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I suffer from a rare disease named
#BehcetsDisease. I do not look sick, but in fact this disease is (cont) http://tl.gd/n_1s13en1 -
@PIPManchester trying to raise money for my friend's child with#behcetsdisease http://gofund.me/ks22s8ds would appreciate any publicity! -
Today is
#BehcetsAwarenessDay. I have Behcet's Disease, a rare autoimmune condition. It's important that ppl know about it.#BehcetsDisease pic.twitter.com/dRJQrtIEIn
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The
#BehcetsDisease Patient Summit in Atlanta was amazing and incredibly insightful. I’m so thankful to have been able to meet other patients, get new information, and to meet new people. Thank you@behcets_usa@VasculitisFound and@TheMightySite for making this event possible. -
Our last
#Rheumatology research article about neurologic involvement#BehcetsDisease from our#HUVAC cohort. Thanks to@romatolojiomer,@iertenli and the others.https://pubmed.ncbi.nlm.nih.gov/31733425-clinical-features-and-disease-course-of-neurological-involvement-in-behcets-disease-huvac-experience/?from_pos=1&from_term=bolek%20ec … -
Exciting news: I just published
@TheMightySite's first#BehcetsDisease callout! I've lived with it for 20+ years (it took me 20 to get diagnosed), and I'm still learning how it can affect me.#BehcetsAwarenessDay is May 20; please give this a read.
https://mgty.co/2JigS4l -
International Behçets Awareness Day babayyy
@Han6328#behcetsdisease -
I have
#BehcetsDisease a rare autoimmune condition that requires expensive biologics to control. With them I can work, w/o I cannot. -
We invite all of you to see and discuss our center’s project (designed by
@romatolojiomer) about multicenter and multinational#PolyarteritisNodosa study (no:1702) and mine about#BehcetsDisease and#Amyloidosis (no:1701)
#EMEUNET#ACR2019@DiederikDeCock -
Me Behcet’s Disease autoimmune flare is kicking my arse. But nothing will keep me away from my beloved nachos. Nachos are magical. Nachos are healing. Nachos are life.
#spoonie#chronicillness#behcets#behcetsdisease#RareDiseasepic.twitter.com/jOf0AmBs98 -
Today is
#Behcetsdiseaseawarenessday! Retweet to raise awareness!#Behcets#Behcetsdisease#rarediseasepic.twitter.com/9MN6TUOBIz
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My new project is a memoir about living with
#behcetsdisease. I've got plenty of motivation but could use a little inspiration. Name a memoir about anyone/anything you've read that you would recommend.#WritingCommunity -
I was hospitalized for a bowel obstruction for three days w an NG tube (first of three). My mom actually said, “well, consider it a little vacation away from the kids.”
Uh, NO. A tube shoved down my nose and into my stomach is far from any vacay. #behçetsdisease#IBSd -
My life DOES depend on it!
#PreExisting w#BehcetsDisease. Just picked up my bag of 11 RX for the MONTH this week!#ACA is my#healthcare!
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A little about my rare disease
Behcets can appear at ANY age. It is an autoimmune/auto-inflammatory disease that affects ALL types of blood vessels. It is commonly misdiagnosed! #behcets#behcetsdisease#spoonieproblems#spreadtheword

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#BehcetsDisease is a rare disorder that causes inflammation of your blood vessels through your whole body#NERVEmber -
This is
#BehcetsDisease, what I am being treated for. Let's spread awareness of this rare, misunderstood illness. https://youtu.be/cu-pkV6BKs4 -
The
@US_FDA has approved Otezla for the treatment of adult patients with oral#ulcers associated with#Behçetsdisease. http://ow.ly/kPXh50vd2Nl
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