Reading it I learned she had a rare form of epilepsy that’s resistant to drugs. Those people are much more prone to sudden death during an episode. Sadly that happened to Amelia. I’m feeling quite tender at the moment so it hit me right in the guts and I had a cry in the loo.
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In the footnote of the order of service her mum and dad had put a just giving page for her, so I made a donation and wrote a little note explaining this little story. And the next day I woke up to a lovely email from her mum and dad.
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They told me what that Amelia had made quite an impression in her short life. She’d arranged to donate her brain to epilepsy research when she died. And she had over 600 mourners turn up and spill out of the church at her funeral.
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I know we hate threads. I’m not sorry. Donate your organs. Be brave, and be fucking kind to each other.
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A few of you have asked and Amelia’s mum is very happy for me to share the link:https://www.justgiving.com/debbieroberts21
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Amelia’s mum has messaged me a bit of info to explain that if you’d like to donate your brain there’s a separate process to general organ donation but it’s easy to do. Go to http://epilepsysociety.org.uk/how-become-donor …pic.twitter.com/UKjN4POXYo
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Barely started life and it was over. Haunting.
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She knew how likely she was to die young. But she kept smiling.
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