Rezultati pretraživanja
  1. prije 40 minuta

    .: your constituents with need your support. Please protect the Adult Cystic Fibrosis Assistance Program from being eliminated in the 2021 budget. Adults with CF rely on this program to access their care and treatments

  2. prije 24 sata

    . please support S. 466. This proposed legislation could increase access to care for people with conditions like CF!

    1 korisnik označava da mu se sviđa
  3. prije 24 sata

    . Newborn screening is critical for helping newborns with get diagnosed early so they can get the care and treatments they need to thrive. Please co-sponsor and vote YES on S. 2158 to preserve this important program!

    2 korisnika označavaju da im se sviđa
  4. 31. sij
    Odgovor korisnicima

    Because we are petrified at the thought of not having access to life saving treatment. As someone with , I live in fear every day. Thank you for speaking to him and for advocating on behalf of patients.

    2 korisnika označavaju da im se sviđa
  5. 30. sij

    We oppose new CMS guidance allowing state programs to apply for block grants or per capita caps and will educate stakeholders on how this will reduce access to quality, affordable care for people with , like .

    Today 27 patient groups expressed strong opposition to new guidance for states on block grants in that will harm patients with serious and chronic health conditions.
    21 proslijeđeni tweet 36 korisnika označava da im se sviđa
  6. 29. sij

    Thank you Gayle for being all kinds of as always & taking part in day today in Tallahassee.

    Thank you Rep Overdorf for a great meeting and your interest in our CF kids as well as the health issues that affect them. ⁦⁩
    2 proslijeđena tweeta 15 korisnika označava da im se sviđa
  7. 29. sij

    ... 4 weeks a away!

  8. 29. sij

    Thank you for sharing our post and listening to our cystic fibrosis experiences Would you like to join in advocacy and awareness efforts? Visit link in bio to engage with us. @ Florida State Capitol…

    3 korisnika označavaju da im se sviđa
  9. 28. sij

    Thank you Rep Overdorf for a great meeting and your interest in our CF kids as well as the health issues that affect them. ⁦⁩

    1 reply 2 proslijeđena tweeta 16 korisnika označava da im se sviđa
  10. 28. sij

    Thank you Senator Berman and Abby Ross for taking the time to meet with us and learn more about our CF kids and how you can continue to support accumulator adjustment programs and Medicaid programs Thank you for all you do. ⁦⁩

    1 reply 1 proslijeđeni tweet 9 korisnika označava da im se sviđa

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