Rezultati pretraživanja
  1. 3. velj

    Children all around the world with their ❤ more to come in 2020 !!!!

  2. 3. velj

    Looking forward to helping progress cross-party work in improving access to - particularly in rural areas such as Also, to increase awareness of little-known chromosomal disorder, (or ) Syndrome.

  3. 3. velj

    Dear twitter Friends As someone with I hope and pray EVeRY DAY to make more new friends that also have 22Q because I wanna find more people like me! So I can have a connection with amazing people! That is MY GOaL

    Ovo je potencijalno osjetljiv multimedijski sadržaj. Saznajte više
  4. 2. velj

    En , este cualquier forma es buena para sensibilizar sobre el .

  5. My son has many tendencies and a lot of the spectrum traits overlap with . Although 22q is a syndrome, many services were not provided until we pushed for an diagnosis. Why does everything have to be a fight? Next book.

    Prikaži ovu nit
  6. Have any mamas checked your non-verbal kiddos for ? Sometimes misdiagnosed.

    Prikaži ovu nit
  7. 2. velj

    If you guys don’t know what is It is a rare syndrome that effects your heart and learning it effects the 22nd missing chromosome it made me have many open heart surgeries sadly....

  8. 1. velj

    Dear twitter friends as someone who is a 22q activist today I spent the day at !! I appreciate everyone that supports my journey on making awareness more famous! My goal is to have a story done at News in central Florida one day to share my story ❤️

    Ovo je potencijalno osjetljiv multimedijski sadržaj. Saznajte više
  9. 31. sij

    Dear twitter friends As someone wirh If you guys did not know I have had many open heart operations in my life but I am so blessed to be healthy and well! I love sharing my story about my disability I have had more than 2 open heart surgeries in my life

    Ovo je potencijalno osjetljiv multimedijski sadržaj. Saznajte više
  10. 28. sij
  11. 28. sij

    Gracias a Para más información y poder hacer uso de este servicio contactar con Natalia: trabajadorsocial@22q.es

  12. 20. sij

    DEAR Twitter Friends As someone with Syndrome i have a NEW Video about my Disability coming out tonight BE READY!!! FOR THIS AMAZING VIDEO

  13. 20. sij

    WOW! This sold out faster than a concert. For anyone who isn’t able to attend, portions of this will be interactive online and there will be future retreats in other parts of the country.

  14. 7. sij

    When are you going to verify my man ? As the parent of a child w/ I appreciate his advocacy, and verifying his account would help our efforts.

  15. 6. sij

    Meet Justin. He's a activist, YouTuber & fan. Last year, & gave him props for his work. What are his plans for 2020—after reaching 3 million people with one tweet in 2019? Take a look!✨💥🚀

  16. 1. sij

    It’s a new year and a request from another page prompted me to share our progress. When our babies are born so ill, it’s hard to see that they’ll ever thrive. 💕 He’s doing it! Happy New Year from our home to yours!

  17. A local New Mexico family joining us at the

  18. we are a sideline sponsor for trying to raise awareness for 22q11.2 Deletion Syndrome. We would be super grateful if you could mention during the broadcast!

  19. 18. pro 2019.

    Pretty cool that has partnered up with the New Mexico Bowl to raise awareness for . If you’re watching the game Saturday, you’ll notice the 22q signage. Everything helps!

  20. 18. pro 2019.

    With just around the corner I'm finding myself on the changes made over the last 12 months but in truth the changes started 4 years ago when Enfys was in hospital

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