Rezultati pretraživanja
  1. Chordoma Foundation Meeting at NMedicine...leading with greatness....Chander, Gondi, Stupp, Sachdev, and Wolinsky

  2. 25. lis 2019.

    Join fellow patients & caregivers in Boston on July 17-18, 2020 for the next International Conference (ICCC). Hear about the latest updates in research & care and connect with peers who understand your journey. Registration will open in early 2020.

  3. 8. lip 2019.

    Spent a wonderful and engaging afternoon with the at the 2019 conference. Thank you for having me as a speaker. It is always a privilege to hear from patients directly and share my passion for .

  4. 8. lip 2019.

    Dr. Vinai Gondi of Northwestern describing his considerable experience in treating chordomas with proton/particle therapy.

  5. 8. lip 2019.

    of covering the current and future landscape of systemic treatment for chordomas.

  6. 7. lip 2019.

    If you are joining us for the event tomorrow at please use, or following along using, the hashtag .

  7. 6. stu 2018.

    SAVE THE DATE! Our next Conf will be held in Chicago on June 8, 2019 in collaboration w/ Come to connect w/ patients & loved ones & learn about the latest advances in research & treatment. Registration will open in 2019.

  8. 23. sij

    NOW OPEN: Registration for the 2020 International Conf. Join us in Boston on July 17-18 to LEARN about the latest treatment advances, CONNECT w/ patients/families & TAKE ACTION against chordoma. Early-bird discount available until 5/15.

  9. 1. lip 2019.

    Don't forget to register for the 2019 Conference at , Saturday, June 8, Chicago, IL

  10. 28. lis 2017.

    At in Houston w/ the amazing 4 today’s conf. Excited 2 learn & share with this special group

  11. 25. sij
  12. 30. pro 2019.

    Have you marked your calendar to join us in Boston next July? Our 2020 International Conference is coming back to the July 17-18, 2020. Registration will open in early 2020, but you can start planning your trip now!

  13. 13. lip 2019.

    It was an honor to be a part of this terrific patient/family-attended conference put together by the and

  14. An event for , , , or loved ones. Register for The 2019 Conference at to hear more from experts like JP Wolinsky, MD.

  15. If you can't make it to the Conference tomorrow, watch the live stream here: .

  16. 2. ruj 2019.

    Find out why our ED believes "there is a compelling reason to hope" by watching his talk at our 2019 Conf @NorthwesternMd & learning what CF is doing to advance better treatments.

  17. 29. kol 2019.

    Caregiver & fundraiser Noreen Potempa gave an inspiring talk at our 2019 Conf about her family's journey w/ & their efforts to pay it forward. Check it out here & join them at their in Chicago next month

  18. 12. lip 2018.

    ICYMI: Heard in Boston: Highlights from 2018 International Conference VIDEOS of experts & patients talking treatment, care, support and more

  19. 31. svi 2018.

    NEW VIDEOS & highlights from the 2018 International Conference are now available on our website. See insights/advice from >20 research, treatment & patient care experts, as well as fellow survivors.

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