Rezultati pretraživanja
  1. Share your knowledge, experience or questions on our new forum! Meet your peers - practitioners, lawyers, techies and enthusiasts - to discuss issues, challenges and trends across :

  2. prije 43 minute

    Read about the unit at , supporting researchers with , , and any other questions related to and . Thank you for your excellent work 😃! (Swedish and English version)

    The DCU at SLU supports researchers with data management and data sharing.
  3. New data available on the Data Portal! Check it out!

  4. prije 2 sata

    Never as a society have we been as open as we are today, though it’s a movement that has seemingly bypassed the public sector. In our blog post, we look at the main challenges and barriers when it comes to data sharing.

  5. RT EuropeanCancer: RT EHMAinfo: , and digitalisation, lifestyle change, early detection and screening, , equal to healthcare ➡️ these are some of the key ingredients of the addressed by EU_Commiss…

  6. prije 6 sati

    The held a webinar on ethical, societal and legal issues. If you are interested but did not have the chance to aprticipate, you can still watch it on their website!

  7. prije 9 sati

    The Ethics and Politics of Qualitative Data Sharing | Great post by Mark Israel and Farida Fozdar reflecting on some of the challenges for sharing of qualitative data.

  8. Organizations, while providing detailed rights to conform with and permissions regulatory requirements, require identity solutions comprising all identities

  9. prije 17 sati

    In today's Data driven society, sharing pertinent info in real time, simply makes sense.

  10. Shared standards for help foster , re-use, and aggregation among repositories, giving researchers a larger pool of to study. Read more about ’s cancer Data Standards Registry and Repository (caDSR).

  11. I am Tony Kerlavage and I will work every day to accelerate developments in cancer research through and by empowering scientists and clinicians with the data and tools needed to drive their research.

    World Cancer Day February 4, 2020.
  12. 4. velj

    This , reaffirms our commitment to strengthen around the world by leveraging , , , and IT to minimize the burden of cancer.

    World Cancer Day, February 4, 2020
  13. 3. velj

    How to stay two steps ahead in the digital economy? Our partners and put together a booklet with use cases full of answers and inspiration. Read about our accelerator case and more by clicking the link below!

  14. Discover the 's report on collected model contract terms - a report that gives an initial overview of analysed licenses and their characteristics:

  15. 30. sij

    We're looking for someone with a passion for data curation to help us make rare disease datasets more accessible and useful to the research community! Shoot me a DM if you'd like to learn more. RTs appreciated!

  16. Proud to be part of this very initial moment of the Data Sharing Coalition and listen to statements like: “Happy to have IDSA on board, so that we can directly start on a European level!“

  17. 30. sij

    New graphic report showing the results & recommendations from the first international survey on rare disease patient perspectives on and data protection carried out by . Read more:

  18. Are 's necessary for ? In what format should data be shared? Can data sources always be traced and identified? Check out the 's FAQ page for more information:

  19. One of the main conclusions at yesterday's workhops on policies: approaches have to be harmonised. That's why we are involved in the project: to align data sharing reference architectures and open data platforms. ➡️

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