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I am glad to have Dr Spencer as my mentor tomorrow. Looking forward.
@globalgenes#DataDIY https://twitter.com/GlobalGenes/status/1224710874058973187 … – mjesto: Houston Marriott Medical Center/Museum District -
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Thank you to everyone who has followed along with the
#DataDIY series. You can find resources for all of the workshops here: https://globalgenes.org/data-diy/ -
Community health workers are a really important bridge to underserved populations. They can be your eyes and ears so that you know a community’s real concerns and needs.
#DataDIY#RareDisease -
"We cannot treat what we do not diagnose." - Khrystal K. Davis, JD, Founder, Texas Rare Alliance
#DataDIY#RareDisease -
Have questions for our panel? Ask now: https://datadiy4.cnf.io/sessions/t4y7/#!/dashboard …
#DataDIY#RareDiseasepic.twitter.com/6ZlThcQV3A
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Remember to define your research goals when embarking on a natural history study.
#DataDIY#RareDiseasepic.twitter.com/fJKALBqkmw
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“An entrepreneur is an initiator, a driver, someone who takes an idea and makes it reality.” - Maria Picone,
@trendcommunity#DataDIY#RareDisease -
We learned so much from this amazing presentation about nonprofits using the venture philanthropy model at
#DataDIY today! https://twitter.com/GlobalGenes/status/1224731279083491329 …
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Keys to a good partnership framework.
#datadiy#RareDiseasepic.twitter.com/9cZJFeZeIg
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Key takeaways from Kristin and
@fastercures.#DataDIY#RareDiseasepic.twitter.com/u9kPFu9XBu
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"In order to change people’s incentives then you have to figure out where they are coming from now." - Kristin Schneeman,
@fastercures#DataDIY#RareDisease -
When collaborating you have to have a shared scientific problem and concrete goal.
#DataDIY#RareDisease -
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@fastercures@kschnee66 shares insights and resources on collaborations to cure diseases such as Pancreatitis at#DataDIY@GlobalGenes -
Kristin Schneeman of
@fastercures is sharing how to manage multi-stakeholder collaborations.#DataDIY#RareDiseasepic.twitter.com/sROGxu94LS
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Can you describe your problem in a single sentence? If not, you haven’t identified it says Ryan Jancaitas of
@awscloud@AWS_Nonprofits & worked with@EBResearch to do just that.@GlobalGenes#DataDIY@ryjan12pic.twitter.com/k4srFyHJfk
Prikaži ovu nit -
How can we help parents and patients get that information and get to a cure faster?
#datadiy#RareDiseasepic.twitter.com/DcHsENulZ7
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Ryan Jancaitis of
@awscloud joins us at#DataDIY pic.twitter.com/X5rx7LT3eF
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The scientific advisory board for @EBReseaerch is independent from the CEO and board. They make decisions based on the highest quality science.
#DataDIY#RareDisease
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