Rezultati pretraživanja
  1. prije 19 minuta

    "For me, every single day is a challenge. Some days, every single hour is a challenge. I live in a world where just getting through the next moment is my challenge." via

  2. prije 48 minuta

    I’m home from a few days away and in a big flare. I’ll be working from bed today, thanks. ✨

  3. prije 54 minute

    Ugh!! Doctor moved meds around at appointment yesterday. Following her recommendation and I can't wake up. Just took a three hour nap and about to do the same again. But I don't have tremors, so the meds are working?

    1 korisnik označava da mu se sviđa
  4. prije 2 sata

    Back again, day 2. It took 7 tries to get a vein this morning. Not a typo. SEVEN. After 2 tries yesterday. I'm gonna run out of places to stick before my first round of treatment is up (= tomorrow & Friday). ~🦋 – mjesto: NewYork-Presbyterian/Lawrence Hospital

    Photo of my lower forearm/hand sitting on a blanket with iv tubes leading to injection site in my hand. Arm is bruised from yesterday's 2 injections
    1 reply 2 korisnika označavaju da im se sviđa
  5. prije 4 sata

    Be gentle with yourself, you're doing the best you can❣ 💜🦋💜

    3 korisnika označavaju da im se sviđa
  6. prije 4 sata
    Odgovor korisniku/ci

    Strong work 💪💪💙💙

    1 korisnik označava da mu se sviđa
  7. prije 8 sati

    🙌 Learnt this the hard way !

  8. prije 11 sati

    Picked up meds last week. $500 poorer now. But very thankful for the $1000+ paid by pharmacare.

    4 korisnika označavaju da im se sviđa
  9. prije 16 sati

    . had a category called "Where Does it Hurt?" I got them all. No, seriously, I've got them all. ~🦋

    2 korisnika označavaju da im se sviđa
  10. prije 17 sati

    Thanks I needed that

    0:10
    Talk with a positive person! Express gratitude by writing down three good things each day! Laugh even if you have to force it! Buy something new even if it's only something small! Go outside get some fresh air! Invest 30 minutes a day doing a hobby you enjoy & find relaxing! 😌💛
    1 reply 3 korisnika označavaju da im se sviđa
  11. prije 17 sati
    Odgovor korisniku/ci

    😡🥵this is awful Yikes

  12. prije 18 sati

    People are often unaware of all the decisions that people with chronic illnesses such as ME/CFS make. I found it here:

    4 proslijeđena tweeta 13 korisnika označava da im se sviđa
  13. prije 20 sati

    I'll likely get more bottled water a little later today as the bin seems to be filling rather slowly so another hourish away from the house won't affect much. Bread & maybe canned soup too. I have energy but my arthritis is definitely kicking me today.

    1 korisnik označava da mu se sviđa
    Prikaži ovu nit
    Prikaži ovu nit
  14. prije 20 sati

    Them: "You don't look sick." Me: "I know. I'm a great actor."

    1 reply 1 proslijeđeni tweet 3 korisnika označavaju da im se sviđa
  15. prije 22 sata

    Pain is real, but so is .

    2 korisnika označavaju da im se sviđa
  16. 4. velj

    Waking up with muscle spasms and trying to un-kink my neck, shoulders,wrists, knees...body makes me feel like a rusty robot.

    2 proslijeđena tweeta 9 korisnika označava da im se sviđa
  17. 4. velj
    Odgovor korisniku/ci

    Thanks so much . Hope you are doing well and your feet. And Mom

    2 korisnika označavaju da im se sviđa
  18. 3. velj

    The right side of my face is hurting af and all I want is sleep 😔 but therapy. I wish I didn't have to drive 45 Minutes to get there.

    1 reply 2 korisnika označavaju da im se sviđa
  19. 3. velj

    So I was feeling really heavy & low in spirits today, what with all the Evil goings-on in the free world just now. So I started sketching, hoping to cheer myself up a bit, maybe try for a smile. It worked, so I'm sharing it. I hope it does the same for you.

    6 replies 2 proslijeđena tweeta 30 korisnika označava da im se sviđa
  20. 2. velj

    I was lucky enough to be given 2 amaryllis bulbs for Xmas/birthday & they've been absolutely stunning, those huge show-offy red blooms unashamedly blooming large 😊♥️

    1 proslijeđeni tweet 34 korisnika označavaju da im se sviđa

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