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My parents gifted Violet with an American Girl doll that not only has matching glasses and doctor gear, but also (thanks to my mom’s sewing skills), matching scars! It means so much to her (and me) that she sees herself represented in everything around her.
#CHD pic.twitter.com/jwYhdFHX11
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Feb is heart disease awareness month! Spreading the awareness of congenital heart disease! I have coarctation of the aorta with bicuspid aortic valve. I survived heart surgery!
#zipperclub#CHD#CHDAwarenessmonthpic.twitter.com/uejanlM55l
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1/ Poorly understood entity on echo.... Pediatric ARVD. Echogenic RV with hypertrabeculations . Thinning of walls. .
#echofirst#chd pic.twitter.com/Yvvbk2qV8nPrikaži ovu nit -
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Are you a CHD parent or an adult w/ CHD living in the US, UK, Switzerland, India, or Pakistan? If so please fill out the following survey to help define the outcomes that most matter to
#CHD patients!#ACHD Please r/t! Your input will make a difference! https://ichom.co1.qualtrics.com/jfe/form/SV_cC5pASDlEcqg4HX …Prikaži ovu nit -
So today, i celebrate 3 yrs post op on my heart. Was scary as hell but necesary. And this was 29 yrs after my first surgery. So as is tradition, i say cheers with a mug of root beer and hope for a cure for
#chd pic.twitter.com/09ldJfbsem
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Update: Karson is still in the cardiac ICU but he's improving. He is only on forced oxygen respiratory support. Kullen got to spend 2 hours with his little bro and I think he loves him.


I'm not crying, you're crying
https://www.caringbridge.org/public/babykirchner …
#MerryChristmas#HLHS#CHD pic.twitter.com/xslDCj7KXk
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Thrilled to start as Professor & Director of the Cincinnati Children’s Center for Heart Disease & the Developing Mind, a new partnership between
@CincyChildrens Heart Institute & Division of Behavioral Medicine & Clinical Psychology@CincyKidsHeart@CincyPsyFellows@uofcincy#CHD pic.twitter.com/OYmBonM8D1
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RT-heart transplant recipient & cancer fighter Jace is hospitalized w/high fever & poor oxygen readings. They are fearful of new heart rejecting his body. Prayers appreciated. Help out if so moved.
#CHD is rough. http://jeffreyhasheart.org Venmo: haveheart http://paypal.me/jeffreyhasheart pic.twitter.com/Wsj8xPa8p5
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More children with complex
#CHD are living well into adulthood but that doesn't mean they're no longer facing symptoms & complications. Care for CHD patients has come so far but we need to continually learn as more patients grow up! https://n.pr/2nwNive -
The challenge: complex surgery to convert a “single ventricle”
#CHD patient to a 2 ventricle circulation.#3D model printed in 2 days from scan to surgeon review. Thankfully, the surgery was successful and the patient is doing well
. @UCSF@UCSFChildrens@3dheals@ucsfhealthpic.twitter.com/bf3aEVez9Z
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Last month,
@Marvel's Hero Project honored 14yo Lorelei McIntyre-Brewer, who was born with hypoplastic left heart syndrome, with her own comic book! She started a organization called Heart Hugs that makes kid-sized heart pillows for other children having heart surgery.#CHD#HLHSpic.twitter.com/ZOGGavrDKm
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Finally committed! Help me raise funds for
#AlderHey. This is a cause very close to my heart and any help at all would be very much appreciated.#PayingItForward#CHD#Team1C#TeamTheo#ShareShareSharehttps://www.justgiving.com/crowdfunding/fauve … -
Heart Month is one week away! Get ready to spread
#CHDAwareness on social media throughout February. Keep an eye out for shareable content and opportunities to tell your#CHD story.#HeartMonth2020#ACHACares#CHDCare4Lifepic.twitter.com/FLv3eXv93Q -
1/ From my echo archives....Dextrocardia...with ASD and pm vsd and bilateral SVCs with rsvc opening into mLA.... And subaortic conus
#echofirst#CHD#pedcardpic.twitter.com/RVMO17NrTfPrikaži ovu nit -
Nursing school may suck but it did give me a better understanding of the congenital heart disease that I was born with. Each year in the U.S. over 100,000 babies won’t make it to there 1st birthday due to CHD. I’ve never realized how truly lucky I am to be HERE
#CHD -
Did you know there are NYS bills set to mandate HPV and FLU vaccines without parental knowledge or consent?
#fightforyourrights#freedom#freedomtochoose#civilrights#nomandatoryvaccines#vaccinesafety#wakeup#learntherisks#chd#delbigtree#getoutofmyface#unitedstatesofpharmapic.twitter.com/uBGpeGtZbB
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Check out our
#myquestions social media campaign to help#chdpatients and their families find support online. Follow the link for info on this week's question https://www.facebook.com/bristolroyalhospitalforchildren/posts/2634424950126920 …#CHDToolkit#CHD#NHSpic.twitter.com/SCrWzce0uf
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Merry Christmas from me and my little heart warrior. Eternally thankful that God allowed her to be here and home for her first Christmas. Praying for all the heart mommas still inpatient with their warriors.
#chd
pic.twitter.com/iEcWEv9Bu6
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No matter where. No matter how old. No matter their colour. No matter how poor. Life-long care for every CHD and RHD patient. Do you know your rights?
#CHD#RHD#CHDRights#RHDRights#HealthForAll#UHCpic.twitter.com/qUmUodP9HH
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