some sort of magic that makes them stay colder for longer? I can’t sleep without an ice pack because my neck and face are always on fire but all of my ice packs get warm in about 30 mins.

  12. I've been in bad pain for 3 days. Now my arm hurts so much I want to scream.

  13. 1. velj

    Bitch this is incredibly attainable, a quick COL1A1 mutation and boom

  14. Friday 31st January is the International ! “When you hear the sound of hooves, think horses, not zebras.” “Zebras” DO exist and so getting a diagnosis and treatment can be more difficult for sufferers of rare conditions.

  15. 30. sij

    “Bring it on” ? - you cannot be serious? 😡 Instead, report to HR - - institutionalised bullying - did you check first for ? (exercise-induced asthma; &etc) - shaming the unfit or overweight - and WTF is that *dog* doing there with staff in scrubs?

  16. 30. sij

    friends. Does anyone else get weird white splotches on their skin on their legs when they start to get up??😬 Just wondering.

  17. 30. sij

    Life keeps mother fuckin. I promise you I'll keep on truckin. Leah, I got you, and no one is more prepared to get you through this than me!

  18. 30. sij

    I have struggled with physical conditions my whole life. The often unseen consequence of that, is multiple mental difficulties. Once when a doctor told my Mother , "She's 'just' depressed!" My Mother yelled, "'JUST'?!? Who wouldn't be???"

  19. 29. sij

    The entire day spent at the hospital with my son.

  20. 29. sij

    that’s right, i slipped couple ribs out of place and almost dislocated both my elbow and shoulder playing dodgeball.

  21. 29. sij
    Odgovor korisniku/ci

    I would love to win this fabulous prize for my teenage daughter with Have you seen this lovely prize

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