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Day 3 has begun at the International summer school on Rare Disease Registries and FAIRification of data with a team workshop preparing our presentation of our plans on how to form a registry.
@EpiCARE_ERN#RareDisease#EJPRareDiseases pic.twitter.com/1HbTecjmJP
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Our presenters did a great job in putting across our work! We have recieved some really positive feedback. Well done team, looking forward to the future sessions.
@EpiCARE_ERN@TransplantChild@ern_reconnet@ERNEuroBloodNet#RareDisease#EJPRareDiseases pic.twitter.com/f0Kfn3WFB9
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Hearing about
#EURORDIS, and their work with rare disease patient organisations across many countries to improve the lives of people living with a rare disease in Europe@EpiCARE_ERN#RareDisease#EJPRareDiseases#ePAG -
Today
@AlbertoMPereir1 &@cvbeuzekom are attending on behalf of#EndoERN the 9th ERN Coordinators Group meeting@EU_Commission in#Brussels, to discuss about the enlargement of ERNs, disease coverage and much more actual topics.
#rarediseases#EJPRareDiseases pic.twitter.com/iaTdckDRFl
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#EJPRareDiseases organises a networking event for the#RareDiseases#Research Challenges Call on 3rd of march in Paris: http://bit.ly/2Rz1K47 Deadline for registration: 31 January 2020 The RDR Challenges call will be launched in March 2020pic.twitter.com/w6UDMe3mUm
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Osobe Vidi sve
@EJPRareDiseases #EJPRD -European Joint Programme#RareDiseases- twitter account | RTs shares likes ≠ endorsement http://www.ejprarediseases.org/index.php/ejp-rd-newsletter/ …Paris, France • ejprarediseases.org
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#Horizon2020 Eiropas reto slimību tīkla atbalsta shēmas dalībnieki var pieteikties tīkla projektos, kuros iespējams organizēt starptautiskus pasākumus un dalīties pieredzē par retajām slimībām.
2020.gadā pieejami 4 iesniegšanas termiņi. #EJPRareDiseases https://bit.ly/2EZEwy5
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