Rezultati pretraživanja
  1. 2 day old Afghanistan Bart syndrome/cong. localized absence of skin

  2. 25. lis 2019.

    October 21-27 is National (EB) Awareness Week and this year there is cause for celebration as researchers in UCD's Charles Institute for make an important breakthrough!

  3. 26. srp 2016.

    Dr. Dedee Murrell and Dr. Francis Palisson will deligth us with their : @dgoaim

  4. DEBRA raised 117K after 14 yr old Jonathan shared his story of the challenges of living with .

  5. 28. velj 2013.

    Rare Diseases = Orphan Diseases. Not lucrative for drug/research companies. Rely on private funding/grants.

  6. 29. ruj 2015.

    thx 4 being . Your hits the road to turn up the volume 4

  7. 3. lis 2015.
  8. Odgovor korisniku/ci
  9. 10. tra 2018.

    has a beautiful tribute to Jonathan Pitre, a young man living with EB who sadly, passed away last week. Jonathan was a brave Ambassador for , and brought much awareness to the disesase. Read more at their tribute page

  10. 31. ožu 2016.
  11. 18. tra 2018.

    A touching story of how one mother is coping with the loss of her son, who lived with

  12. 6. ruj 2018.

    A new paper: Genotype–Phenotype Correlations of Dystrophic Epidermolysis Bullosa in India: Experience from a Tertiary Care Centre

  13. 27. lis 2017.

    Castle Creek Pharma Receives Partners in Progress Award from debra of America

  14. 22. kol 2019.
  15. ...fent algunes passejades que normalment ens enganxen molt lluny, com la de o els de la ... encara amb molta neu i gel als estanys més alts o a les obagues.

    Prikaži ovu nit
  16. Prikaži ovu nit
  17. : spotkanie rodzin dotkniętych choroba ( ). Dziś wieczór ze Świdnik Gospel Choir. Inspirujący przebój wykonali wspaniali ludzie dla wspaniałych ludzi

  18. W Firleju spotkały się rodziny z całej Polski. Łączy ich jedno: choroba ( ) pęcherzowe oddzielanie się naskórka. Warsztaty rodzin zorganizowało Stowarzyszenie Debra.

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