Rezultati pretraživanja
  1. is truly an inspiration. Despite EB's constant nagging, she's currently cancer-free🙌, has her own freelance business as an independent artist🎨, and acts as a global EB advocate🌎. Way to go, Deanna!

  2. 29. sij

    We partnered with & to bring John Hudson's song to life with and are excited to share the awesome results!

  3. 17. sij

    "Where there is life, there is hope" says Silvia, Nicky's mom, on her hope for a future without EB. Nicky is 23 years old and lives with RDEB. Read his full profile to learn more ✨🦋💪❤️

  4. Robbie has been the announcer for his high school basketball team since his freshman year. Now a senior, Robbie was surprised to see his name on the roster last Friday. He sank a shot on his third try 👏💪❤️

  5. Ryan truly is an ! 💪🦋

  6. 28. lis 2016.
  7. 26. lis 2016.
    Odgovor korisniku/ci

    Love the outfit , You've got style, you've got grace! A real ! Thanks for raising

  8. 16. lip 2015.
  9. Claudia may not have won the 100m, 200m / long jump at today, but she got GOLD for courage

  10. Odgovor korisniku/ci

    what a wonderful son you have there. A true . Thank you for sharing with us.

  11. We love getting letters! Hailey sent us this note, plus a $1,500 donation! She's an

  12. Watch , Shane tell his "Zero G" story at the 2013 Gala in Cincinnati. Shane was the honoree!

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