Rezultati pretraživanja
  1. 1. velj

    No one cares about . No one cares that hundreds of thousands are suffering and going through indescribable HELL. No one cares that hundreds of thousands a year are dying premature deaths. No one cares about ALS. And it's a fucking shame.

  2. 2. velj

    3 DAYS until the until the letter below is being delivered to the by . We need strong support behind a letter fighting for access to investigational therapies in . PLEASE ask friends and family to sign and circulate the letter.

  3. 1. velj

    Here we are in 2020 still talking about promising treatments for . We have got to do better. How much longer must the community suffer? How many more deaths? What is our gov’t doing for its people with ALS: Doctors, lawyers, veterans, firefighters, engineers...

  4. prije 10 minuta

    Join Andre Greipel on on 8th Feb to raise money for

  5. prije 14 minuta

    A trial shown to STOP and even REVERSE ALS via NRPT. Keep in mind there are tons of caveats here including the researchers receiving payment and stock options from the drug company. Hope NRPT is pursued further.

  6. 2. velj

    In honor of , salutes fans and their loved ones who have been impacted by . is dedicated to finding a treatment for . Retweet and tag those you want to honor in the fight to !

  7. prije 1 sat

    As a mom seeking desperate help can we meet in about drugs supporting ! Buried my 17 yr old daughter. NOW her twin is fighting but we need your help for her and others!! I don’t want to bury another child! PLEASE help

  8. prije 1 minutu

    Hoping to about the communication experiences of people live with ALS, their caregivers, and healthcare providers working with ALS: QuestionPro Survey -

  9. prije 2 sata
    Odgovor korisniku/ci

    Hopefully we can soon get back to the business of helping Americans. When will the meet again and take bold action to and confront the severe lack of research funding?

  10. prije 6 sati

    We couldn't be more grateful to have the support of our local & its members. Thank you so much! We send HOHs to children & young adults affected by to give a hug from afar & we're sure these adorable stuffed friends will bring smiles wherever they go!

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  11. prije 6 sati

    Thank you to both Betty & Kelly who stopped by our office to drop off a bunch of new stuffed animals for our Hug of Hope care packages for children & young adults who have or have had a loved one with !

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  12. prije 23 sata
  13. 2. velj

    We will win the battle against . The only question is when. ALS is a devastating disease and is dedicated to finding a treatment.

  14. 2. velj
    Odgovor korisniku/ci

    You have the treatment for already! We need to be dedicated in finding a way to get it to market. Time is precious!

  15. 2. velj

    Something to think about. Four members of the who all trained at the same facility in Redwood City died of . There names were Dwight Clark, Matt Hazeltine, Gary Lewis and Bob Waters. Nobody knows why.

  16. 2. velj

    Hard to watch a loved one suffer from a disease, like , day after day, knowing there are treatments with potential, but no access to them. Politicians don’t care. Big pharma doesn’t care, and organizations meant to help don’t care. Our hearts continue to break more everyday.

  17. 2. velj

    But can we please get a treatment for that actually does something, other than what is currently available!?!?

  18. 2. velj

    My son is in the Philippines and said Uncut Gems is on Netflix but I can’t find it here.

  19. 2. velj
    Odgovor korisnicima

    Dr. Hahn and Secretary Azar, Thank you for protecting Americans against the coronavirus. is another deadly disease in the US with 30,000 victims. Please contact to create a pathway for approval of ! What would you do if you or a loved one got ?

  20. 1. velj

    1st documented case of ALS 1869. For 150 years 80%+ die of in 5 years Treat w the urgency it deserves as an illness w NO effective approved therapies & NO survivors in 150 years.

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