Rezultati pretraživanja
  1. 29. sij

    We have published a statement by the UK CF Medical Association with advice to people with and their families on the outbreak:

    1 reply 16 proslijeđenih tweetova 28 korisnika označava da im se sviđa

  2. Osobe Vidi sve

  3. 4. velj

    It’s fucking heartbreaking seeing certain people with at end stage pleading for access to . It should be a no brainer. But what’s even more heartbreaking is the fact that access shouldn’t be granted at this stage. It’s almost too late & the damage is done

    1 reply 18 proslijeđenih tweetova 26 korisnika označava da im se sviđa
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  4. prije 2 sata

    Annual review update - LF function is down (mainly due to technique) , weight is down a smidge, everything else went well apart from that and hopefully I’ll get good results in a months time! 🤞🏻

    1 reply 5 korisnika označava da im se sviđa
  5. prije 3 sata

    Now we’ve got a panel with , & . Ella, who has & received last year, tells us “it’s incredibly exciting to be in a room full of people developing exactly what I need”.

    1 reply 3 korisnika označavaju da im se sviđa
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  6. prije 4 sata

    They can't be together because of cross infection, so they formed a virtual . Moving video of the Virtual Choir performing "Take Me to Church" by

  7. prije 4 sata

    What cystic fibrosis symptoms can I learn to self-manage?

  8. prije 9 sati

    a previous job told me “it’s best if no one finds out you have employment will be terminated” when asking for annual leave for a hosp app same people cancelled someone’s interview once he’d declared he was in a wheelchair. They’ve since gone into administration 🥳

    Are you ?
    1 proslijeđeni tweet 8 korisnika označava da im se sviđa
  9. prije 10 sati

    Know the feeling of being told you won't live long. and hit 30 boo yaa 50 next. I love his drive! Follow him if you haven't.

    I've officially made it to 27 Stupid doctors with their medical degrees They say dumb things like "he won't live to 5" or "huffing computer duster will negatively affect your brain functions" Guess they don't knojvc ckgfcf 4th gfer33267 ccuyt tf 76h
    1 korisnik označava da mu se sviđa
  10. prije 15 sati

    .: your constituents with need your support. Please protect the Adult Cystic Fibrosis Assistance Program from being eliminated in the 2021 budget. Adults with CF rely on this program to access their care and treatments

    3 korisnika označavaju da im se sviđa
  11. prije 20 sati

    Conor burns in his Mascot outfit for the Sunday 9th feb at Seaview

    6 proslijeđenih tweetova 65 korisnika označava da im se sviđa
  12. 4. velj

    Can anyone with DM me? 😫

    1 korisnik označava da mu se sviđa
  13. 4. velj

    ITS HERE! First dose officially taken! So excited❤️

    1 proslijeđeni tweet 48 korisnika označava da im se sviđa
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  14. 4. velj

    Scientists have combined doses of three antibiotics -- amoxicillin & imipenem-relebactam & found it was 100% effective in killing off the infection which is usually extremely difficult to treat in patients with cystic fibrosis. .

    2 proslijeđena tweeta 4 korisnika označavaju da im se sviđa
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  15. 2. velj

    Coming soon to a book store near you!!!

    16 korisnika označava da im se sviđa
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  16. 2. velj

    2nd lot of IV antibiotics for number 2 son this year and it’s only February! I wish life would give him a break. 😢

    7 proslijeđenih tweetova 19 korisnika označava da im se sviđa
  17. 1. velj

    Welcome to February Beamers! Here is this week's live class lineup! We're always here to support you in your goals and ways you can stay active in your lives. 💜

    2 proslijeđena tweeta 6 korisnika označava da im se sviđa
  18. 30. sij

    We oppose new CMS guidance allowing state programs to apply for block grants or per capita caps and will educate stakeholders on how this will reduce access to quality, affordable care for people with , like .

    Today 27 patient groups expressed strong opposition to new guidance for states on block grants in that will harm patients with serious and chronic health conditions.
    21 proslijeđeni tweet 36 korisnika označava da im se sviđa
  19. 30. sij

    Thank you Thank you Thank you!

    Just picked up this lovely lot for our charity dinner on 28th March. Many thanks to and for supporting 🍻. Get your tickets for the German themed dinner here:
    3 korisnika označavaju da im se sviđa
  20. 30. sij

    We stand with UKCFMA in urging to do everything he can to make the triple therapy available.

    5 replies 62 proslijeđena tweeta 136 korisnika označava da im se sviđa
  21. 30. sij

    After 9 weeks, almost dying, being in a coma for 12 days I’m going home!!!!!!!!!!

    50 proslijeđenih tweetova 1.937 korisnika označava da im se sviđa

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