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Please consider what we could accomplish with a simple, inclusive, marching banner, so every new cousin-condition can join us without redesign.
#CTDsurvivors#MarfanSyndrome#EhlersDanlosSyndrome#LoeysDietzSyndrome#VEDS#CTD@marfanfdn https://thevedsmovement.org/ pic.twitter.com/JullOKUCaw
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from 2012 on, i poured everything into pushing for a combined education/referral/fundraising/logo effort as
#CTDsurvivors . i'm glad someone finally got through on the same idea.#EhlersDanlosSyndrome#MarfanSyndrome#LoeysDietzSyndrome#VEDS#CTDhttps://www.marfan.org/about-us/news/2019/12/02/veds-movement-launches-thevedsmovementorg …
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