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TFW you're chronically ill but your meds are actually working well for once, so you're like "Do All The Things I haven't been able to do" but also "but not so much that I have a flare" And then like, inevitably overshoot and end up back in a flare
#ChronicIllnessProblemsPrikaži ovu nit -
Chronic illness culture is planning everything you need to do next time you get up so you don't waste energy, and yet still somehow forgetting something because of brain fog.
#ChronicIllnessProblems -
#SelfCareDay before my Cine MRI tomorrow to monitor my CSF http://flow.Id use my free drink TOMORROW, but TEA might be a stupid idea before a test where I’m going to be stuck in a cramped tube for ~45 minutes.
#ChronicIllnessProblems#Hydrocephalus#HydroWarriorpic.twitter.com/ctzMUWFQ9D
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I never get in it, always walk next to the porter. This often upsets said porter. Once lost one when I took a shortcut without him realising. Had to run after him to find him, making the mandatory wheelchair even more ridiculous.
#chronicillnessproblems -
You ever have those days where you wake up after what should've been enough sleep and are just exhausted? I'm bone tired, like I feel tired in my soul. My ancestors are tired and it's weighing on me... that kind of tired. I feel like I've been beaten up.
#chronicillnessproblems -
One venue didn't even offer seating for
#handicapped or#disabled fans.#chronicillnessproblems#spoonieproblemsPrikaži ovu nit -
You’re welcome

#ChronicIllnessProblems#NeverFails#BehcetsDisease#Vasculitis#IntracranialHypertension#Arthritis#ChiariMalformation#RareDisease#AutoimmuneDisease#CareAboutRare
pic.twitter.com/IWnEd5gykOOvo je potencijalno osjetljiv multimedijski sadržaj. Saznajte više
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I went to Westfield after my fun afternoon at Scope, and someone pulled me aside to show me how this fancy curling wand works and my hair looked so lush that I basically threw my bank card at her
I was just so happy to have some life back in my hair! #chronicillnessproblemsPrikaži ovu nit -
All hell breaks loose when Aunt Flo is in town
#ChronicIllnessProblems#DisabledProblemshttps://twitter.com/Olas_Truth/status/1176935367443931136 … -
Why do people think it's acceptable to make comments about you not working when you're ill? Do you not think I'd love to be in a job, making money, contributing & gaining my independence back? Trust me, I'd gladly swap my life for yours!
#chronicillnessproblems#pwME#mecfsPrikaži ovu nit -
It is a holiday weekend and I have fun plans, so of course I am playing "go to urgent care or just live with what is probably just a new symptom of my chronic illness"
#ChronicIllnessProblems -
[Food] TFW you set a timer for 8 hours instead of 8 minutes, so you accidentally overcook your pasta by 20 minutes. But you eat it anyway because that was all the energy you had for food.
#ChronicIllnessProblemsPrikaži ovu nit -
I would like to suck the marrow out of life, but just now I'm too nauseous.
#ChronicIllnessProblems -
Apologised to my bank card and booked a hotel in Cardiff for the Manics, cancelling my hostel booking. More than twice the price, but sensible. I need more sleep and more pillows than an 18-bed dorm would allow for.
#chronicillnessproblemsPrikaži ovu nit -
My dad flipping vinyl for me because I'm too wrecked to do it myself. Love him to bits. First time I've seen him in a couple weeks due to the damn illness. F*ck you
#mecfs#chronicillnessproblemsPrikaži ovu nit -
What the word "chronic" means.
#ThingsDisabledPeopleKnow#chronicillnessproblems#yesimstillsick -
You know you're a
#spoonie when you clear out your bedside drawers and they're filled with empty or half empty medication packets
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#chronicillnessproblems#meds#oops -
If I had the energy to do my make up more frequently I would look something like this.
#chronicillnessproblems You can never have too much black lipstick and red eyeshadow. Never. pic.twitter.com/V87cSQgcQ5
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#ChronicIllnessProblems Having only 3 lines to list ALL your medications! Eek!
Char #ChronicIllness#Chargie#Spoonie#Autoimmune#ChronicPain#ChronicFatigue#Disability#InvisibleIllnesspic.twitter.com/5SUCnx9WxK
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That moment when you’re finally “normal people sick” and don’t know how to handle it because pain meds don’t fix it.
#chronicillnessproblems
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