Harmony 4 Hope

@harmonize4hope

Leading Nonprofit Mobilizing Community & Raising Funds 4 Rare Disease through the Universal Power of Music & Storytelling. We Tweet

Chicago
Vrijeme pridruživanja: listopad 2013.

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  1. proslijedio/la je Tweet
    prije 4 sata

    I’m so excited to share my family’s story of rare disease and perform some songs I’ve written because of it at the Rare Storytellers event on February 27th!! I love this community and it’s a gift to…

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  2. prije 4 sata

    Thanks Lori!

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  3. prije 5 sati

    Our event at on Feb. 27 is sure to be star-studded!🤩 We’re excited to announce that H4H Musical Ambassador and Rare Storyteller will be joining us to drop a beat for aHUS.

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  4. 3. velj

    As you get ready to celebrate , check out our newest H4H Musical Ambassador and , , who’ll be turning up the volume for Atypical Hemolytic Uremic Syndrome (aHUS) on 2/27!

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  5. 31. sij

    We’re less than a month away from our Rare Disease Day concert at . During the show, During the show, we’re honored to gift a Beamz Device to the Rockstar Music Therapists at CHW. Learn more about how this device is making music accessible ⬇️

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  6. 29. sij

    Feeling like you need a midweek pick me up? Check out one of our awesome H4H Rare Playlists on Spotify to hear some of our favorite hits, including “Beautiful” by Christina Aguilera!

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  7. 27. sij

    We’re getting excited for the 3rd annual Rare Disease Day celebration at on Feb. 27! We can't wait to hear from Linda Bevec, who will be amplifying the beat for Auto Recessive Polycystic Kidney Disease/Congenital Hepatic Fibrosis.

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  8. 24. sij
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  9. 24. sij

    We are proud to have as a partner in our mission to cultivate awareness and education around Rare Diseases like Cystic Fibrosis.

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  10. 22. sij

    Just when you thought February couldn’t get any better, we’re excited to announce we’ll be hosting a rockin’ Rare Disease Day concert at on Feb. 28 with special guest & H4H musical ambassador ! Stay TUNEd here for more information!

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  11. proslijedio/la je Tweet
    21. sij

    The FDA makes a designation of CUTX-101 for the treatment of a rare pediatric disease, building on pre-existing designations in efforts to speed up development for Menkes therapies.

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  12. proslijedio/la je Tweet
    20. sij

    If you're going through a hard time, remind yourself that it won't last forever. You'll be stronger and smarter on the other side. You'll build resiliency to carry you through future hurdles. Challenges teach us to appreciate the good times.

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  13. 20. sij

    Roses are red. Violets are blue. Do you love as much as we do?! Check out one of our rockin' Rare Playlists on Spotify to help you dance away those Monday morning blues:

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  14. 17. sij

    Did you know that American Singer/Songwriter, Woodie Guthrie and members of his family have battled Huntington’s Disease (HD)? Look what’s happening in America’s Heartland today for HD ⬇️

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  15. proslijedio/la je Tweet
    16. sij

    ATTENTION ALL PATIENT ORGANIZATIONS! The National Burden of Rare Disease Study aims to determine the true economic cost of rare disease. We're seeking the participation of patient organizations to be part of a survey. Please email Kara Mossler kmossler@everylifefoundation.org

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  16. 17. sij

    Thanks 4 sharing our tune. Hope to see you there!

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  17. 16. sij

    For the third year in a row, we’re carrying our tune back to for Rare Disease Day 2020! On February 27, join us for a rockin’ celebration of all things RARE. Stay TUNEd for upcoming announcements on which will be making an appearance!

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  18. 14. sij

    Thanks for RT!

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  19. 14. sij

    Have you followed one of our awesome H4H Rare Playlists on Spotify yet? Head on over and listen to some of our favorite hits like “Overcomer” by Mandisa, today!

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  20. proslijedio/la je Tweet
    10. sij

    Sara Kennicott is a believer of hope. It was this hope that led her and her husband to found in honor of their daughter, Bridget Rose, who was diagnosed with Batten Disease at the age of three. Learn more about this :

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