Rezultati pretraživanja
  1. 4. velj

    Robyn Correll Carlyle of : Translating materials into another language is useful but it should go beyond that. The examples used should be culturally relevant to the community you are hoping to engage.

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    Thank you to everyone who has followed along with the series. You can find resources for all of the workshops here:

  3. 4. velj

    Community health workers are a really important bridge to underserved populations. They can be your eyes and ears so that you know a community’s real concerns and needs.

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    "We cannot treat what we do not diagnose." - Khrystal K. Davis, JD, Founder, Texas Rare Alliance

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    Remember to define your research goals when embarking on a natural history study.

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    “An entrepreneur is an initiator, a driver, someone who takes an idea and makes it reality.” - Maria Picone,

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    We learned so much from this amazing presentation about nonprofits using the venture philanthropy model at today!

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    Keys to a good partnership framework.

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    "In order to change people’s incentives then you have to figure out where they are coming from now." - Kristin Schneeman,

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    When collaborating you have to have a shared scientific problem and concrete goal.

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    . shares insights and resources on collaborations to cure diseases such as Pancreatitis at

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    Kristin Schneeman of is sharing how to manage multi-stakeholder collaborations.

  15. Key slides from EBRP/AWS talk here at .

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  16. 4. velj

    Can you describe your problem in a single sentence? If not, you haven’t identified it says Ryan Jancaitas of & worked with to do just that.

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  17. 4. velj

    How can we help parents and patients get that information and get to a cure faster?

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    Ryan Jancaitis of joins us at

  19. 4. velj

    The scientific advisory board for @EBReseaerch is independent from the CEO and board. They make decisions based on the highest quality science.

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