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Great day at Grady’s Best Day Ever! Special thanks to our players, past and present, that were able to help out at today’s event.
#ALDawareness@SHSBDevils@SalemHighSchoolpic.twitter.com/ewPw8TXHnl
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So grateful for a successful Run for ALD! Beautiful day, hugs, tears, 300 participants, and nearly $15,000 raised for ALD research. Thank you to sponsors, volunteers, friends, family, and ALD families who travelled from near and far!
#knockoutALD#ALDawareness#savetheboyspic.twitter.com/9W7OXjYhu5
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Great time on Sunday hanging out with Grady and Rowan! Grady’s Best Day Ever was a huge success and a lot of fun!
#ALDawareness@SHSBDevils@SalemHighSchool@jillysmitty519pic.twitter.com/e4yc3UbhM2
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Glad that the ice bucket challenge is raising awareness for ALS, but there are so many other diseases that need awareness too
#ALDawareness -
@petersonshdsouth and @indianlarrymotorcycles 1st Annual Aidens Ride Miami
#aldawareness http://www.aidanhasaposse.org ... http://fb.me/2xOSRmr9R -
@rioferdy5 Please could you read Alfie’s story and share
my friends son has heartbreakingly been diagnosed with a terminal illness, so are raising as much money to make as many memories for him and raise awareness #ALDawareness#memoriesforAlfie https://www.gofundme.com/memories-for-alfie … -
One week to go before we walk and Run for ALD! There’s still time to sign up and join us at 9 am on Nov. 17 at Creve Coeur Park to help Cure the Boys! Register (or donate) online http://www.fleetfeetstlouis.com/racing/Run-for-ALD … or on race day morning 7-8:30 am!
#KnockoutALD#ALDawareness -
Father Raises Awareness for Son's Rare Disease: http://www.texomashomepage.com/story/d/story/father-raises-awareness-for-sons-rare-disease/29094/llXBZKvNq06cWAQeKIM5LA#.UzXcS5kFOd8.twitter … Please RT for
#ALDAwareness this little boy is precious to my heart! -
Shout out and big thanks to my friend Greg Hewitt for this interview about our Run for ALD on Nov. 17. It’s worth a listen to learn more about ALD and our event! Https://omny.fm/shows/kezkfm-on-demand/Greg-metro-show-ALD-run-walk …
#KnockoutALD#ALDawareness#RunforALDCuretheBoys -
@StoolGreenie@semi took the time b4 the Nets game (before thanksgiving) to meet my son Grady. He gave Grady a bracelet and took his bracelet in a trade. bracelet reads “Grady’s gladiators Tough times don’t last tough people do”#aldawareness he’s still wearing it tonight! -
Our Nicholas has his second chance at a healthy life thanks to this wonderful place! 50 years of BMT’s, many lives saved, wow! So grateful!
#BMTstrong#ALDAwareness#knockoutALDhttps://twitter.com/MHealthFairview/status/1033027916010086400 …
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What advice would you give to parents whose child has just been diagnosed with ALD?
#ALDAwareness#raredisease#leukodystrophypic.twitter.com/FqFEQMz9lU
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He's a dinasour!!! Haha!
#savehayden#aldawareness http://instagram.com/p/sDyBRTFp31/ -
@richardbranson Please can you use your platform and share this to all your followers and help my friends little boys’ dreams come true as well as spread awareness for ALD
#MemoriesforAlfie#ALDawareness Share, share, share
#lifeiscruel
https://www.gofundme.com/memories-for-alfie … -
"In the case of these rare diseases, most physicians who will treat your child have never even heard of—much less have any degree of medical expertise in—the disease at hand.” Something we in the
#ALD community must change.#ALDawareness http://ow.ly/cYC630i0COO pic.twitter.com/BFp46Rtftm
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How much information about
#ALD did you receive when your son was diagnosed?#ALDAwareness#raredisease#leukodystrophypic.twitter.com/hSlVz3S6hE
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Keeping a friend and her family in uplifting prayer. Her little boy passed away this morning.
#resteasylittlebuddy#ALDAwareness -
With huge thanks to everyone that supported The Nelsons ALD Awareness Campaign alongside us today raising awareness of ALD as well as those who donated to
@ALDLife#sidcup#workingtogether#thumbsupsidcup#ald#aldawareness#saveourboys#screen2bseenpic.twitter.com/G6FyGDD0nr
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Hey
@MikeMcCreadyPJ! I'm a huge fan. Was wondering if you might be to get us something signed that we could raffle off at a fundraising event that we're having on behalf of our son who was diagnosed with ALD?#ald#aldconnect#aldawareness pic.twitter.com/LIQgzXVqKW
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