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We are delighted to announce that
@Kickstarterz will be supporting Action4Alfie with fundraising events and helping to raise awareness of#Duchenne within our community and surrounding areas. Thank you
#kickstarterzsportspic.twitter.com/FBir0sViHc
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Hello again, we are hosting a joint fundraiser in our hometown in May. We are looking for companies to donate raffle or auction prizes. Would you like to support our evening by kindly donating a voucher and helping to raise awareness
#Duchenne#AvascularNecrosis#RareDiseases -
New gene correction therapy for Duchenne muscular dystrophy
#duchenne#musculardystrophyhttp://bit.ly/2S0UDD6 -
@joinourboys@owen_faz Wouldn't it be fantastic if Andy could be ambassador for Join our Boys Trust while head coach of Ireland. It would be a way of highlighting the three Irish brothers who are fighting duchenne.#rugbyfamily#joinourboys#duchenne -
Registration for the PPMD Advocacy Conference is live! Join us March 8-10, 2020 in Washington, DC to advocate for
#Duchenne directly with your Members of Congress: https://www.parentprojectmd.org/register-today-for-ppmds-2020-advocacy-conference/ … -
"Awareness of any type of diseases or disorders is very important in our world. I & lots of patients are suffering from a genetic disorder Duchene Muscular Dystrophy(DMD)"
#WorldCancerDay2020
#IAmAndIWill
#RareDiseaseDay#Duchenne pic.twitter.com/coESAKoFd3 -
The Hall family has provided decades of support to the Yates family since Alfie, now 14, was diagnosed with
#Duchenne. In March, they will set off to Tanzania to climb Kilimanjaro to raise funds for Alfie and MDUK. Read their story here >> http://bit.ly/3b9lNz5#MusclesMatterpic.twitter.com/TCQO1G8wOX
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Thank you to the
@JettFoundation for hosting the#ReadySetJett Family Workshop, where we joined families impacted by#Duchenne to share about our urgent mission to bring therapies to those living with#raredisease.pic.twitter.com/Y30UORy1Vh
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We are encouraged by
#realworld data from the STRIDE registry now published in@fsgcer. Making a real difference to the lives of people with#Duchenne and their families is what drives us. -
Great write up by
@stmargprimary01 sharing why they are getting involved with the@MDUK_News Go Orange day this coming Friday in support of family fund@muscleSomhairle raising awareness and funds for#Duchenne#muscular#dystrophy >>https://sway.office.com/Nj2Bx7XaDQHCcoUB?ref=Link … -
"We should spread Awareness of this
#raredisease#Duchenne#MuscularDystrophy Through we can tell big films & sports stars to come front & do something to raise Awareness of this big stars can easily raise awareness of anything" -
Read this systematic review of
#DMD#Duchenne https://twitter.com/christelleponsb/status/1223612287887515648 …
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Rock & Roll Saturday filling out ADHD and Autism questionnaires. Cormac doesn't need any more labels, people need to understand that
#duchenne is not just a muscle issue. Duchenne can also come with a smorgasbord of traits from sensory to Asperger. -
Congratulations to our ambassador Andy Farrell on a winning start as head coach of
@IrishRugby We can never thank Faz enough for all his support since Jack was diagnosed with#Duchenne He’s been with us on every step of this journey to find a treatment for Duchenne#SixNations -
If you’ve ever wondered what muscle weakness looks like then this is a real life example. He brings up his knees first, followed by using his head to take some of the weight of his torso before being able to lift his arms to support himself.
#Duchenne#DMD#Disabilitypic.twitter.com/RUwO5mf8cp -
How will you be raising awareness about
#Duchenne or#Becker muscular dystrophy on@rarediseaseday? These helpful infographics add extra force to your effort
https://twitter.com/rarediseaseday/status/1223214532430061570 …
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This Helps Prevent
#Duchenne- Related Heart Disease, According to New Research https://buff.ly/2tk3Hcr#musculardystrophypic.twitter.com/SRZRZztpFW
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“Everything I do, I do it for you...”
#Duchenne#DMD#Disabilitypic.twitter.com/GFCWTMe9XL
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I’m so, so proud of the advocacy work I’ve done with [XX company] regarding accessibly... some positive changes for my local town to be announced soon.

Maybe life isn’t about fixing my child for society, but fixing society for my child. 
#Duchenne#DMD#Disability
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