Rezultati pretraživanja
  1. 22. ožu 2014.

    I suffer from a rare disease named . I do not look sick, but in fact this disease is (cont)

  2. 16. kol 2019.
  3. 16. ruj 2015.
    Odgovor korisniku/ci

    trying to raise money for my friend's child with would appreciate any publicity!

  4. 20. svi 2017.

    Today is . I have Behcet's Disease, a rare autoimmune condition. It's important that ppl know about it.

  5. 9. stu 2019.

    The Patient Summit in Atlanta was amazing and incredibly insightful. I’m so thankful to have been able to meet other patients, get new information, and to meet new people. Thank you and for making this event possible.

  6. 14. svi 2019.

    Exciting news: I just published 's first callout! I've lived with it for 20+ years (it took me 20 to get diagnosed), and I'm still learning how it can affect me. is May 20; please give this a read. ❤️

  7. International Behçets Awareness Day babayyy 😂

  8. 6. svi 2017.
    Odgovor korisniku/ci

    I have a rare autoimmune condition that requires expensive biologics to control. With them I can work, w/o I cannot.

  9. We invite all of you to see and discuss our center’s project (designed by ) about multicenter and multinational study (no:1702) and mine about and (no:1701) 🙋🏼‍♂️

  10. 15. kol 2019.

    Me Behcet’s Disease autoimmune flare is kicking my arse. But nothing will keep me away from my beloved nachos. Nachos are magical. Nachos are healing. Nachos are life.

  11. 20. svi 2016.
  12. 26. srp 2019.

    My new project is a memoir about living with . I've got plenty of motivation but could use a little inspiration. Name a memoir about anyone/anything you've read that you would recommend.

  13. 29. lip 2019.
    Odgovor korisniku/ci

    I was hospitalized for a bowel obstruction for three days w an NG tube (first of three). My mom actually said, “well, consider it a little vacation away from the kids.” 😑 Uh, NO. A tube shoved down my nose and into my stomach is far from any vacay.

  14. Odgovor korisnicima

    My life DOES depend on it!😳 w . Just picked up my bag of 11 RX for the MONTH this week! is my !🙏

  15. A little about my rare disease 💙 Behcets can appear at ANY age. It is an autoimmune/auto-inflammatory disease that affects ALL types of blood vessels. It is commonly misdiagnosed! 🦓💙

  16. is a rare disorder that causes inflammation of your blood vessels through your whole body

  17. 25. ruj 2018.

    This is , what I am being treated for. Let's spread awareness of this rare, misunderstood illness.

  18. The has approved Otezla for the treatment of adult patients with oral associated with .

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