Hakutulokset
  1. 24. tammik.

    Suomessa halutaan tappaa ALS:iin sairastuneet, johtavien neurologien mukaan heidän pitäisi kieltäytyä hengityskoneesta, ei ihme Pave Maijanen ”otti ja lähti”. Näitä ihmisiä painostetaan ja uhkaillaan. Yksi tapaus

  2. 28. tammik.

    My husband was away for work last night, so my son slept on the couch. At 11:30 and 3:30, he adjusted my hands and legs. He is only 17, but in these moments I catch a glimpse of his future adult self. This morning he asked me if he woke up whenever I needed him. 🥰

    87 vastausta 53 uudelleentwiittausta 3 352 tykkäystä
  3. 13 tuntia sitten

    Every strong arm someone to go to another country to get a drug for your loved one?! made me do it. Day 307 ask . for 200 million to ALS research. May this not be the future for others.

    2 uudelleentwiittausta 3 tykkäystä
  4. 25. tammik.

    Ruhun içine hapis olduğu, var olduğun ama hükmedemediğin bir beden.. Günden güne eriyen... 2004 hastalık başlangıcı, 2011 teşhis ve hala bir umut tedavi bekleyen bizler. Allah dünyadaki hiç bir kulunu böyle bir imtihanla sınamasın.. (lütfen hastaları dualarınızda unutmayın)

    3 vastausta 3 uudelleentwiittausta 46 tykkäystä
  5. 28. tammik.

    ALS often takes away a person's ability to speak. Voice and message banking allow people with to use their own voice through a computer when they can no longer speak. Learn more about voice and massage banking technology options at:

    2 tykkäystä
  6. 22. tammik.

    Another beautiful angel has gained her wings. Pray for her family.

    10 vastausta 18 uudelleentwiittausta 257 tykkäystä
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  7. 27. tammik.

    Want to be happier today? sign this awesome petition for a promising treatment. 24,698 signatures to date. Looking for 30,000 signatures

    People living with ALS deserve access to safe and effective treatments. ASAP. We are calling on and to work together to urgently move NurOwn, a promising treatment, through the regulatory process. Join us and sign this petition:
    6 uudelleentwiittausta 13 tykkäystä
  8. 6 tuntia sitten

    In 2017 I was the Mission Commander on USNS COMFORT responding to Hurricane Maria in Puerto Rico. My order to the men and women I led was “Save lives and reduce human suffering.” We did that well. That is now my mission with the fight. Let’s do this Warriors!!!

    5 vastausta 11 uudelleentwiittausta 105 tykkäystä
  9. 16 tuntia sitten

    is wicked, powerful & strips it all away I miss this woman Right here! I want my life back.I beg U would change my young life Please my babies need me I did everything Right In life

    2 vastausta 19 uudelleentwiittausta 93 tykkäystä
  10. 25. tammik.

    Dear Journal, Today I didn’t lose my shit. Sincerely, An Patient.

    1 vastaus 10 uudelleentwiittausta 142 tykkäystä
  11. 20 tuntia sitten

    “We don't Meet People by accident. They are Meant to Cross our paths for a reason.” Their stories touched Her story. They blazed trails so that she may live. ✌🏻🌹

    5 uudelleentwiittausta 22 tykkäystä
  12. 21 tuntia sitten

    3rd Heavenly Birthday for my Mom today. 🥺❤️ robbed my daughter of knowing her incredible Grandma, and now it wants to rob me of seeing her grow up. This family destroyer needs to stop. This is our year.

    9 vastausta 7 uudelleentwiittausta 219 tykkäystä
  13. 3 tuntia sitten

    Axonal pTDP43 is an early marker of ALS! An exciting new study in Journal validates our recent study and finds 98% of ALS patients have pTDP aggregates in their motor axons. Huge advancement for research

    5 uudelleentwiittausta 13 tykkäystä
  14. 24. tammik.

    Please sign this petition and retweet. It might be my only hope.

    People living with ALS deserve access to safe and effective treatments. ASAP. We are calling on and to work together to urgently move NurOwn, a promising treatment, through the regulatory process. Join us and sign this petition:
    18 vastausta 72 uudelleentwiittausta 160 tykkäystä
  15. 27. tammik.

    This before 9am, must be day2 , my favourite 🤩

    8 tykkäystä
  16. 21. tammik.

    This morning over 50 researchers met online for the latest research updates, during a science meeting! Knowledge on these new findings help to further accelerate research to understand the basis of

    11 uudelleentwiittausta 44 tykkäystä
  17. 26. tammik.

    QR Code for Petition Given the promising P3 & EAP data, biomarker data & critical unmet medical need in , we believe the totality of the evidence supports 's approval. SHARE with everyone in US!

    4 vastausta 32 uudelleentwiittausta 51 tykkäystä
  18. 28. tammik.

    From presentation at CA Research Summit re Primary endpoint was -1.25/mo change in slope. Appx on third of people achieved that endpoint across every ALSFRS-R Placebo⬆️at lower scores demonstrates floor effect & many who had 0s

    3 vastausta 13 uudelleentwiittausta 30 tykkäystä
  19. 21. tammik.

    I started to fall and then my husband caught me And then he sang “if you fall I will catch you I’ll be waiting…time after time” And with him…this hard life with feels doable

    31 vastausta 54 uudelleentwiittausta 1 741 tykkäystä
  20. 10 sekuntia sitten

    Are you stuck at home with nothing to do because of a blizzard? I have a great way you can spend the next 60 seconds. Please sign the petition (below) calling for access to the promising treatment called . You could save some lives.🙏

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