Rezultati pretraživanja
  1. 24. ruj 2015.

    "Lion's Mouth Opens" screening and discussion reminds all of us what courage means and why we need to know more, do more -NOW

  2. 24. ruj 2015.

    Matt Wilsey: "genome sequencing should be first test, not test of last resort" ultimately cheaper & faster

  3. 25. ruj 2015.

    Beautiful networking evening @gobalgenes

  4. 26. ruj 2015.

    Mikey and Kris Allen talking shop at our table!

  5. 26. ruj 2015.
    Odgovor korisniku/ci

    here's a picture of the venue!!

  6. 24. ruj 2015.

    met Noah, the man who ran across the US to bring awareness to rare disorders.

  7. 26. ruj 2015.

    Christina at the Global Genes Gala this evening || || via kevinsucher on IG

  8. 24. ruj 2015.

    Powerful film on Huntington ' s disease # lionsmouthopen, with filmmaker Marianne

  9. 25. ruj 2015.

    People are listening to advocates. $176B of orphan drugs in next 5yrs! - Alison Silva

  10. 25. ruj 2015.

    . bears! Keep an eye on Rare Science Christina Waters

  11. 23. ruj 2015.

    Can't wait to be at

  12. 25. ruj 2015.

    Sharing my story about the importance of the patient family connection with the research community.

  13. 24. ruj 2015.

    "patients are connecting faster via social media, but social media is a band aid for a broken system" --

  14. 27. ruj 2015.

    Patient advocacy champions working on behalf of our community Gala

  15. 24. ruj 2015.

    LOVE that is answering questions from their livestream audience via

  16. 25. ruj 2015.

    Dr. Rao from speaks abt how to maximize engagement in drug development process-first advice: create a patient registry

  17. 25. ruj 2015.

    Tips on advocating on Capitol Hill from

  18. 24. ruj 2015.

    So honored to be able to listen to this parent advocate's story to help his daughter and other children

  19. 24. ruj 2015.

    Global Genes Rare Patient Advocacy Summit

  20. 24. ruj 2015.

    We're at learning about panel resequencing, data sharing and consent.

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